I was diagnosed with Gleason 9 advanced prostate cancer on August 28, 2018. I had it ripped out by the roots on October 5, 2018, no nerve sparing surgery. I was stage IV with Mets to the lymph nodes (4 of 12 positive) I took multiple blood clots to my lungs 10 days post OP and pneumonia 10 days after that. Got my first Lupron shot while in for the blood clots, that was fun. PSA was 6 at surgery, dropped to 1.0 3 weeks post OP, and undetectable at 7 weeks. I'm approaching 3 months post OP and doing well. My continence is just about back and I am back to work. I had a PET scan done last week and all clear. Now looking for the best next step for surviving this nightmare. I talked to 2 radiation oncologist. One just wanted to start cooking me and get the insurance rolling and the other (now my doc) said I may not benefit from radiation in the long term and I should wait about 5 to 6 months for healing to be completed. I'm going to MD Anderson in Houston next month for a complete evaluation and comprehensive treatment plan. My medical and radiation oncologist will work with the doctors at MD if I choose their plan. As of now things are going well. I am responding well to the Lupron and all is quite. I overhauled my diet by going to plant based, no dairy, alcohol, red meat, and roll back on sugar as much as possible. I lost 30 lbs in 2 months. It just melted off.
My feeling about all of this is a few lymph nodes caught some cancer cells that got out and I believe it stayed in the general area. I do have positive margins at the bladder neck and where everything was reattached. I believe the margins and the pelvic area should be hit with radiation as a final cleanup. Hopefully it will not startup anywhere else. I'm 57 and have a lot of living still to do.
With love and constant vigilance you can live and thrive. My dad was diagnosed with a Gleason 8 at 59. He had a similar procedure as you described. He did radiation 4 years later. He turns 77 in a few days and is still working with my brother. Look at some of the detail from this group. They are fantastic!
You and your families love are factors in his success... Happy new year..