I was diagnosed in May 2013 with Prostate cancer. PSA was 9 and Gleesons was 7.
I was 63yo. The cancer had spread beyond the prostate and both seminal vesicles were fully involved, as well as a small part of the bladder wall.
Treatment was 2 years or ADT plus 8 weeks of targeted radiotherapy.
I was on Zoladex 3 monthly until June 2015, when my PSA was at 0.08.
Followed up with 6 monthly visits to Urologist whilst monitoring my PSA which climbed slowly to 1.14 in January 2017. On my last visit my urologist said he did not need to see me again, and all was well.
PSA test in May 2017 was 3.26, and I was cleared as OK. Fast forward to late November 2017, when my PSA came back at 6.2. My GP spoke to my urologist who suggested prostatitis, so a course of antibiotics and anti inflammatories. In the first week of January 2018 my PSA was 8.1, and I was referred to a new urologist.
A further PSA test on the 10th February 2018 came back at 9.9.
Following a pelvic CT scan and a Whole of body nuclear bone scan I was diagnosed with stage 4 prostate cancer, with lesions in my pelvis and spine (T6), as well as a lymph node.
I am currently on ADT again (Cosudex tabs daily, plus a 6 monthly Triptorelin22.5mg injection)
My heads all over the place at the moment, and I am still trying to come to terms with everything. No one seems to be able (or willing) to give me a prognosis at the moment, so I am winging it until I next see the urologist in May.
Should I be pushing for a referral to an oncologist at this stage, or leave it until May after we see how everything is going after 3 months of ADT?
Any help or advice would be sincerely appreciated.