PSA update: Hey gang - PSA ticked up to... - Advanced Prostate...

Advanced Prostate Cancer

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PSA update

dockam profile image
14 Replies

Hey gang - PSA ticked up to 4.0 from 3.9 last month with T at 13 then and 12 now. The MSK PSADT Nomogram:

PSA DOUBLING TIME

Doubling Time -5.6 months

Slope Log (PSA) -0.1

Velocity -0.8 ng/mL/mo

So, I ain't gonna worry.

I did a hike up to The Notch on Mt Baldy to 8000ft from 6000ft (7 mile RT) with a friend from an LA PCa group - rewarded myself with a cold beer, Bratwurst and even fries.

I'm prepping for the last 110km of The Camino (The Way) Frances with my son and his wife this Sept. Gonna place Blue ribbons along it, as it will be PCa awareness month and my almost 5 year point when I had a PSA@ 555.2 on 10/13/2014.

My low T was really evident as I struggled to hike, having to catch breath quite a few times. Probs related to decreased RBCs and O2 transport.

ncbi.nlm.nih.gov/pmc/articl...

It's my prostate and I'll cry if I want to, Cry if I want to, cry if I want to

My best to y'all and Fight On

Randy

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dockam
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tom67inMA profile image
tom67inMA

Read your link as I'm about to head out to run the weekly 5K in Lowell. Looks like I'll have to go full speed again as this is yet another study specifically calling for "intense" exercise. Hope my red blood cells can keep up with my legs! :-)

NPfisherman profile image
NPfisherman

Looking good, brother....Fight on !!!!!

Fish

timotur profile image
timotur

Looks like a well-deserved beer! I'm with you on running with low RBC's, it's quite a challenge sometimes, can imagine what it's like at altitude. Good luck training for the TCF!

Schwah profile image
Schwah in reply totimotur

So explain what that means please. I work out weight training with a tough son of a bitch trainer. He gets mad that I have trouble catching my breath between stations. Is that my “RBCs”?

timotur profile image
timotur in reply toSchwah

Yes, ADT causes anemia, lowering the number of RBC’s, which carry hemoglobin that binds the oxygen for transport.

ncbi.nlm.nih.gov/pmc/articl...

dockam profile image
dockam in reply toSchwah

Yes, red blood cell count may be lowered during ADT: onlinelibrary.wiley.com/doi...

But, also muscle wasting/fat gain:

ncbi.nlm.nih.gov/pubmed/241...

ncbi.nlm.nih.gov/pmc/articl...

But, without ADT, in most cases, the PCa could grow unchecked. Cardio/weights will help offset a lot of the ADT side effects, even tone down depression and maybe we get to be around longer.

My best to y'all. About to head out for a 4 mile walk before my dental patients later. Yes, I'm on the West Coast :-)

Randy

jfoesq profile image
jfoesq

Way to go, Randy. Keep on truckin and hikin. Would you mind telling us what your original dx was and what treatment you are on and have been on?

dockam profile image
dockam in reply tojfoesq

Good morning, and thanks for the props.

Dx'd in 01/2015, tho I had the PSA@ 555.2 and then a 633 - 10 days later in 2014. Found a Uro (nice Chinese lady with small fingers!) - started Cipro and Flomax. She then pushed me to 2015 to then pay my deductible. Dx at 840 PSA started ADT(Lupron/Casodex), PSA dropped to 497, then the 1st of 15 Taxotere chemos. Stopped ADT after 30 months for a "holiday" had to restart as it went from a nadir at 0.1 in 2017 to 10.2 in 12/18. So, just trying to keep the terrorist PCa at bay by depriving the T, I also do IF Intermittent Fasting(16 hrs/day), on Metformin/Lipitor and other supplements - many used by my esteemed brothers on this forum.

If you Google "Randall Kam Prostate Cancer" - there are a few blogs and articles out there. Here is one: blog.athlinks.com/2017/05/1...

You may also scroll thru my previous posts here, just for sh*ts/giggles :-)

Btw, my daughter (5th of 5 kids) went to U of Chicago law and now is in NYC with a firm. I'll be out in Nov for the NYC marathon with team zero.

My best to you on your journey

Randy

j-o-h-n profile image
j-o-h-n

Dockam and Sockam....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 07/24/2019 6:45 PM DST

dockam profile image
dockam in reply toj-o-h-n

Rockam?

j-o-h-n profile image
j-o-h-n in reply todockam

Knockam?

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 07/24/2019 6:57 PM DST

dockam profile image
dockam in reply toj-o-h-n

She's a Mockam "not authentic or real, but without the intention to deceive"

No comment on my "It's my prostate and I'll cry if I want to, Cry if I want to, cry if I want to" ? I thought you'd like it :-)

j-o-h-n profile image
j-o-h-n in reply todockam

Ok then no reason to Lockam

Sorry but I meant to but I got distracted ......

youtube.com/watch?v=bbOrjHB...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 07/25/2019 7:31 PM DST

pete0550 profile image
pete0550

Hi, all the best for your next walk. I was diagnosed in Nov. 2014 so coming up to my 5 yr anniversary. In October 16, I also had a hike up Baldy, boy was it tough, low T and lack of oxygen made it hard work but really worth the effort. We can't go that high here in the UK! Wonderful views in all directions. I have a friend in Highland who recommended Baldy to me. I must get over again and get a bit higher next time. Take care, Pete.

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