Do cooling caps work: I start chemo... - Advanced Prostate...

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Do cooling caps work

ken12491 profile image
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I start chemo next week and was wondering has anyone tried using a cooling cap to save hair loss.

The chemo is Doxetal or Taxotere, I think they are the same. One being generic - can anyone tell me which one is the generic one and does this drug cause hair loss - I see all sorts of answers when I google.

Thanks..

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kidclutch profile image
kidclutch

my dad just did the second cycle of taxotere / docetaxel (they are the same—docetaxel is the drug name, taxotere is the brand name). he lost a lot of hair about 12 days after the first infusion. a friend of mine did after 3-4 infusions.

another friend used a cold cap for a different chemo with cervical cancer and did retain quite a bit of her hair, though!

kidclutch profile image
kidclutch in reply to kidclutch

i believe you have liver mets? my dad does too, and some suspect lung spots. the PSA fell 100 points after one cycle of docetaxel with manageable side effects for just a few days. best of luck to you, feel free to message me.

ken12491 profile image
ken12491 in reply to kidclutch

hello - I did / maybe still do - got treated with regional chemo directly to the liver with a single dose of some form of chemo that was 300 times the strength of a regular dose --- 3 days later they took a biopsy, and found all dead cells and the genetic profiling labs could not make a recommendation as to what chemo drug to use so my doctor picked docetaxel.

kidclutch profile image
kidclutch in reply to ken12491

i will keep that therapy in my notes if the next scans (after the next cycle) aren’t showing radiographic improvement. the bilirubin has been fine and normal so onco wasn’t immediately concerned about the liver, so proceeded with the docetaxel. dad has an ATM gene mutation, so radiation gets incredible response but higher toxicity. chemo seems to be pretty average so far, though. did you have a lot of nasty side effects from the arterial chemo?

16starsky profile image
16starsky

My Husband used a cooling cap for his 6 sessions of Dox/Tax (same)

It is of course, very very cold. I asked my Husband to try it, and if it was too much for him to stop. but he carried on and although he lost his eyebrows and moustache he kept all the hair on his head.

They put the cap on about half an hour before the chemo starts and the same at the end.But my husband was pleased that he kept his head hair, and could tolerate the cool cap.not every one can.

Just try it first session, they can always take it off, if you cant stand it.

Don't be scared of the chemo, my Hubbie had very few side effects, no being sick , just tired, and pins and needles in hands and feet (slightly) but gone now.

It was well worth it, took his PSA from 320 to 1.5

Good luck

Kim

ken12491 profile image
ken12491 in reply to 16starsky

thank you very much....

Amandaking profile image
Amandaking

My husband had Taxotere last year and this post was the most helpful information that we read before he started. He persevered with the cold cap and kept all his hair. Eating ice cubes and wearing iced hands and feet Mits prevented neuropathy- good luck to you 🤞

Avoiding chemo side effects - Taxotere

TNCanuck

TNCanuck•

a year ago•19 Replies

This post was originally made by a gentleman on another, similar site. I have not vetted the facts of the post, but can tell you that following the advice regarding minimizing side effects worked very well for my husband. Regarding hair loss, my husband chose to use cooling caps and did not experience any hair loss. As for working while on Taxotere my husband worked full-time, taking off half a day or less for the infusion appointment. He also walked a minimum of 10k steps EVERY DAY throughout the treatment. PRAYERS for great results for all who are treated with Taxotere!

TAXOTERE was first approved for the F.D.A. for use in the treatment of prostate cancer in the year 2004. Researchers spent YEARS finding chemotherapy compounds that could attack prostate cancer cells. At that time, TAXOTERE was typically used for advanced prostate cancer, after all other treatments had failed. It was once considered a "Hail Mary" pass in the last quarter of the football game, so to speak --- but certainly a tremendous STEP FORWARD in treatment options !

Things have CHANGED since then, my friends --- new breakthrough medications, used in combination with TAXOTERE, have created an entirely new landscape in the treatment of advanced prostate cancer and TAXOTERE has shifted to an upfront treatment option, rather than a "last shot" treatment option. It has now moved its way to the "front of the line" --- which means that now some fellows get started on a chemotherapy regimen almost immediately upon diagnosis --- often in combination with other medications or treatments.

In more recent times, based on the results of clinical studies such as the STAMPEDE trial and the CHAARTED trial, the use of TAXOTERE has been used MUCH more frequently as an upfront treatment for specific cases of advanced prostate cancer. It's important to note that TAXOTERE is also used as a chemotherapy treatment option for other types of cancer besides prostate cancer, as well.

As a weapon of attack, TAXOTERE has cytotoxic properties that attack rapidly growing cancer cells. Some of the cytotoxic, cancer-killing compounds used in TAXOTERE are derived from California yew trees. Who would have thought that yew trees would become a source for a potent form of defense against various forms of cancer.

Meanwhile --- it's important to know each person's experience with chemotherapy, typically TAXOTERE, can vary widely. Some oncologists are now adding additional components to their chemotherapy blends, such as CARBOPLATIN and other compounds, to address the individual needs of the patient. These are commonly nicknamed CHEMOTHERAPY COCKTAILS, as the science of blending patient-specific chemotherapy mixtures continues to evolve in recent years.

During my chemotherapy treatments with TAXOTERE, I felt fortunate, in that I went to work each day and kept up a full schedule during my treatments, for the most part.

Several of us have banded together on this thread, with a common goal of sharing some of our experiences with chemotherapy in a "one brother to another brother" style ... honest and straightforward. We felt that learning about chemotherapy from other comrades who have been "soldiers from down in the trenches of battle" would provide a factual and honest account of our collective experiences, from a wide range of BATTLE BROTHERS, trusted and true ... from right here on our forum.

With that intent in mind, here are some things that I have learned, from my own first-hand experiences while undergoing a series of chemotherapy infusions, that might give you some insight if you are considering TAXOTERE chemotherapy treatments, now or in the future:

1. HAIR LOSS: Truth be told, fellows ... we'll get right down to it ... it's usually every fellow's first question aboutchemo treatments ... yes, I did lose all of my hair from the top of my head --- perhaps two weeks after my first chemo treatment, which is a common occurrence. However, some of my friends kept some of their hair, while ironically, other friends of mine kept ALL of their hair. So, as you can see ... hair loss can vary widely. Hair loss is quite typical for the MAJORITY of chemotherapy patients, so just be prepared in advance, my friends !

2. BUZZ CUT STRATEGY: When my hair started falling out, it was very SUDDEN. Almost every person who loses their hair reports this sudden phenomenon. My hair suddenly began falling out in clumps one morning in the shower, without any warning ! CLUMPS of hair in the shower drain ! As I continued to shampoo and then dry my hair with a towel ... even more fell out ! I went to work, not quite sure what would unfold next for me ... it soon became clear that even more hair was falling out throughout the work day, even at the slightest touch. MESSY ! What's a fellow to do, right ? Here's a simple strategy that works ... that evening after work, I quickly drove to a nearby barber shop and got a "buzz cut" to help ME make the transition. In the days thereafter, even the "buzz cut" started falling out completely. So ... about a week later, I finally got out my electric razor and used the electric clipper and completely buzzed off the rest ... and I was bald. To be honest, this was a bit hard to deal with at first, as you can lose some social confidence when you lose your hair so suddenly. At the first sign of hair loss, though, getting the buzz cut FIRST helped ME make the transition to total hair loss. If it begins to happen, go for a buzz cut that day. That strategy helped me immensely !

3. SOCIAL CONFIDENCE RESTORED: To help me deal with my hair loss, I just went and bought some casual hats and also a few dress hats --- I used the casual hats for everyday events and I used the dress hats for formal occasions. Having a VARIETY of hats helped me regain that little edge of confidence for social situations at various times. I also bought some winter hats to help me get through the cold winter season. Here in the Midwest region, the winter season is long and cold, so I was suddenly sporting some new stocking hats when winter rolled around. Hair loss --- if it happens, you deal with it, you throw vanity out the window, and you MOVE ON with your life. People DO understand --- they realize you are going through treatments --- they have compassion. When you put it in perspective --- I had always admired the bravery of others who experienced hair loss when THEY were going through medical treatments --- so, I suddenly realized that any traces of personal vanity needed to be put on the back burner --- and I just forged ahead with my treatments. This is a topic that needs to be addressed ... because fellows DO ask, "Does this mean I'm really going to lose my hair?" The truth ... maybe ... yeah, probably ... and you get over it ... with that being said, it's time to move on, fellows !

4. APPETITE: Before each chemotherapy treatment session begins, they give you anti-nausea infusions and steroids right before the TAXOTERE chemotherapy infusions. These components help you OVERCOME some of the side effects that once gave chemotherapy treatments a nasty reputation decades ago. Quite honestly, I did NOT have any digestive problems or nausea, whatsoever. I was very thankful for that ! Chemotherapy has improved in that regard in the past few years. Many of us have learned from personal experiences that it's best to eat properly while going through chemo treatments --- just do your best to stay away from greasy foods, fast foods, and junk foods, overall ... but don't deprive yourself of your favorite comfort foods along the way ! Personal confession ... after every chemotherapy infusion, I always went out to dinner that night at my favorite barbecue restaurant, just as a way to relax after "treatment day" was over ...

5. HEALTHY HYDRATION: An important lesson that I learned from my experiences and other CHEMO COMRADES here have concurred with this helpful tip over time --- drink plenty of water before each TAXOTERE infusion, but also keep drinking a healthy amount of water FOLLOWING each treatment after you get home. Your body needs WATER to deal with the toxins that are infused with each TAXOTERE treatment. Lesson learned - stay hydrated before AND after each chemo treatment. Water seems to be the best "elixir" for so many types of prostate cancer treatments and medications. Another helpful tip, from one fellow to another --- if you need to use the restroom DURING a chemo infusion, they can easily unplug the infusion machine and then you just plug it back in after you return from the restroom. No problem, no worries!

6. CHEMO ENERGY CRASH: A couple of days after each infusion, then you will typically experience what I call "CHEMO CRASH" --- 2 or 3 days after the treatment, usually. Ahhhh, yes ... the "crash" ... as we all call it, is somewhat of a delayed reaction, occurring a few days after a treatment, because of the initial steroids that they give you when you receive each treatment. A few days after each chemotherapy infusion, a feeling of malaise or lethargy is typical. You're going to feel like a car battery that needs a set of jumper cables on a cold winter's morning to get jump-started. I just found that resting on the couch or in a recliner seemed to help me the most. In a day or two, your body will begin to re-bound and your energy will be restored. The "CHEMO CRASH" feeling will begin to drift away. You can expect to feel this sensation after each treatment, but then it fades away and your energy returns.

7. ENERGY RESTORED: For fellows who are still active in their careers --- my oncologist timed my treatments so that my "chemo crash" would hit over the weekends, so that I could keep up my full work schedule. So, in my case, I had my treatments late on Wednesday afternoons and then the "chemo crash" would often hit Saturday evening or Sunday. By Monday and Tuesday, I could feel my energy coming back. Other fellows starting chemo often ask me, "How bad is the 'CHEMO CRASH' after each treatment?" Here is the description that seems to resonate the best with most fellows ... I tell them that it feels like a MILD hangover ... the mild hangover you might have felt in college the morning after a fraternity party, back in the day. Most fellows then say, "Thanks for that description ... feels like a mild hangover, you say ... been there, done that ... thanks for the honest answer, my friend." With that being said, I felt fortunate that I was able to keep working, with just a couple of days of feeling somewhat drained. My work kept me focused --- gave me goals to meet --- kept me grounded. Living your life during chemo --- many of us have found out that it truly CAN be done !

8. NETWORK OF SUPPORT: Chemo can be a ROUGH ROAD sometimes ... I have described it to my other BATTLE BROTHERS as walking down a gravel road in your bare feet on those rougher days when you feel the "Chemo Crash" coming on in the days after a treatment. Yep, gravel road with a few ruts here and there along the way ... admittedly, there can be some rough days, from time-to-time. Overall, I was pleasantly surprised that I WAS able to go to work and keep up with my usual social events and activities. For any fellow beginning chemo treatments ... here's some brotherly advice ... you need some support along the way to stay motivated and encouraged. Best advice, you ask ? Here it is, quite simply ... stay in TOUCH with family, friends, neighbors, work colleagues, church members, and so forth. You NEED people's encouragement and support to get through the weeks and months of chemotherapy. I worked very hard to keep my head in the game, stay involved with friends and relatives, and to keep attending social events. Trying to keep up normal routines also helped me cope with everything going on around me. Chemo can be a ROCKY ROAD at times --- physically, emotionally, spiritually --- you have to keep forging ahead each day --- so do everything you can to keep busy mentally and physically. At the same time, realize that there are times when you are going to need to rest and relax and take it easy on yourself. I sometimes had to tell myself that I couldn't be "SUPERMAN" in a red cape all the time, and that I simply needed to become best friends with my living room couch on some evenings, stay home, and just relax. I've heard of some fellows whose bosses allow them to take a short "power nap" or rest break during the work day, realizing that they are going through chemo treatments. Kudos to those bosses, for their compassion and understanding !

9. FORGING AHEAD: I was fortunate, because I had a couple of CHEMO COMRADES who went through the experience at the same time that I did. We formed a powerful bond of brotherhood and kept each other going --- checking in with each other --- we felt like fellow soldiers, going onto the battlefield together, supporting each other through those weeks and months. Nothing better than a loyal comrade during chemo treatments, fellows ! We still feel a sense of loyalty to each other from that experience. My advice, fellows ... do whatever it takes to find a loyal friend or relative or neighbor or old classmate or work colleague whom you can talk with and confide with during chemotherapy. If nothing else, this forum can serve that function for you ! There's certainly a band of CHEMO COMRADES for you, right here on this forum, ready to support you, encourage you, and advise you. The loyalty and compassion found here on this website is beyond compare ! After I finished chemo treatments, I now have other friends who have been diagnosed and I have volunteered to be their CHEMO COACH, because I know how important it is for fellows in our situation to have a buddy that knows and understands what this is like. Do whatever it takes to reach out and find some connections ! Support --- we ALL need that !

10. STAYING ACTIVE: Well, what about EXERCISE and physical activity ? I found that keeping physically active, as much as possible, also helped me. You don't have to become an Olympic athlete, fellows --- just a walk around the neighborhood for 20 minutes or so can do a LOT to keep you going during the chemo treatments. I also visited the gym now and then. During the winter months, when snow and ice made walking outdoors treacherous, I walked in an indoor location instead. Do whatever YOU like to do --- walk the dog through the park, mow the yard, shoot some hoops, go fishing, run on the treadmill, pedal the exercise bike, work in your garden, lift a few weights, walk for a bit on the nature trail, stop by the gym for a bit --- whatever appeals to you. Maintain a healthy lifestyle and choose good foods to eat and remember to stay hydrated. After one of my treatments, I slacked off on the water consumption and didn't bounce back as well from that treatment, so I learned my lesson on the importance of staying hydrated after each treatment. Eat a healthy balance of foods, stay as active as you can, rest when you need to, and stay hydrated in a healthy way !

11. CAUTIONARY NOTE: My doctor warned me that a fever of 100 degrees or more is VERY dangerous for chemotherapy patients. Your immune system becomes compromised during your treatments, including your white blood cells --- so there is an increased risk of fevers or infections, of course. So, if you experience any sort of fever of 100 degrees or more, get to an emergency room as soon as possible. There's your cautionary lesson for today --- we have some fellows here who HAVE experienced a spike in fever and they went to the clinic IMMEDIATELY, as they should. A few helpful tips to share ... keep your hands washed before eating --- stay away from cold and flu germs, as much as possible. I teach in an elementary school, with hundreds of young students --- so, I used antibacterial soap throughout the day and used antibacterial cloths to disinfect the student desk tops each evening after school. Keep your kitchen and bathroom disinfected at home, as well, just as a precaution --- in the interest of avoiding colds, flu, strep throat, and fever. A fellow "chemo comrade" of mine gave me a new thermometer as a "gift of caring" when I started my first chemotherapy treatment. Sometimes, the clinic will also give you a courtesy thermometer to keep with you at home and work. DO take action if you feel a spike of fever, fellows --- it is NOT something to ignore.

12. ICE CHIPS STRATEGY: To preserve my taste buds, my oncologist always insisted that I chew on ice chips DURING the actual chemo infusions and my sense of taste remained completely intact during all my months of chemo treatments. PLEASE ask for some ice chips before your infusion starts, fellows. It can't hurt, and it sure might HELP ! True story --- I had a friend who FORGOT TO ASK for ice chips and he regretfully lost his sense of taste --- spicy Mexican food suddenly tasted "bland" to him, so he knew he had lost some of his sense of taste and he wished later that he had remembered the strategy of chewing on ice chips during the chemo infusions. During your months of chemo, take GENTLE care of your mouth, as patients are prone to mouth sores. Brush and floss GENTLY, and avoid harsh brands of mouthwash, which can irritate your mouth because of the alcohol content. For the first couple of nights after an infusion, I took an extra shower, because you can almost feel the chemo "sweating out of your pores" at night for the first couple of nights. If I woke up in the night, I drank some more water. As the weeks of chemo treatments went on, I noticed that my face looked a little "puffy" due to the steroids that they give you before each chemo infusion to help your body tolerate the chemo. This is sometimes nicknamed "moon face" --- not a big deal, fellows, but something to mention. I will also say that my cheeks got a lot smoother --- I shaved every morning, because that's my habit, but your whiskers might really thin out, too, while you are doing chemo treatments. This is normal. Some of my friends who have recently gone through chemo were actually thankful that they could SKIP shaving, at times !

13. NEUROPATHY PREVENTION: Also --- my oncologist used this strategy and I have heard that more and more oncologists are now following this idea --- I was a bit incredulous at first, but now it is becoming more mainstream in its implementation among many doctors who oversee chemotherapy treatments. Other fellows here have now followed the same protocol. Here's how it worked in my case ... during infusions, they had me take off my shoes and I kept my socks ON --- then they put ice bags at my feet and told me to keep my feet on the ice bags during the infusions to prevent neuropathy --- they also placed ice bags on a pillow on my lap and told me to rest my fingers on ice bags to prevent neuropathy in my fingertips, which I did. I did this for EVERY chemo infusion session and had NO problems with neuropathy at all. My oncologist swore by this "ice bag method" method and so did my chemo nurses. So --- be PROACTIVE in advance and ASK for ice chips to chew on during the infusion process, to prevent loss of taste buds --- but also ASK your doctor about possibly using ice packs for your hands and feet to help PREVENT neuropathy damage in your fingertips and toes. Other fellows here have since affirmed that their doctors implemented this same method and reported positive results. PLEASE ask your doctor about this strategy, fellows ! Can't hurt and certainly MIGHT HELP !

14. HOT FLASHES & NIGHT SWEATS: Commonly, fellows who are starting chemo treatments are ALSO still taking ADT hormone shots to help control their P.S.A. levels. If you are taking ADT hormone shots and then begin chemo treatments, this COMBINATION of treatments is called "chemo-hormonal therapy" by doctors. Many men who are taking ADT hormone shots experience hot flashes throughout the day and/or nights sweats during the night. Some simple strategies for coping with these sudden and unexpected fluctuations in temperature that I have discovered over time include using room fans or ceiling fans to keep yourself cool and comfortable ... keeping glasses of ice water nearby throughout the day and on your nightstand by your bed ... wearing a lightweight cotton athletic shirt, with a button-down Oxford-style shirt over that, so that you can roll up the sleeves and adjust the buttons as necessary ... use cool cotton sheets and pillowcases for your bed, and you can double-sack your pillows to protect the pillows if you experience night sweats ... and some fellows use ice "gel packs" to apply to their forehead when a hot flash occurs. These are just some simple suggestions that I have gleaned over time if hot flashes or night sweats occur.

15. CHEMO BRAIN PHENOMENON: During the months of chemo treatments, I did feel that it was a bit harder to concentrate for longer periods of time. I functioned well at work throughout the day, but suddenly didn't feel that I could focus as well on a long chapter book or a long movie at night. Some chemotherapy patients describe it as "brain fog" or "chemo brain" and I think there is something to that. So, I contented myself with reading the newspaper, watching the news, and shorter television shows. Many fellows going through chemo feel that it's just harder to concentrate, to some extent. A common phenomenon experienced by many fellows who have undergone chemo treatments ! So --- if you find your attention span drifting a bit or find yourself forgetting a few things, now and then ... you can blame it all on what we have nicknamed CHEMO BRAIN ...

Again, while going through a series of chemotherapy treatments ... do EVERYTHING you can to stay interested in your family, friends, your usual activities, hobbies, and the world around you. Chemo is a CHAPTER in your life story --- don't let it become the TITLE of your BOOK OF LIFE. Keep living life as you go through the treatments, to the fullest extent possible !

I hope my list has given you some "real life" insight into my experiences with chemotherapy. These are the things that I learned from my experiences while going through TAXOTERE chemotherapy infusion treatments. These are some things that the standard chemo brochure from the doctor's office won't necessarily mention !

In all honesty, I felt I navigated through the entire series of chemotherapy treatments with side effects that were relatively MILD and very TOLERABLE ! I hope the things I have shared give you true-life insight and some things to consider. Each fellow has their own personal experience with chemo treatments. As I see all the responses being added to this thread, I feel that this thread is becoming very informative, with experiences gathered from a wide range of fellows who are now members of THE CHEMO CLUB.

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Amandaking

Reply to TNCanuck

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19 Repliesoldest • newest

BigRich

a year ago

A very uplifting article, thank you.

Rich

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Bazzro

a year ago

Not on chemo yet but have saved this article. Thank you.

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Break60

a year ago

Thanks for your incisive contribution. It’s in my future no doubt. What about alcohol? Did you have to give it up? Did they recommend estradiol patches for hot flushes? What about your strength and endurance?

Thanks again!

Bob

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TNCanuckin reply to Break60

a year ago

I can only take credit for finding the wonderful post submitted by another very generous individual on another site ----- and sharing it here! My husband was advised to limit alcohol (one drink occasionally) during chemo. He did not use patches, but found that Effexor was pretty effective in relieving the worst of hot flashes. He exercised regularly and walked 10k steps EVERY day, but his endurance gradually decreased until about three weeks after the last infusion. He didn't miss work due to fatigue or loss of strength, but was far more inclined to be a couch potato when he got home and spend most of the weekend relaxing.

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Beermaker

a year ago

Excellent post, Mr. Canuck. I am saving it and giving a copy to my wife to read. I am not looking forward to getting chemo, but I expect that day to come before too long. Thanks so much for posting the article.

Marshall

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Magnus1964

a year ago

In 26 years I have avoided chemo. I hope never to go there. But I will keep your post just in case. Great post.

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TNCanuckin reply to Magnus1964

a year ago

Chemo is used to treat prostate cancer on a systemic basis only after it metastasizes to other parts of the body. Hopefully you will never have to worry about that!

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Magnus1964in reply to TNCanuck

a year ago

I have had a few doctors itching to give me chemo over the years. My response has always been, "treating a number (PSA) with taxotere is like pounding in a thumb tack with a sledge hammer, no thank you."

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TNCanuckin reply to Magnus1964

a year ago

Here's hoping it is never a "requirement" for you. My husband has said that given his (relatively) young age at time of diagnosis, he would gladly have done chemo to avoid metastasis, if his doctor had caught it that early. Unfortunately that wasn't the case.

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j-o-h-n

a year ago

Reply to TNCanuck:

Thank you and of course thank that "gentleman on another, similar site" for the chemo demo.

Good Luck and Good Health.

j-o-h-n Thursday 08/23/2018 5:46 PM EDT

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Ian2017

a year ago

I found hair loss, temporary disruption to taste, and fatigue to be relatively manageable compared to other side effects which followed in later stages and a few weeks after the end of chemo i.e. weight gain (gained about 15% of pre chemo weight), fluid retention leading to persistent swelling of feet, ankles, calves (thankfully not lymphedema), and problems with breathing (I think potentially an apnea effect from the swelling/ weight gain). I am now 4 months post-chemo and seem to be over most of these effects but important to keep an eye out for them.

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Mdarrrow41

a year ago

Thank you. Chemo is next for me. I found you information very helpful. Mike

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TNCanuckin reply to Mdarrrow41

a year ago

Glad it was helpful. Hoping that you experience minimal side effects with Taxotere when the time comes.

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Bedrich

a year ago

I just completed 5 doses of the taxotere, and I totally agree with it as described. I expected worse side effects than I have. My biggest problem is white blood cells, I have to use Zarzio after applying the taxotere. I wish all fighters the smallest side effects.

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dlestercarlson

a year ago

To produce my white blood cells faster after getting a Chemo treatment, my doctor gives me a Neulasta shot which is given through a timer device they hook on to your body. It works pretty good.

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RIckW

a year ago

Thank you for sharing! I start on Tuesday. I will have a better chemo experience thanks to your post!

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TNCanuckin reply to RIckW

10 months ago

You're very welcome, Rick. Will say a prayer for you tonight that your experience with chemo is as uneventful as my husband's was!

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RIckW

10 months ago

Thanks! The first day went well. A long way to go, but today was alright!

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TNCanuckin reply to RIckW

10 months ago

That's great! It will be a roller coaster, but just keep your eye on the light at the end of the tunnel. It'll pass more quickly than you probably think.

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AlanMeyer profile image
AlanMeyer in reply to Amandaking

Great post Amanda. Thank you for finding and posting this.

Alan

Schwah profile image
Schwah

They absolutely do! I used Cool Cap for all four of my sessions. I paid for a nurse to handle it and change the ice every half hour. I kept it on for 2 to 3 hours afterwards. I kept 90% of my hair. I honestly did not do it purely for ego. I did it because I couldn’t stand the thought of looking like a cancer patient. You know, where people come up to you And tilt their head a little bit and say “ ahhhhhh, I’m so sorry....”

Schwah

ken12491 profile image
ken12491 in reply to Schwah

Thanks a lot - what service did you use --- i wish the best for you....

Grumpyswife profile image
Grumpyswife

This is such good and reassuring information that I hope I can find it again when and if my husband gets chemo. Thanks all for sharing.

TNCanuck profile image
TNCanuck

Yes! My husband had no noticeable hair loss with six cycles of Taxotere. I'm happy to answer any questions if I can.

If you are interested in avoiding other side effects, search "taxotere side effects" for an extensive post I made recently.

ken12491 profile image
ken12491 in reply to TNCanuck

Thank you so much --- I'm thinking about using the company and their product:

arcticcoldcaps.com/

TNCanuck profile image
TNCanuck in reply to ken12491

This is the brand we used for my husband. They are a good, snug fit and we thought they would stay cool longer than some others. If I can help in any way or answer any questions, just ask!

TNCanuck profile image
TNCanuck

Amanda shared my previous post on side effects, so you'll see it. Good luck!

Rexwaterbury profile image
Rexwaterbury

Be wary of cold caps packed in dry ice. There is no reliable way to adequately verify that the caps are the correct temperature (-30 C). I ended up with second degree burns on my scalp with subsequent scabbing that took 2 months to resolve. When the scabs fell off, they took the hair with them. Time will tell if the hair follicles were destroyed. I now just use a migraine cool cap which is more tolerable and less damaging.

ken12491 profile image
ken12491 in reply to Rexwaterbury

Thanks - the company I was talking with was going to use dry ice --- now I m looking at this company:

arcticcoldcaps.com/

Any thought - who did you use?

TNCanuck profile image
TNCanuck in reply to ken12491

The infrared thermometer helped me keep track of the temps in the caps. There's a trick to working with the caps to get the temperature more consistent throughout --- some of it takes practice beforehand.

Currumpaw profile image
Currumpaw

Hey ken12491!

The 'ROCK" shaves his head as I have before he started.

You are not your hair and your hair doesn't make you who you are!

If it falls out don't bemoan it too much.

A neighbor had lung cancer and lost his hair while getting chemo. He asked me what I thought. I told him he looked distinguished but that I still thought that my head was better looking than his! We had a laugh and in a year his hair was back but I still have my good looking dome, proudly displayed in public everyday!

Currumpaw

Excellent summary!

MeliaQuinn profile image
MeliaQuinn

Hi,

Just wanted to chime in that my husband did not use the cold cap on his head and he did lose hair but we did do the ice on feet, hands and eyes. We used frozen peas for feet and hands and began about 15 minutes before chemo started and we did another 15 minutes after chemo ended. He did have to take breaks during the chemo as it got very cold. Also frozen strawberries worked well to suck on during chemo. We bought those eye gel pads from Amazon that you can freeze - those worked well. Otherwise, he found his eyes dry and sensitive to light. He really did not have any side effects with the Docetaxel except for some fatigue the first few days after each infusion. Best of luck to you and hope it goes as smoothly for you as it did my husband.

j-o-h-n profile image
j-o-h-n in reply to MeliaQuinn

Thanks for the strawberries idea.......

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 10/09/2019 6:30 PM DST

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