Advanced Prostate Cancer
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Anybody found anything that counter fatigue due to cancer meds?

My name is Charles. Diagnosed with prostate cancer in 2013--spread 5 places. Had 68 radiations(finished 2 years ago) Now Lupron and Xgeva shot every 3 months. And take 2 Xtandi pills every day. Have kept active, tho at times the fatigue is almost debilitating. Weight is fine and there has been no pain. Has anybody found anything to counter fatigue. I have heard of bee pollen but have not purchased any yet. I take raw honey daily--it maybe helps. Thanks

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Hi Charles.

At the risk of being wrongly accused by others of promoting a product I have a financial interest in, this is something I've been researching BEFORE starting ADT.

In parallel with my findings, a friend, who is very knowledgeable and professional researcher, suggested SARM (Selective Androgen Receptor Modulator), in particular Ostarine MK-2866.

In short, it's an anabolic without the androgenic effects, it's the latter that "encourages" PCa growth.

I doubt if a doctor would prescribe it, but it is relatively low cost and can be purchased online without prescription.

Given your fatigue may well be zero-T, this could be worth considering.

Perhaps others on here will have something to add (other than false accusations of promotion).

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Here, this troll will post it for you.

selfhacked.com/blog/ostarine/

I've never heard of it but it looks very interesting. Thanks for the heads up on this product.

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A great link. Improving insulin resistance and reducing blood sugar: a great adjunct to cancer treatment.

I have ordered some on Amazon - no, I'm not in its pay, either ;-)

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The professionals are not so enthusiastic about Ostarine MK-2866.

bscg.org/ostarine-a-banned-...

usada.org/substance-profile...

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The only thing that works for fatigue from Lupron and Zytiga is workouts at the Y. Seems counterintuitive but the more I work out the more energy I have. Still have >20 lbs of fat from the hormonal treatments. At least it is not 30 lbs.

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Other than exercise, I know one guy who got a scrip for Modafinil.

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Modafinil helped Elgie but years ago his healthcare stopped paying for it. It's very expensive.

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Good Morning williamsbooks,

When I was undergoing chemo with Docetaxel/Carboplatin I took Wisconsin American ginseng to moderate fatigue. Google Mayo Clinic trial and ginseng for their results.

Did it work---I don't know as I still had some fatigue on days 3-5 after infusions, but it may have been worse without ginseng. Worth a try.

Best wishes. Never Give In.

Mark, Atlanta

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My GP started me on Adderal, 20mg. It has helped immensely. My PSA has met to my left pelvic iliac node. Just started on Ilegard as Lupron knocked me for a loop. Joseph Smith

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Workouts and lots of walking. Push through the fatigue and it does get better. On lupron and Xgeva and finished 6 rounds of chemo in January.

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William did the doc say why he put you on 2 Xtandi instead of the usual 4 caps per day

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From a guy who fought this battle fourteen years ago, I can not offer any solutions other than time. Your are sick; your immune system is out of whack. Your body is saying to you, take it easy and rest while I recover. Best advice I received from my research Medical Oncologist.

I was advised to not take supplements of any kind; absolutely nothing touted as a supplement from any source other than your treating physician that would suppress PSA. The hardest part is to get the spouse to understand. Constant nagging does nothing for the mindset in a positive manner.

Surround yourself with supportive people. Walk away from negativity. You are not a half a man. You are a Statistic of One; it matters not what others have done, it matters only to you. Stay positive and win the battle!

Keep kicking the bastard.

Gourd Dancer

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That is the best advice I've heard in a long time !! Thank You.

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Wow.... that's very surprising to me gourd_dancer. I am always the one to protect and excuse and to let him know its okay to rest.... look what you've been through. I can't imagine doing anything different. I just thought everyone did this for their other.

Jackie

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It can be easy for your spouse to forget exactly what is happening to us. It did with mine anyway. In year 3-4 we may look good seem normal going to work and all. I did lose some support. Actually some bad things happened. Just symtom of this horrible disease and treatments. Life goes on.

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:(

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I think it is important to listen to our body and not fight all the time and push. If Paul is really tired and falls asleep a lot, it means that his body is exhausted and needs rest. And that is not surprising because he is on a very aggressive treatment. Okay, sometimes I do encourage him to go out for a short walk, but I would never push him to do a lot of exercise or to take supplements of any kind. Some supplements may be helpful, but we never know what effects they have together with the prescribed medication or what side-effects may develop. So it is always better to be a bit careful I think. Just give yourself time, go out for short walks, sleep when your body wants you to, and take the time to get well.

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Charles W here. Prostate cancer started in 2013 and went 5 places. Had 68 radiations but no chemo. Was in habit of exercise(half/court Basketball with seniors), so I continued and still do. Then Xtandi pills started 1and 1/2 years ago--and fatigue came in like a blizzard. Also take two shots every 3 months:Lupron and Xgeva. I have made a habit of exercise, short rests, teaspoon of honey. Apparently nothing will conquer the fatigue totally--yes, accept it and move on. Now, however, a new diagnosis that MDS is present: Myelodyplactic Syndrome. I have thought about going to Mayo Clinic in Scottsdale for a 2nd opinion. Age is 79 and still in my vocation. Any thoughts TX

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Hi I find the fatigue I encounter difficult but manageable. I try to keep a good organic diet and take lots of supplements which help. I recently came back from a short activity holiday (4 sons I need to keep busy) and I forgot to take my immunecol platinum which I take religiously, I was absolutely shattered without it! This helps keep my energy levels up, I didn’t actually realise how much until I skipped it for 4 days. My wife bought it for me at the start of my diagnosis and it’s proving to be effective! I find pushing myself physically helpful, I walk miles everyday which keeps me physically and mentally in better shape. The fatigue is the hardest part as I’m only 48 but it comes in bouts and it’s tolerable. 👍

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