We visited the oncologist today. She said some things that aren’t so clear to me and I am hoping you guys and gals might be able to tell me plainly (and straight up) what her comments mean.
I will try first to give a the history of my husbands diagnosis and treatment but will preface this by saying that there is not a ton of info to provide.
Dx Oct 18/2018
MRI showed stage 4 with bone mets to spine at T7, T9, and T11, and ribs at T6 and T9 on right side. Collapsed endplate at C7. Significant prostate irregularity and extended into the bladder base. No iliac or inguinal adenopathy seen. Seminal vesicles engorged. Lysis in left hip with destructive lesion of 15 mm. Sclerosis inposterior ileum and lysis on roof of left hip superiorly. Central sclerosis of sacrum at L2 level and at iliac side of left SI joint.
No biopsy required for diagnosis to be confirmed.
Treatment - Firmagon on Oct 19/2018
Bone scan - Nov 5/2018
Showed extensive mets from head to knees. Every single rib. Too many mets to count. More extensive than CT showed. Not much more detail.
Blood work- Nov 8/2018
PSA down to 275
HT switched to Eligard 3 month depot - Nov 21/2018
Blood work - Dec 3/2018
PSA down to 244
Zytiga treatment started - Dec 11/2018
Blood work - Dec 20/2018
PSA down to 226
Oncologist visit today - Jan 3/2018
Blood drawn but results not yet provided.
Referral to be made for radiation to help with pain in mid back and sacrum. Over holidays definitely more pain.
Painful urination - urine sample taken.
Instructed to continue on plan and see where PSA is after 3 months on Zytiga. Won’t be able to see where the PSA settles until then???? Tried to understand implications but hubby kept interrupting me. I think he may have been scared.
Pharmacist at hospital called later and said liver numbers up. Discontinue Zytiga for a week then have blood drawn again. Decide then whether or not to reinstate Zytiga. WHAT DOES THIS MEAN? What liver number? What are the implications of it being high?