Sever pain

[Kobina]

Is anyone else experiencing sever bone pain? My husband has went off of everything . It has been an awful journey, now he is experencing soooo much bone pain hes on Hospice and is on Oxycodone, Fentenyl, and Morphine and the pain is still real bad. Has bone mets everywhere also to the liver. Went to the bathroom this morning with my help and ended up on the floor because i was not stong enough to hold him up when he had a pain attack. thank god my son is living with us right now. Is anyone else experencing this? has not eaten in this is day 3. I think he thinks this is the best way out.

[tom67inMA]

So sorry to hear! My father in law died of cancer at home in 2014. He had definitely reached the point where he was simply tired of living. If I recall correctly, hospice set up a hospital style bed in his living room (bedroom too small) with a portable commode next to the bed. Only had to be helped a very short distance when he needed to go.

As painful as that was to watch, it was his time and I'm very happy my wife was able to care for him so he could spend his final days at home.

I don't have any advice on the pain, just want you to know you have my deepest sympathies and admiration.

[j-o-h-n in reply to tom67inMA]

For your wife and for you...⭐⭐⭐⭐⭐

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 05/20/2019 6:36 PM DST

[Hidden in reply to tom67inMA]

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[Tall_Allen]

I'm so sorry to hear this. He may get some pain relief by resuming hormone therapy.

[HOPEFULSPOUSE]

So very sorry for what you are going through. Sending prayers and positive energy your way.

If you can get marijuana that will definitely help. CBD helps too but probably not as much as the full plant.

[Kobina]

Appreciate all you respondes

[tallguy2]

I'm very sorry to hear of your husband's terrible pain. Be sure and report this clearly to your hospice nurse. There's no need to withhold the morphine. He's suffered enough.

[JavaMan]

Prayers for your husband and you.

[Blair77]

Are you located in a right to die state?

[TNCanuck]

I'm so sorry, Kobina. Know that you're in many prayers. I will pray specifically for pain relief and peace for you both.

[Chiquis]

I can only imagine what you are going through seeing your husband in such a pain. I will have you both and your son in my prayers. You are not alone. A hug to you.🙏💛

[dmt1121]

Many have had good advice on pain management here. The hospice nurse should be on top of this and I would suggest having a long conversation with them about how this should be handled. Prostate cancer may indeed require supplemental ADT and/or bone strengthening meds to help. You may wnat to have a consult with his MO also.

We are all saddened by your story, as we are all too familiar with it. Take care of yourselves too. You need to keep your own health up and take breaks . I hope and pray that your husband's pain is relieved very soon and he can find some calm in the storm.

[beatPC]

It is heartbreaking to read your story.

[beatPC in reply to beatPC]

Hope he can have the best available treatment and support given the circumstances. I hope you find the strength you need to cope with this situation.

[cesces]

"has not eaten in this is day 3. I think he thinks this is the best way out."

That's sort of my plan when I reach that stage.

There are reasons to avoid cannabis (it may invigorate the growth of prostate cancer cells as a result of their extra cannabinoid receptors). But at this stage Cannabis is good for pain relief.

[Godschild62 in reply to cesces]

When you're at that stage, it's not a choice not to eat, it's normal when you've reached the end stage of life's The body is shutting down and doesn't need that much food. When you're in that amount of pain, the last thing you want to do is eat. It's actually one of the signs of dying.

[Hidden in reply to Godschild62]

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[Jim_S_Boston]

So sorry to hear about your Dad's pain. I am also in hospice care, focusing on pain control. It looks like your pain control team has access to an arsenal of pain drugs.

I recently had methadone added to the mix of pain control drugs and found it quite effective for baseline pain, with morphine reserved for higher breakthrough pains. The advantage of methadone, for me, is that methadone provides strong pain relief without suppressing cognition and mental alertness the way morphine does.

The downside of methadone is that it may take several days to establish a blood concentration for optimal pain control.

Something to discuss with your Dad's hospice pain control team.

Best wishes, Jim in Boston

[monte1111 in reply to Jim_S_Boston]

Best wishes to you Jim. Monte

[JuanVV]

Sorry to hear about this, my husband also has bone pain, so I can relate to your despair. A big hug to you.

[Godschild62]

It pains me to read this post. I'm so sorry. I would ask that they up his morphine or dilauted to the point he's almost in a coma. Sounds like now that he's stopped eating, he in his last days. Comfort is the most important thing right now.

Praying for your family. 💕

[larry_dammit]

Oh my, sounds like a terrible way to go. Have you thought about hospice care. God bless you both and give you strength to carry on 🙏🙏🙏😜

[Zetabow]

My heart goes out to you guys. I'm only 7 months in from diagnosis, just finished Chemo 2 weeks ago and still not able to get the pain under control. I found a CBD source and hope this will help me. It's a little concerning for me that only a limited improvement (40%) in pain level.

[HOPEFULSPOUSE in reply to Zetabow]

RE: CBD - the pharmacist at the medical marijuana dispensary told us that CBD/THC is cumulative and can take as much as 8 weeks for some to feel the full effects of pain relief.

[DSEE]

I can confirm the bone pain is very difficult.

God bless you and your family.

[2dee]

Strongly recommend 100+ mg CBD drops daily, dosed every 6 hrs or less. About 30mg THC daily and likely more in his case.

Will reduce some pain and help sleep in addition to the opiates. Ask doc, usually OK with addition. Anecdotally it's helped myself and 3 close friends quite a bit.

2Dee

[JuanVV in reply to 2dee]

Hi 2dee,

Just wondered how much CBD one should start with? Does it have side effects? My husband has secondary bone cancer with pain and what they've give him so far doesn't work. Thanks

[2dee in reply to JuanVV]

I'm NOT a Doc, NOT an expert. Just personal experience. Do your research.

I suggest at least 100mg per day to maybe 200mg per day of CBD. Need enough to reduce severity of pain and not more. Just costs more.

Get full spectrum CBD Oil from commercial hemp most anywhere and on line.

Strength of CBD is variable by manufacturer offerings. About $60 PER GRAM is common regardless of how packaged or treated.

Dose is all about the math. A 30ml, (1 oz), bottle with say 1,000mg CBD(1 gram).

A dropper dose is actually figured on 1/2 dropper full. Confused yet?

A 30ml bottle contains about 600 drops. Each drop contains 1/600th of the bottle CBD strength.

Start immediately, use under tongue, every 6 hours, dose to meet your DAILY amount. Droppers or drops on 1/2 an oyster cracker under tongue depending on the strength you bought.

Don't stop any other pain med at first till this works for you, then try to reduce the opiates of you can. I'm down to 3 pills a day from 8 that were not fully working. I found that some pain is affected with each method, none resolved all and still remain lucid. So a combination is best.

AFAIK it is safe with any other med. Ask your MO. They can't prescribe but most won't judge your ability to treat YOUR body at this stage.

2Dee

[JuanVV in reply to 2dee]

Thanks really appreciate your reply.

[Survivor1965]

I’m so sorry. It hurts to read this.

[Hidden]

This is so hard on everyone. Holding space for one who is dying and trying to keep them at home where they might die with dignity and peace is one of the hardest things we will do. Your hospice team should be able to help. We are in the beginning stages of a similar experience. You are not alone, and at the same time may feel very alone. A hospital bed, in-home health care aide to assist with toileting and hygiene, stronger drugs and anyone close to you that can give you a break to step away for a bit might help. Love and peace to you and your family. My heart breaks for you and for all walking this path.

[j-o-h-n]

Remember God is on his and your side. Bless you both...

j-o-h-n Monday 05/20/2019 6:40 PM DST

[Jamtu27]

I' m very sorry to hear of your father' s situation and I pray for strength and peace.

[monte1111]

I am just so, so sorry to hear this. Home hospice is fine, and we would all wish to be at home in our comfortable bed. Having seen what my wife's brother went through when their mother was on home hospice, if hubby is willing, you may want to consider out of home hospice. He wouldn't have to get up to go to the bathroom. They can manage the pain on the spot. I have instructed my relatives not to attempt home hospice. Whatever you choose, their is no guilt. Others have a different opinion. May God bless.

[Hidden in reply to monte1111]

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[Hidden]

Thank god that your son is home to help.. Many prayers🙏

[Longterm101]

My heart goes out to you and your family

We hold you tight in our prayers

[Tub111]

My heart breaks for you. I can’t even offer advice as this is still too close to my heart. Prayers to you and your hubby...please ask for higher dosages of pain meds....for his sake. 🙏

Love to you

Sheri ❤️