Palliative and Hospice Care

[ctarleton]

Recently herb_8789 mentioned to me that he has not seen a lot of information here about Palliative Care (or by extension, Hospice Care).

I agree. My impression, so far, has been that many Urologists, Radiologists, Oncologists, and Prostate Cancer Specialists may spend lots and lots of time and attention to their specialties and modalities of treatment, but far less in helping men deal with the day-to-day side effects or suffering that "come with the territory" of living after their procedures, and that certainly come with progressive advanced disease.

How many men here have met others who were about to go off to surgery/radiation, or who already had surgery/radiation, but whose doctors never even told them about the options for pelvic support Physical Therapy to help prevent/improve urinary incontinence, or never mentioned or referred them to anyone who might be able to help with Erectile Dysfunction, and the various options that might help with ED after prostate procedures?

The same might be said for certain aspects of fatigue with hormone based treatments, or gynecomastia with certain treatments, or the several common bodily effects of Androgen Deprivation Therapy.

To be fair, many Oncologists do a pretty good job of trying to help palliate the direct side effects of various Chemo drugs they administer, but sometimes not such a good job of the physical, social and psychological impacts that come as treatments change, and, particularly, some impacts as serious disease progression occurs, and end-of-life draws nearer.

Anyway, I thank Herb for bringing this subject to our attention and providing these types of resource references, for when we and our families may need them.

Get Palliative Care:

getpalliativecare.org/

getpalliativecare.org/whati...

The National Hospice and Palliative Care Organization:

caringinfo.org/i4a/pages/in...

I am curious about others' thoughts and ideas on this topic.

My thanks again to Herb for bringing this topic to our attention.

Charles

[BigRich]

I have been fighting this disease for 19 years and with the Lord in Heaven's help I am going to go another five or seven years. To think about Hospice care to me is welcoming death. I am not interested in knowing about it right now. If the time comes I know of a good Hospice to go to.

Rich

[MrJack in reply to BigRich]

right on! fight on! thank you!

[BigRich in reply to MrJack]

Mr Jack, I have followed your posts. You are a true PCa warrior. We are not going quietly into the night. Keep up on the research and clinical trials. Keep fighting.

Rich

[Cancer09]

I wish they had a site for after palliative and hospice care for spouses or partners ...i loved this site and now it's too hard to read

[MrJack in reply to Cancer09]

find another support group, I m sure you can.

peace be with you.

[MrJack]

Hello everyone, I have had 17 rounds of chemo, soon it will no longer keep my tumors at bay.

I am curious about end of life and would like to prepare, I would like to set my room up comfortable bed, tv, computer, food tray etc, if I become bed ridden I would like to be ready

I am already having kidney trouble, blood in urine etc.. stage 4 , tumors all over my body.

I would like someone to guide me, iv never had to die before. I'm new at this.

try to have a good day and enjoy today.

peace and love to all

[j-o-h-n]

To quote a famous person:

"right on! fight on! thank you!"

j-o-h-n Wednesday 10/04/2017 5:50 PM EST