Decision Dilemma: Rcvd Order for CT pelvis/abd & NM total body bone scan from original Med Oncologist

[depotdoug]

Yes, I've got a De-cision to commit to or not. In 2017 and 2018 I had a CT scan(with contrast) & NM Total Body Bone scan w/ my original Ft Wayne MO. Both scans showed NO progression of my prostate cancer. That was 1-2 years before my PSA doubled to 17.7ng/mL And Advanced Prostate Cancer Dx'd found on my Pelvic and abdominal Lymph nodes Aug 20th 2019. 6 weeks into Lupron inj #1, latest PSA 2.9 down from 8.566 and T-level 10.9 down from 296.

Questions: _________________________________________________________________________

> 1. Would these (2) two scans be super beneficial for my now Advanced Prostate cancer, Pelvic and upper body Lymph nodes progression?

> 2. Since Aug 2019 I'm seeing, being treated, monitored by my newest most advanced Med Onc doctor. Why should I not do both scans with my present MO?

Should I lean, rely on one, MO for all of my cancer monitoring?

[Tall_Allen]

You have too many cooks. Pick one.

[depotdoug in reply to Tall_Allen]

I pick my IU Health Cancer Med Onc. Why?

1. He believes in 68Ga-PSMA-11 testing, but is extremely logical medical minded, patient focused on me. Is that enough? No. He is surrounded by the latest and greatest Cancer treating advances med technology methods.

2. My previous 1st MO maybe now my former MO; told me recommended I go to my former Urologist for ADHT. That's it. Oh he gave me an option of Orchiectomy too. Did not even mention advanced prostate cancer testing.

Tall_Allen:

>- - - Question remains is a CT w/contrast of my abdomen/pelvis and a NM total body bone scan applicable, beneficial, detectable, 90 days into 1st Lupron Depot injection?

Final caveat: 1st MO(one ordering scans) is 5 min from home.

IU Health Simon Cancer MO is 2h15m from home. I know travel time/miles is not a roadblock to our future lives.

How do I get an answer to my question though, Tall_Allen?

Depotdoug

[Tall_Allen in reply to depotdoug]

You ask your MO what he needs to see.

[depotdoug in reply to Tall_Allen]

Like the saying says 'will do'. I Already sent a message Thursday AM with that request. My impatience sometimes gets overwhelming. Fact is I'm not the only hurting, or diseased breathing human with questions that a specialized specialist doc has to respond to. One of the largest, multi-functional advanced cancer centers in the Midwest I'm treated by so I shall call my MO's RN back Monday after lunch.

One of my worst nemesis' is being an impatient patient. When I found out my 1st ICD/pacemaker device was pegged on a FDA premature battery recall in late 2016 with a battery that could and has caused shorts in its Lithium-Ion chemical clusters, I was on my cardiac device clinic staff a lot, plus my device manufacturer constantly. Fact is my ICD/pacemaker has never caused a defibrillating shock outside of the Electrophysiology Lab. Until I met my 'ERI' elective replacement indicator' alert, which means -30 days battery left I was literally a hyper-medical energized Ever Ready Rabbit.

I'll enjoy the weekend exercising and my church life.

Thanks Tall_Allen

Monday will come soon enough.

Doug

[larry_dammit]

Yes ,stay with one doctor, most wont share the tests unless forced to I’m lucky that all my doctors are in a network within the hospital. No one touches me without my oncologist knowing and approving it. 39 months and counting

[dadzone43]

Agree with the preceding input. Especially for an "impatient patient" (I am one too) where two many data points hurt instead of help.