Results of psma scan at UCLA surgery ... - Advanced Prostate...

Advanced Prostate Cancer

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Results of psma scan at UCLA surgery or radiation?

Dachshundlove profile image
13 Replies

psma scan confirmed cancer in prostate, along with 4 to 5 pelvic lymph nodes.

Up until the results of this scan today, we were told surgery was not an option.

We are being advised by RO and Dr at UCLA to do radiation to prostate and nodes. Brachy boost is not an option because prostate is 130g.

We now appear to be suitable for surgery too, although it won’t suffice on its on. Additional radiation and adt will be required.

So far 2 years of adt proposed as adjuvant therapy to radiation and or surgery.

Anybody who has an opinion about this is welcome to reply. You are all wonderful and I feel grateful to have this place to come for information and support.

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Dachshundlove profile image
Dachshundlove
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13 Replies
Tall_Allen profile image
Tall_Allen

Did someone tell you that HDR brachy boost is not an option? Especially if you start with a few months of ADT. Who did you talk to?

My opinion is that it is a really bad idea to go into surgery knowing you will do radiation too- the worst of both worlds.

Dachshundlove profile image
Dachshundlove in reply toTall_Allen

Thank you Tall_Allen

We saw Dr.Rettig. We have not seen Chris King, yet. The RO who was available yesterday said due to prostate size, we had to do external type radiation and a long course, 9 weeks.

It sounds like his particular situation is difficult to treat with radiation.

Tall_Allen profile image
Tall_Allen in reply toDachshundlove

Dr Kishan said that?

Dachshundlove profile image
Dachshundlove in reply toTall_Allen

Yes, that is what he said. Prostate too big and Brachy would carry additional risk and not treat the problem.

It seems that due to the enlarged prostate we are in a less than ideal treatment scenario. Not great news. It also seems like maybe in our case (prostate extra large) surgery is more likely to successfully deal with primary tumors.

We now officially have more questions than answers.

Tall_Allen profile image
Tall_Allen in reply toDachshundlove

He is right that side effects are worse with a larger prostate. The solution is to shrink the prostate. In the ASCENDE-RT trial, they shrunk everyone's prostate with 6 months of hormone therapy before brachy boost therapy. Ask Kishan if he would consider brachy boost with 6 months of "neoadjuvant ADT"?

Schwah profile image
Schwah

Who are your drs at Ucla ?

Dachshundlove profile image
Dachshundlove in reply toSchwah

Dr Rettig. And Dr Kushan (ro)

Schwah profile image
Schwah in reply toDachshundlove

I do not know Rettig but kishan is awesome. Tall Allen our resident guru on all things PC also speaks very highly of kishan. Really nice guy too. He’s returned emails from me late at night.

Schwah

timotur profile image
timotur

This sounds correct about BBT. Usually the cutoff size of the prostate is about 60 ml because a large prostate often overlaps with the pubic arch, which interferes with needle placement. Also, radiation coverage may be an issue with a large prostate, requiring very long dwell times I just had HDR-BT there-- my prostate was 30ml and they placed 19 catheters.

Has SBRT been mentioned with Dr King's group?

Dachshundlove profile image
Dachshundlove in reply totimotur

We have not seen Dr Kings group yet, but I’m making an appointment today. Thank you!

j-o-h-n profile image
j-o-h-n

All the best...

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 06/28/2019 3:47 PM DST

monte1111 profile image
monte1111

Quote of the day. "We now officially have more questions than answers." Welcome to the maze. Hope you find your way through. Enjoy.

in reply tomonte1111

😂

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