Prostate, do I need to worry - Advanced Prostate...

Advanced Prostate Cancer
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Prostate, do I need to worry

So I’ve been having a good deal of issues with pain and that prompted me to see various Drs. and have various tests.

I currently sit here with (after those tests) with the knowledge that I have an enlarged prostate, a 1.7 psa at age 40 and a CT result that found a asymmetric focal hypodensity. I have an appt with a urologist on Monday but I am just really worried the signs are pointing towards prostate cancer. Any thoughts from people are appreciated.

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Family history? Vasectomy? Your PSA is in the normal range. I would think that the urologist will try prescribing something for enlarge prostate and do active survalence. Make sure you research your results and write down all of you questions. Don't be afraid to ask lots and lots of questions. You will feel better when you are informed. Good luck!

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Hi noirhole

I read your posting which was 2 years ago. How are you feeling now. Can you give us an update on your conditions

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More than one member of our group has labeled me as misinformed, ( a polite way of saying that I'm clueless) but if I were in your shoes I would add an oncologist to my medical team for a discussion and an opinion regarding your test results. If your insurance covers an oncologist visit, what do you have to lose? Good luck!

Of course what do I know?

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Nameless, thank you for your response. I wouldn’t think a place where you have concerns about your health would want to call you out as misinformed. Especially since when you look in various places you can find various ranges for PSA levels. And yes, if being new to findings that cause me to be concerned about a good deal of things I have been dealing with over the past few months labels me misinformed, then I guess I am misinformed as per some. Again thank you as your response is more of what I would have expected to get on a health board where people should be willing to help others get informed.

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RLS_ Just to clarify, I didn't mean to suggest that in any shape or form you might possibly be misinformed. Actually, au contraire

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I know that and did not mean you. Again thank for your responses. They are appreciated. Have a good sunday

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Neither you or nameless are in no way misinformed. Rather you both are on the pathway to get more information. There is no negative for seeing a medical oncologist. Rather he/she may be able to give you a clearer picture of where you are right now, and what symptoms to watch out for. How knows, perhaps you can use the information you gain to help others if they start mentioning issues that they are having. Sharing information and opinions is one of the strengths of nameless!

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You are doing the right thing asking and being your own health advocate. Good for you!

My guess is that your urologist will suggest what noirhole expects (from the first post). Having read many of the histories of men on this site that have have PCa with a low PSA, it is possible you have PCa. But it would probably be unusual. I think one way to have some certainty would be to have a prostate biopsy. Not too pleasant, but it gets to the ‘heart’ of the matter so to speak. I’d ask your urologist about that.

I have also become a big believer in getting second opinions. Good doctors are not offended. Perhaps as nameless9999 suggests, have a second opinion from an oncologist who specializes in PCa.

Best of luck - and please keep us posted.

James

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It is good that you are following the psa at such a young age, keep doing it. So many of us in here were caught in our late 40s with advanced prostate cancer to late for a cure. Be vigilant, Cancer can be cured if found early enough.

Dan

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Would it be terrible to get a prostate biopsy ? This is just food for thought. As a female who is used to being poked and prodded by doctors.. I did not consider my husbands biopsy to be a big deal, and neither did he. An ultrasound guided biopsy might be something to consider.

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Thank you! I have my appt with Urologist tomorrow at 8:15 so what ever he suggests, I will do. And if that means get a biopsy, I will.

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RLS,

A 2nd opinion regardless of what your urologist says would be optimal. A good Medical oncologist. Just to be on the safe side. Your life is so worth that. Not happy with the info we DID NOT receive at the urologist. Best wishes for you

☺Jackie

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Whatever the Urologist suggests ensure you have a biopsy. Not much of a matter. Recognise that a Medical Oncologist will invariably become your front line treater if PCa found in the biopsies. Get one now and all the best.

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If there is any doubt get a biopsy. Dont let a doc talk you out of it due to age or PSA. You are likely fine, but its the omly way to know. 25% of men with prostate cancer have PSA under 4 at diagnosis. So odds are in your favor, but for those men in the 25% range (like me) - a doc dismissing my sypmtoms as BPH because my PSA was low is my death sentence. Im 55 with stage 4 and while i may live a few years, I WILL die from this due to my PSA being too low to be taken seriously.

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Got that result from VA. "At your age your high normal PSA is nothing to worry about"

18Mo later stage 4, fast growing ,invasive, aggressive, and spread. So much for normal range isn't important. I was told PSA test was controversial and they didn't pay much attention to it... So stay on top of it and don't join our Gleason 9/10 club.

Doug

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Thank you for the words of advice! Waiting for biopsy results which I should get on Monday. I guess that will tell me what direction this is going to be headed in.

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I had prostate cancer and am completely clean now. I am tested on a regular basis as it has been known to return. Find out from the urologist what your Gleason score is. This is far more accurate than PSA I sought out an alternative to traditional cures and found Dr. Haas and cyberknife at Winthrop University Hospital in Mineola, Long Island. Implantation of pellets was simple and easy then 5 45 minute sessions listening to music while lying on my back. No sound, no pain, no smell no side effects. Definitely look in to it. Not just for prostate. I cannot recommend it enough when compared to the alternatives. If you have any other questions let me.know.

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Hi Stelian

Great news that you are out of the wood. Please keep your immune system up to protect yourself from more nasty recurrence

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Hi RLS_

You are young and psa is low. Wish you well on your treatment.

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I had a PSA test at an area-wide prostate screening thing (it was free) in my mid-forties and the doctor said the prostate was soft and why was i there and I said that my uncle died from PCa.

I was diagnosed with early state PCa at age 62, and I would like to go back to that doctor and say THIS IS WHY I WAS THERE IN MY MID-FORTIES, DUMMY!

It is very important to get started checking, IMO.

Mark

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Agree with all the above. Also refrain from sexual activity at least 24 hours prior to your urologist visit. He will likely do a PSA Test. Activity just before a test can provide a false reading. I wouldn’t worry as much as be cautiously concerned since you are a young man. If it is in your family history, it may not be cancer yet, but it could be on the horizon. Good for you that you are getting checked early!!

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My Husband has been dealing with enlarged prostate which over the years causes his urine flow to slow down, to have some infection issues, and to have an urgency sometimes (as he ages). He once had a series of prostate biopsies (they check 9-10), but nothing about cancer.

I support lifestyle changes to include flaxseeds or flaxseed oil - Duke University did a study with flaxseed muffins which showed a benefit for all men in the trial which only lasted 30 days. s672529981.onlinehome.us/ar... Study from early 2000's but I am sure you can find more.

Less red meat, NO deli meat, no soda, no chips or deep-fried foods. Reduces risk of all cancers.

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This is shocking to me as my husband was told to stay away from flaxseed years ago when he was diagnosed.

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My PSA was 2.7 at diagnosis. The DRE (what I call the fickle finger test) is what revealed an abnormal situation that got me sent to a urologist for a biopsy. I was age 66 at the time -- the prime age for being diagnosed.

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RLS looking back on my journey, I gained much by not being motivated by fear, but by logic and probability. I saved myself a lot of anxiety by following recommendations and learning as much as I could. I went to “good” doctors, which the probability of that is pretty high. Remember too, no one experiences the same as you will. The probality is fairly low that you will experience any horror story that you read, nor the immediate cure, if it is PC. Good luck!

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Thank you everyone who has responded to me. I appreciate your time and information. Will now have a biopsy next Tuesday so we’ll see what comes of that. Just can’t get past being extremely exhausted during the day and waking to pain every night at around 4-5 and then feeling weak in arms and legs at times.

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Hoping, wishing and praying that all is good on your test. So sorry you are not feeling good at all. Keep researching along with the docs even if you're in the clear after tests. Only you know your body. My best wishes for all good. Please keep us posted.

Jackie 😊

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Than you! Appreciate the kind words. It helps because having this just hang out there until there is an answer one way or the other is tough. I’m scared but trying to be strong for my wife and family. Thank you for the prayers and I am praying for anyone here who is going through a similar thing or has been diagnosed with a more advance stage cancer. Bless you all.

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It's so scary and the waiting is horrible on you. Find SOMETHING to calm you until you receive the great news that you're in the clear 😁

Most sincere,

Jackie

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Blessings on you and your family RLS_

You have an amazing family here to share all of your fears, worries and celebrations with if and when needed.

🤗

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