Happy anniversary - trick or treat - Advanced Prostate...

Advanced Prostate Cancer

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Happy anniversary - trick or treat

Canoehead
Canoehead

A year ago on Halloween I was working late at my office when I saw the MyCharts posting of my pelvic MRI report from the test taken a day previously. I had a 36 PSA, and the Urologist seemed concerned after the DRE, but I did not expect what I read, and I got this before a doctor had the chance to explain: “large mass”. and “ metasteses” jumped out at me. Trick or treat; i had lost the Gleason lottery. I was F’ed.

But life goes on. And a very smart, young, underemployed Urologist told me the next day, “you can live a long time. Get informed and understand that what they call the standard of care in prostate cancer is really the wild, wild West right now.”

There was hope... and I started reading, a lot of reading, and I even found this site in the process. Not discouraged by the conventional belief that my cancer was systemic and incurable, I looked for the most aggressive approaches possible. So I’ve had Docetaxel, Zytiga and 45 days of radiation, all in the hope that my cancer was oligometastatic (a fancy way of saying it has spread but not real far), and that it might be cured. I had the support and guidance of some very sharp doctors at U of Chicago, who pay attention to all the latest stuff including what they are doing at Mayo, MD Anderson and Sloan Kettering, and who, I believe, want to be on the cutting edge of curing this monster. No one has made me any promises, but my scans are clean, my PSA has been below detectable for 6 months, and the guarded plan is to suspend/terminate ADT by April of next year if PSA remains undetectable.

Back to the reading I did. I also learned a lot about nutrition, supplementation and the still controversial metabolic theory of cancer. I’m not a scientist, just an old country lawyer, but what I have gotten good at is weighing evidence. I fully believe that cancer is caused by a combination of environmental, nutritional and genetic factors. Think of it as a slot machine where you need to get the three factors in a line across. I opted for the poison approach to killing the obvious malignancy, chemo and radiation,,where the unstated goal is to kill the disease shortly before you kill the patient. I did so knowing there would be side effects, such as the apparently permanent numbness in my fingertips and such as the highly increased risk of deadly bladder cancer.

So far, so good. Next question is what to do while those “systemic” cancer cells are laying low. Now nutrition and supplementation become important. I think Nalakrats on this site, a rare man of God and science, is looking at these issues, and I am waiting with baited breath. I also think Tall Allen is a brilliant contributor, but answering the wrong question. Metformin, curcumin and other supplements discussed here may not cure advanced prostate cancer, but they certainly are a component in the prevention of same, as indicated not only by Allen’s’s mice (who never die of cancer) but also by the meta data and population studies that demonstrate undeniable trends. The metabolic theory advocates unfortunately overstate their case, and the Ketonic diet advocates do likewise, but there is validity in their end goals, So, for me, low carbs, low sugar, no processed food, minimal red meat, lots of water, sunshine and exercise, and supplementation with anti inflammatories is my best chance to keep the monster asleep. With that approach I’m thinking there is room to go out for craft beer with my friends once a week.

God bless you all, because without that none of the rest of this matters. And good health, my brothers.

8 Replies

Thanks for the High Marks---yes more will be coming--every time I want to condense new findings into simpler language, all of a sudden more stuff comes across my desk--there is a rush of work going on as to your desire to keep the sleeping dogs sleeping.

Nalakrats

Agree and agree more. Love the slot machine analogy. It is my belief also.

Well said!

Hidden
Hidden

Ol country lawyers know some stuff. Many years of happiness and health.

Well thanks for your Halloween treat...

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 10/29/2018 9:50 PM EDT

Craft beer once a week is a necessity to good QOL. Go for it.

I couldn't agree more with your take on this. My last shot of Lupron was in February and at the beginning of this run I was told it was never going to be possible. Stay strong, stubborn and keep daring to defy.

Ron

Thank you for sharing your journey! New on this site. My husband was dx in July 2017, 48 years old. What we thought was a torn rotator cuff a month later after much testing we find out is pc. Mets to bones from shoulder to pelvis and lymph nodes Psa of 489. They initially started him on Carboplatin and Etoposide but after getting two more opinion we changed him to Docetaxel. My husband was a Chicago Firefighter for 18 years and it has been determined that the job caused his cancer.

We too are being seen at University of Chicago. We are seeing Dr Stadler. I wonder who you are seeing there and how has your experience been there? We only get our Lupron shots there. Chemo was done at Advocate until we were able to switch insurance.

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