Age 46, initial diagnosis in February 2016, PSA of 286, Gleason 9 (5+4) Stage 4 metastasized to lymph nodes. Bulky disease showing in pelvic and abdominal lymph nodes in CT scans and bone scan clean. Immediately placed on Lupron and Casodex. Did 6 rounds of chemotherapy which consisted of docetaxel while remaining on Lupron. Prostatectomy with extended lymphadenectomy performed December 2016 by Dr. Jeffrey Karnes at Mayo Clinic in MN.
3 months postoperative PSA in at <0.01 done by local oncologist
6 month postoperative follow up at Mayo Clinic <0.1 and all body and bone scans clean.
If numbers stay the same for the next 18 months getting off hormone treatment is a very real possibility.
When initially diagnosed I was told by 5 different doctors I was inoperable, including 1 from a major cancer treatment center in NY State where I reside. I was told I will be on hormone therapy the rest of my life. Through this site I found hope and resources. My first post received words of encouragement and advice directed to a guy that was scared with feelings of no direction. I found I was not alone in my thoughts. Gourd_dancer showed me even with bone metastasis this disease can be rocked. I think about him all the time when someone says it cant be beat. Patrick, Nal, Alan and Dan59 I look forward to reading anything posted as its information you cant get anywhere else. Other posts in between shared by all are a wealth of knowledge. It was where I found the video by Dr. Kwon on treating metastatic prostate cancer with a curative intent prompting me to go to Mayo. I know its to early to tell what my diagnosis will bring but where I am at now is a long way from where I was told I was going to be. That is due largely in part to this forum.
Dr. Karnes gave me a chance when nobody else would through unconventional therapy. He removed 42 nodes along with my prostate and I had no incontinent issues and he was even able to do nerve sparring surgery on one side. He gave me the worst case scenario going into it and he was willing to try. I could not have asked for a better outcome.
Never give up hope, do not let statistics cloud your head. Be your own statistic. I feel it is a combination of modern medicine, what you do for yourself and mental strength that is going to get a guy through this.
Thank you and keep the posts coming.