Advanced Prostate Cancer
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New to the Group

I'm just starting to look at the posts here. My wife (Sedra Ranae) has been keeping up with the posts here for a few months. I was diagnosed with aggressive Stage IV prostate cancer (Gleason 8) with extensive lymph system involvement in September of 2017. It was quite a shock since my PSA in August 2016 was 2.4. Then in July 2017 it was 24.99, and August 2017 it was 28. It's a good thing I went in to check on the fatigue and leg swelling or it could have progressed a lot further.

I am currently on Eligard, Zytiga and Prednisone. My PSA is 0.15 as of January, which makes the side effects of the drugs worth it. My oncologist says this should work for 2-4 years, then we will have to look at other treatments. Have been losing strength so I asked for (and received) the Man Plan exercise and support program. I have also made a dramatic change in diet and am limiting my methionine intake. Mostly low fat vegan with very limited grain intake and without nuts and seeds. Doing everything we can to improve the prognosis. I'm still working full-time. Emotionally I have up and down days - most days I feel I've come to terms with the diagnosis and just want to get on with dealing with it; but sometimes I do cry. My wife has a daydream that I will go into remission for 18 years and then be cured. Makes me smile. Thanks to all of you for sharing your stories. The information is priceless and the supportive atmosphere really helps.

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It is possible that you can go into remission for 18 years. We have a Guy, last week who posted that he was diagnosed in 1996--had the ADT available then--and went 19 years, before the Pca came back--and now he is aggressively treating---He is 92 years old--Imagine that.

Your at a low PSA---most consider undetectable at less than 0.1---you are not that far being 0.15. Possible with a few added tricks you can get there. Your aggressive PSA one year history kind of mimics mine.

You can better plan for the future by getting Gene Mapped at a company such as Foundation One---they will determine what Gene Mutations you have---and that lines up with certain targeted drugs that can be used in the future, against any Gene Mutations. In my case I have 2---and the drug of choice for me, which I do not need today, is Olaparib--a PARP inhibitor. You can Study the Stampede and Chaarted, and BAT trials that have garnered a lot of attention lately.

So stay tuned here--lots of info from the old timers, and the new news flows daily.

Nalakrats

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Always good to hear about someone who's treatment has added decades! Thanks for the info on genomic testing. I think that is a conversation I will have with my oncologist. He has been researching prostate cancer for 30 years so will probably know about it. He is at the OHSU (Oregon Health Sciences University) Knight Cancer Institute and I know that they are familiar with this.

Thanks,

Michael

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They are: as almost all the trials today have to do with some kind of Immunology---and they need your mutations to qualify--in many Trial Cohorts.

Nalakrats

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With the treatment, care and the love you both have...........shoot for the long remission Mr and Mrs Mhemmer!!! Routing for 18 years of remission for you too :)

Jackie

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Thank You!

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Could you ask your wife to have an 18 year dream for me?

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Wishing you all the best in achieving a long remission. A lot of articles claim that those on a low fat vegan diet don't do as well as other vegans who eliminate the carbs and consume healthy fats. You also mentioned that you've eliminated all nuts and seeds. I consume a ridiculous almonds of almonds and peanuts for the much needed potassium while on Zytiga. Unsweetened coconut water and avocados are also good choices. How are you achieving your potassium levels?

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I haven't been doing anything to maintain my potassium levels. I get blood test done monthly and it has been fine every time.

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Hi we seem to be on same first treatment. I was dx in September. Stage 4 advanced with bone mets. Psa 35 gleason 8. Treatment is lupron , Zytiga with predisone 5mg. I also take xgeva for my bone mets. My psa has steadily gone down . Now .03 . Because of Stampede and Latitude trials this treatment being used as a first line of treatment. My Med Onc has patients still on this treatment after 5 years. My understanding is the most popular treatment is adt plus chemo. My side effects are just hot flashes and fatigue. Also loss of libido. I eat well and exercise . Glad to see your psa is going down good luck and hope to see you posting more great results!!

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