Warmly I greet you all. I am new to this site and wife of PC husband. I applaud all of you for your strength and determination to BEAT the HELL out of this CRAP! UGH!
Ok, Im done shouting for the time being. I am Sicilian so that happens from time to time Just ask my husband...
Does anyone have experience with PROTON therapy to treat recurrent PC (post RP and no radiation yet) PSA 1.0
My husband has recurrent PC, and now has developed an additional cancer (Head and Neck unrelated to the PC). But back the PC, he had a radical prostatectomy 4 years back and it took only 6 months for it to return. He has chosen, thus far, to go all natural treatments-no radiation, no chemo, no additional surgeries and no clinical trials. (prior to RP = PSA 7.4 and Gleason 9) (post 0 spa for 6 months) (now, 4 years later, crept up starting 6months after RP with a DT of I think 4 months back to 1.0 which is where it is now)
All of the doctors think he is nuts. No surprise there. They cant make any money if he isn't their patient, right? Thats his thinking... They are all just out to make money on the misfortunes of patients. I agree sort of but I draw the line when it comes to danger zone stuff like this.
His natural treatment consists of Spiritual Advisor in Sedona that is channeling his cure through God (I know how this sounds but it really helps spiritually to know that God is in control of the outcome of this whole mess - for us anyway), cannabis oil (60 day treatment daily), raw food (mostly) diet, a little wine each night and a TON of supplements prescribed through his Naturopath.
Is it working?
We don't know. (He will test PSA and get another PET scan mid July to see). What we do know is that he has enjoyed the last 4 years of his life without invasion of radiation, chemicals, hormones, etc. All of which change your body forever to some degree.
Now, Im not discounting IN ANY WAY AT ALL these all can be healing, curative paths for some people. I argued for years for him to do conventional. And at some point he may chose to do Proton as it has fewer side effects (so they say) than traditional radiation. He has the throat cancer to contend with which-right now is stage 1 even though it is tumor on base of tongue with 1 lymph node involvement (possibly 1 parodied gland as well=saliva gland). The docs found this cancer when they were doing an annual PET scan to check for metastases for the PC. None was seen but a nodule appeared in the prostate bed.
He did not have salvage radiation following the surgery. It was either recommended and he refused or it was thought not needed becuase the surgeon was confident enough (??) that he got it all which is NUTS to me... ALL doctors I have talked to and read about say salvage rad following a RP is KEY to ensuring NO RECURRENCE. Anyway, I digress. I only know what I know and I think it was the doc said he didnt need it.
My husband has so far, chosen quality over quantity. Its very hard to understand-for me- and I'm sure harder (especially) to choose for him. But what I have learned from the years I spent fighting with him about what to do is ITS NOT MY CHOICE.. Its his. His Body=His Rules.
So we have enjoyed the last two years more than the previous two because I haven't been trying to control the outcome as much. I help. I research. I try to be the best possible advocate for him as I can be but I do not decide for him. I only support his decisions as he makes them.
Any advice as to the Proton successes and or side effects? Anyone doing C Oil or have tried it as a treatment option?
Thanks all! Very very great to be part of this wonderful supportive community. Seriously hard to find out there.