I have been dancing with PCa for a while at a young age, Father, uncle, multiple cousins of my fathers side all had PCa in their late 50s, 60s and 70s, All had surgery or radiation and were fine, most still kicking, but no deaths from PCa. Lucky me, I got the curve ball.
First biopsy was at 41 with a PSA of 9, 13 cores negative but had pre-cancerous indicators
Year later at 42 second biopsy with PSA of 15, 1 out of 15 cores showed 20% GL 6(3+3), got MRI, clear, 3 moth later PSA is 14, stable, a bit lower.
At 43, PSA climbed to 19, third biopsy with, new MRI overlay picked up GL (3+4), performed surgery 8/16, recovery went well, pathology confirmed GL (3+4), T2c, margins, EPE, SVI, 10 lymph nodes all clear.
Thought I was headed in right direction.
11/16, PSA undetectable
4/17, PSA undetectable
10/17, PSA ~0.2, reconfirmation in early 11/17 (0.18)
12/17, PSA 0.23, then 2 weeks later 0.27
Took action quickly, within 4 weeks of confirmation, we had an RO at Sloan Kettering, and the last reading of 0.27 was 1 hr before starting Firmagon
Very nervous at this point, doubling time has me worried (about 3 months). Read multiple studies and have seen number ranging from 30% to 68% (MSK nomogram) for a multi-year remission, potential long term.
Naturally, those are good number, esp the 68%, but I am cautiously optimistic.
Have been exercising since the spring for a blown ACL (different story), but dropped from 207 to 170 and diet is on track.
In any case, I have been looking at posts and have been amazed at the information here and the perseverance of everyone.