Slight Psa increase: My husband had his... - Advanced Prostate...

Advanced Prostate Cancer

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Slight Psa increase

Sailfish profile image
25 Replies

My husband had his bloods, zometa and degarelix injection today, while we were with the macmillan nurse she gave my husband his January psa result, it was slightly raised from 0.13 to 0.16, was told it was nothing to worry about, but that's easier said than done now we have to wait till next month

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Sailfish profile image
Sailfish
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25 Replies
spinosa profile image
spinosa

I've been convinced by my oncologist that the number in the hundredths can vary daily, so don't worry about it.

Sailfish profile image
Sailfish in reply tospinosa

Thank you the macmillan nurse said that it was nothing to worry about, my husband is fine about it. It's me that's worrying

NPfisherman profile image
NPfisherman

His initial PSA was 2100 right ?? It could be lab error....try not to worry....a lot better than the start.... My wife does the same, and we are new into this--3 months...It's hard--they don't call the PSA --the prostate specific anxiety test for no reason... we all sweat it...Good luck....

Fish

Sailfish profile image
Sailfish in reply toNPfisherman

Yes his psa at diagnosis was 2100, thank you for your reply. Next month we see the oncologist and he had another psa today so hopefully it's all OK

NPfisherman profile image
NPfisherman in reply toSailfish

At this low level of PSA, the cancer activity would be greatly reduced-essentially non-existent...breathe... try some deep breathing and meditation--it helps me-- and may help you

All the best,

Fish

whatsinaname profile image
whatsinaname in reply toNPfisherman

Yep, deep breathing is great. Meditation is even better. Yoga is the best but difficult to master.

Thanks, Fish.

Tall_Allen profile image
Tall_Allen

It is pointless to be using an ultrasensitive test at this stage. Switch to a conventional PSA test that is accurate to one decimal point. The extra anxiety can be detrimental to both of you.

Sailfish profile image
Sailfish in reply toTall_Allen

Thank you for replying, they have also done another psa test today when they do his bloods, we will find out those results next month when my husband has his 3 month review with his oncologist, we are also going to ask about the celebrex you mentioned in a previous post, thank you for the information.

LuJuice profile image
LuJuice in reply toTall_Allen

Tall Allen- I recently had Robotic Surgery to remove my prostate. It’s been 2 months. I just got my first PSA after surgery and it’s 0.02 I am concern about that. I was thinking being in the safe side would be 0.01 Can you give me some insight to this reading. Thank you!

Tall_Allen profile image
Tall_Allen in reply toLuJuice

What did your pathology report say?

LuJuice profile image
LuJuice in reply toTall_Allen

It stated it did not spread, lymph nodes are good.

Tall_Allen profile image
Tall_Allen in reply toLuJuice

What I'm asking is:

1. what was the pathology Gleason score?

2. Any positive margins? if so, how big? Gleason score at the margin?

3. Any extracapsular extension or seminal vesicle invasion?

LuJuice profile image
LuJuice in reply toTall_Allen

No extra cápsulas extensión, no seminal vesicles invasion, Gleason score 7, examined margins free of neoplasm.

Tall_Allen profile image
Tall_Allen in reply toLuJuice

Thanks, that helps me narrow down my answer. So, it's been observed that PSA below 0.03, it is not correlated with eventual biochemical recurrence. If it goes (1) over 0.03 and (2) there is a consistent pattern, then that would be a good time to see a radiation oncologist:

pcnrv.blogspot.com/2016/08/...

In fact, as long as the PSA is below 0.03, even if there were adverse pathology, there is no immediate risk.

LuJuice profile image
LuJuice in reply toTall_Allen

Thank you Tall Allen. Your knowledge and insight has helped me. I will meet with my doc this week.

j-o-h-n profile image
j-o-h-n

youtube.com/watch?v=4Ovkoe7...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 02/05/2019 6:52 PM EST

NPfisherman profile image
NPfisherman in reply toj-o-h-n

I like Marley too, man... reminds me of my youth...let's roll up a big spliff....LOL... great song....we should listen to it everyday...

whatsinaname profile image
whatsinaname in reply toj-o-h-n

Fantastic, j-o-h-n :-) Makes me a trifle nostalgic :-)

Litlerny profile image
Litlerny

Your husband’s nurse is right. Don’t sweat it. I’m going through the same. For 3 1/2 years my PSA was undetectable. 3 months ago it went up to 0.12. Today it was 0.15, which is still really, really low. My oncologist at the Mayo Clinic in Jacksonville, FL was actually very happy that it is staying under such good control, and recommended no changes to my current ADT therapy (also had 6 cycles of chemo/docetaxel last year). He will keep monitoring it on a 3 month cycle. Basically told me not to worry until the PSA start making big jumps. Then we will reevaluate my therapy. Likely going to add either standing or Zytiga at that time. I know...easier said than done, but try not to obsess about it and stay positive! 😎

whatsinaname profile image
whatsinaname in reply toLitlerny

Excellent reply, Litlerny. Kudos !!

Sailfish profile image
Sailfish in reply toLitlerny

Thank you so much for your reply, so many people have responded and given great advice, I will definitely try not to panic so much.

kenner profile image
kenner

Please don't stress. Your husband has a long life ahead of him. I'm 0.27 after 18 years RP...no intervention yet...I'm feeling fine. I am living with cancer & I have accepted that..quality of life is so important. I'll deal with this when PC is has displayed itself. Take care & embrace life.

Sailfish profile image
Sailfish in reply tokenner

Thank you so much for your reply, I will try not to panic so much, there also going to do a full review, he has a lot of back and leg pain which he has had since diagnosis (Dec 2017) and all he has received is ametriplyne and morphine. There going to the pain management team to look at other options. If the pain wasn't so bad and you can tell in his face I probably wouldn't keep asking him every 5 minutes if he's OK

kenner profile image
kenner in reply toSailfish

I'm sorry that your husband is having pain issues.Is he eligible for an epidural or Nerve block?on a scale of 1 to 10 how is he?

Sailfish profile image
Sailfish in reply tokenner

On a scale of 1 to 10 when first diagnosed was 10 now 9 has got a little easier but not much, tends to be on a night more. Like his foot is trapped in a vice and someone is ripping his skin off, (his words) the nurse says its pain management he needs as the morphine is for the cancer pain not nerve pain, the nurse was getting in touch with them Monday (04/02/19) so it shouldn't be to long there very good.

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