My name is Garaway i live in Cardiff, wales, uk. I was diagnosed with prostate cancer in 2010 my Gleason score was 8 and my PSA level was 14 it is now 2018 my PSA level is now untraceable my medication is a 3 monthly injection of prostap. Plus daily intake of enzalutamide. I have been on other medications but they have failed my PSA started to rise and then I've tried a new drug which put it back down again at the moment enzalutamide appears to be the best one so far for me. I've been told by my oncologist if this fails again I will probably be having to have chemotherapy which I to be honest I'm afraid of, to me I feel chemotherapy is almost end of game I may be wrong but that's just because maybe my knowledge of my illness isn't as it should be.
I probably don't do enough to help myself my diet isn't great I'm overweight and it's only recently now I've started to re- check on what I should be doing with my life and started losing weight getting up early doing things and and trying to enjoy the life I have left, which I hope is a long time I do hang on to the hope there are new drugs on the horizon that will keep me going. But I suppose there's a lot in the in saying live life for the day and tomorrow will look after itself.
Thank you
Me garaway
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There are new drugs in the pathway. The good news is your psa is undetectable, I hope you get a long run on xtandi. Chemo was something I feared the whole time, the dreaded chemo, but when I did it for 12 cycles It was not that bad, and I breezed through it. I wish you the best, stay positive, and upbeat, never give in.
Dan
I think you are doing well. However I also think that it would help to get control of your weight, sugar levels and in general go for heart healthy. Dying of a heart attack may count as a cancer cure, but it is not the real goal.
I could say lots of things, but I am not sure of any of them, except exercise has got to be a good bet, if you want to play the odds.
Good morning Garaway. It's great that you've recognised some of the factors that are going to help you renew your life. Diet is important as this cancer thrives on glucose so chopping out sugar would for me be a first step. Your PSA is great but as others agree you setting yourself up for future non prostate problems. We're all brothers & sisters on here I have been helped over the past few years. I don't expect Wales to beat England this weekend but even if they do I will continue to find ways to offer help. Regards
I have to step in David 😂 you must have seen our amazing performance on Saturday! I can’t wait to watch the game it’s going to be outstanding, good luck to England it’s going to be a nail biter! If your close enough to hear the rousing Welsh voices singing through Twickenham I could well be one of them. 👍
Have you ever seen a more supine Scotland? Let's wait and see what Ireland do to them. I'm close enough to our beautiful stadium for them to hear me lead the victory charge. All I ever hope for is a beautiful, close game. All the best Apollo.
Interesting that Captain Jones spent more time correcting the ref than ball playing. Eddie Jones said he would do just that! And Garland seems unaware that correcting a touch down decision hours after the match ends doesn't mean a lot. Still sometimes an enjoyable if disjointed match.
Try to convince your docs to prescribe metformin, even though you might not be a Type 2 diabetic. My Med Onc, Dr. Charles Myers, was a great believer in it for prostate cancer patients to moderate metabolic syndrome (weight gain and heart risk while on hormone blockade).
Good side effect is that helps you lose weight. It is generic, cheap, been available for years, and has few bad side effects. He thinks that metformin will eventually be over the counter like aspirin for it's benefits!
It sounds like you are following a successful course of treatment. Keep educating yourself and don't hesitate to utilize your doctor, anytime and all the time ! This discussion board is helpful beyond measure. Keep moving and improving your diet. Try not fear chemo. So many men have stated that it IS tolerable and if you were to run into problems, there are ways to help you through it. You are not alone ! Stay in touch. Warmest regards.
It sounds as though you have, for now, found a treatment that works for you. That is encouraging.
Yes, I understand why you would be afraid of Chemotherapy. My husband and I were afraid as well. But it really doesn' mean the end. It only means that you are fighting harder against this very aggressive disease.
My husband had two Docetaxol infusions (first line Chemotherapy treatment) and then 6 infusions of Carbo Platin, then a 5 week break and now he is back on it for another 4 infusions. It is not easy, but sleepiness and occasional nausea are really the only side-effects. So if you have to go on Chemotherapy, just wait and see what happens and don't be worrying about this yet. As you say, enjoy the life you have been given, make the most of it, and it is good that you are able to now change to a healthier life-style. So well done and good luck!
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