Cannibis: Has anyone out there tried... - Advanced Prostate...

Advanced Prostate Cancer

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Cannibis

GOLFER72 profile image
42 Replies

Has anyone out there tried CBD oil r syrup I just aquired some syrup to experiment on my stage 4 prostate cancer

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GOLFER72
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Blair77 profile image
Blair77

Let us know how it works..

GOLFER72 profile image
GOLFER72 in reply to Blair77

Ok but note I also started Lupron

in reply to GOLFER72

Tried? No. But I just attended a very thorough, 2-hour legal and medical lecture on cannabis as an anticancer drug, and am sold on it. I pick up my state permit tomorrow from my integrative radiation oncologist (IO), have two books written by MDs who research that field coming from Amazon on the purely medical aspects of it, and am eager to get started. One doesn't just "take some cannabis"; it must be the right type, must be titrated to each individual's reactions, and must be targeted to the individual's symptoms. Sounds daunting, but in fact is is very simple both medically and practically. The lecture provided plenty of information, but I couldn't write fast enough and I'm an information hound. I asked the IO, who oversees my cancer care, whether I should start the cannabis now (on ADT) or wait until if and when I accept the chemotherapy. He shot right back: "Anyone with cancer should be on medicinal marijuana; it's that beneficial." (And, no, he doesn't sell it.) If cannabis does even half of what the peer-reviewed research shows it to do, these guys can sick their chemo where the sun don't shine.

And realize this: I've never as much as sampled any recreational drugs in my whole life. I don't even drink alcohol, coffee, or tea. This is purely about the MANY medical benefits of pot.

GOLFER72 profile image
GOLFER72 in reply to

Thank you I have heard a lot of positives cannabis vs cancer the type I just started has the THC removed no high

in reply to GOLFER72

But we need the THC. It works synergistically with the CBD, boosts the efficacy of our opioids so we can use less, and is part and parcel of pot's appetite and nausea benefits. Taking enough to get high is overkill, anyway, and might be less effective. I also hope you have a license for your medical marijuana, because it it still a Class I federal felony, just like crack and heroin, and any cop who pulls you over can demand a blood test for it. The legal limit in our bloodstream is zero.

Neal-Snyder profile image
Neal-Snyder in reply to

In fact, all the cannabinoids in a plant, not only THC & CBD, although they're the most significant, work synergistically in their anti-PCa effect. I'm intrigued with the fact that you've learned that a dose lower than what gets you high is sufficient. I'm an experienced recreational smoker, & that only helps you relax & have fun. When I tried to build up to an what I was told would be an effective dose of cannabis oil with a 3:1 CBD to THC ratio, I had a hard time getting there because of the strength of the THC. I had found 5:1 much better, but then I couldn't find it anymore.

Would you mind explaining what you've learned about an effective dose to fight PCa, & what the CBD:THC ratio is? I have my California-legal medical recommendation & dispensary membership.

in reply to Neal-Snyder

The lecture covered it, but I haven't had the time to assimilate that or research it further yet. I do recall that the balance between CBD and THC determines which symptoms it will focus on; its therapeutic value varies between edible and vape delivery (the former, and smoking it, is not generally suitable for medicinal applications); the list of its specific, objectively measured, purely medical benefits is quite long (e.g., an RCT showed it to reduce PTSD scores by 75%); and the VAST majority of internet sources on medical marijuana offer exactly what you'd expect: a bunch of potheads yakking about getting high. The medical dosage of cannabis oil, OTOH, is about the size of half a grain of rice.

I'm focused on one thing until March 1: building a file on the pros and cons of early chemotherapy. I want to make that decision once, not as every new month rolls by and my oncologists keep telling me "Just Do It; It's a no-brainer."

That's exactly what I'm afraid of, according to the research. I've asked the world's leading neurological oncology center whether that's justified, or paranoid. Looking for an answer by Monday.

Neal-Snyder profile image
Neal-Snyder in reply to

Thanks IB. I hope you're able to decide on the basis of the best info available. No one was talking about early chemo when I was early, but from what I've heard & read, I'm sorry it wasn't done then. Please let me know what you decide.

Half a grain of rice was what I was told to use to start with. I was to build my tolerance. Even the starter amount got me high, somewhat differently than smoking it. Going to bed within an hour was recommended. One night I squeezed out a little more than I meant, & that's the night I wrote about OD'ing--I'd forgotten the part about the size of the dose when I wrote it.

Then I found out about a company that was using Prana products, with a measured amounts in a softgel. I can't think of the company name right now--I have it at home but we're traveling. I expect you'd get it if you search for Prana. They started in Denver & had added my dispensary in Oakland, CA at that point. They assign you a nurse to work with on the phone.

When I'd adjusted to 20 mg, the nurse recommended 50. It may have been too big a jump, or it may have been just that I had a drug interaction with gabapentin (neurontin), which I've needed since a PCa tumor caused a spinal cord compression. Anyway, after the first 50 mg dose, I had an unpleasant feeling that didn't go away until my doctor suggested reducing the gabapentin 100 mg at a time. When I got down from 900 to 600, the feeling cleared. I haven't tried again.

Did you learn that the half a grain of rice size would be sufficient without building up?

I have a lecture from Green Flower that I haven't watched yet, but I expect it to be useful.

in reply to Neal-Snyder

After one goes through chemo, what the heck ... may as well have done it sooner, we now know ... IF we escaped its apparently near-ubiquitous, apparently severe toll on our IQs. However, a) nobody knew until 2015 that early works better and b) I read one sentence just today ... ONE PARAGRAPH (in a book for patients) out of scores of peer-reviewed pages from some of the world's most prestigious cancer centers ... that said prostate cancer patients don't get much chemo brain from chemotherapy. That one sentence really makes my inquiry to MD Anderson that much more urgent. If they ... apparently the world expert chemo brain research center ... concur, I can trash many hundreds of hours of research and get back to the bigger picture: is chemotherapy beneficial enough to PC pts to justify even its incredible acute (i.e., real time) QOL hit? On the flip side, a less severe but still frequent and substantial cognitive impact is emerging as a side effect of plain, ordinary, garden-variety ADT.

Classic case of not being able to win for losing, particularly for those of us like myself for whom ADT is no longer optional.

Except for reiterating that edible pot is ill-advised for medicinal application because individual responses vary too much, my pot suggestions will have to wait. My plate's just too full right now to even think about it.

Neal-Snyder profile image
Neal-Snyder in reply to

I understand. That's a helluva lot of research!!

I didn't have any choice but ADT when I did it. It's been 11 years. When you get a chance after you've made your decision, please send me a reference about those frequent & substantive cognitive impacts from ADT, if you have it handy. Please don't send me anything about incredible, acute QOL hits from chemo just yet, since it's not an imminent decision for me. (Shudder.)

in reply to Neal-Snyder

I didn't have any choice but ADT when I did it. It's been 11 years. When you get a chance after you've made your decision, please send me a reference about those frequent & substantive cognitive impacts from ADT, if you have it handy.

If after 11 years on ADT your physical and mental SEs are still tolerable, you have no reason to worry about any of them beyond diabetes and heart disease. You're already on the good side of the bell curve. I did my ADT research a decade ago when my docs wanted me on it just for the hell of it, with almost no evidence to back it up IN MY CASE. And now that it's a no brainer because of my doubling time and worst-node location, I'm still not researching ADT much beyond choosing and insisting on the drug we use. But I still see occasional references to ADT SEs including its cognitive impairment potential. I'm just starting to accumulate and read books on CICI ... cancer-induced cognitive impairment ... and I'll be curious to see how far they extend the problem beyond chemotherapy and into ADT and cancer itself.

I DO know I'm much less afraid of medical marijuana than of most other cancer drugs. Sure, pot has many deleterious effects in our bodies, but it has been used medically for millennia, is less harmful than most cancer drugs, is more beneficial than some of them, and harms our brains less quickly and irreversibly than chemo and some of the other new anticancer drugs mentioned here every day.

in reply to

Exactly,start minutely ,if you stick with it,you will quickly build tolerance to the high thc .that is recommended to kill cancer.90 days = 60 grams .Working up to 2grams a day in The final weeks.We attribute my status now= no signs visible in great part to this routine I be done.As in many other nutrient you want to saturate you system then back off to small daily dose.Best of licks.any form of canaby is beneficial.Best of Luck!

in reply to

Don't fear the laws.Under cancer treatment there is no will to prosecute us..Just remember the current law where you reside and use common sense..Thanks!

in reply to

It's not the laws that concern me. It's the cops and judges enforcing the laws, especially on federal property. The quantity I would be carrying on multi-day travel would meet drug dealer criteria, and ANY THC in our blood sample exceeds the legal limit.

My other concern is the number of people who just "do pot" for their cancer without finding out HOW to use it effectively to fight both the cancer and the drug SEs. That's why I have not started it yet; I don't know how, exactly.

in reply to

Some forms of canaby oil from dispenseries state on label,that it is illegal to drive with it in the car.How are you going to get it home?The medical benifits outway any legal risk. If travelling you must clearly think ahead to protect yourself. Try it You might find that you like it .. If not ,at least you tryed

in reply to

Your Dr. is absolutely correct.Keep it up..

DFZ4835 profile image
DFZ4835

I have been using CBD for pain and chemo sickness with great success for five years. I use 50 mg a day in the morning and if I get pain/sickness later in the day I take another 50 mg. The CBD I use is from ( Hemplifetoday.com ) or CW hemp. Both online as they don't contain THC. Some days I don't take any break through pain meds at all. I was diagnosed with stage 4 prostate cancer with bone mets in 2011. The bone mets are to numerous to count according to the bone scan. I do have mets in my upper jawbones, backbone, ribs, femurs pelvis and almost anywhere there are bones. I can't guarantee that CBD will work for you as well as its

GOLFER72 profile image
GOLFER72 in reply to DFZ4835

curious at present how is your overall health are you able to like play golf or exercise if not how far in did you lose your ability to do so thanks golfer72

DFZ4835 profile image
DFZ4835 in reply to GOLFER72

My health is ok. I don't golf so I can't answer that. The CBD I take is for pain and kemo sickness not to combat my cancer. If I wanted to fight the pc with CBD I would get on a program with CBD and THC at least 100 mg and up it as needed. Sorry this CBD user is just stopping the pain.

Dennis

GOLFER72 profile image
GOLFER72 in reply to DFZ4835

Thank you currently only on Lupron, CBD On my own

in reply to DFZ4835

Cbd' are great..Keep it up!!!

DFZ4835 profile image
DFZ4835

Wicked for me but I think it is worth a try. Just as a aide note you can not OD with CBD? If 50 doesn't work up it to 75 or more. Give it a try it may be just what's needed.

Dennis

in reply to DFZ4835

Cannot physically O. D. ON MARIJUANA PRODUCTS.Definately can do more than you had wished,but with trial you'll find what your body and mind can tolerate..Positve thoughts and people can bring you thru adjusting to a proper personal dose.Best wishes..

Beermaker profile image
Beermaker

I have read in many reliable sources that ODing from pot is not possible. I would expect CBD alone to be even less of a problem than THC with CBD. I have gotten to where I could not walk without assistance, but that goes away in an hour or two. I do NOT recommend taking that much. :) And if you think you have OD'd, and go to the hospital, they put you in a bed and leave you there. If you call 911, the EMT's put you in a bed and leave you there. Do not worry about the stuff, but don't drive with it effecting you.

in reply to Beermaker

I once smoked so much at a concert at the Spectrum in Philly, I dropped to the floor while toking in the men's room. Funniest thing to ever happened to me, all I could see was a black and white checker board pattern. Well, it was the floor.

But, people are ODing, but while eating edibles. I haven't experienced edibles well enough to be certain, but I have read stories about it.

in reply to

Cool story. I take meds for a-fib, which is well managed. I am a little concerned that pot generally causes a faster heart beat and might make me more prone to an a-fib episode. I wonder if there are any other a-fibbers out there who are tokers? I did try some when I was in Vancouver this summer. Just took a few puffs and stubbed it out. No problem. The potency these days is something to be mindful of. I might get my MM card after reading these discussions.

in reply to

I think it may be easier with an edible for you. With the MM card you should have a choice. Keep us posted about how you make out.

in reply to

Check it out, you will benifit in some way ..If not stop.Definatly ask heart doctor.Interested in what he or she says first..

in reply to

No one has ever died from an overdose froTHC.But you can definatly feel like you are on LSD if you do way too much of highest powered derivitives.only by trial will you find a happy medium.,and products that work for you. much Luck!!

Neal-Snyder profile image
Neal-Snyder in reply to Beermaker

You can't fatally OD with pot. You can't OD period on CBD that has no THC content. But you can OD on THC, have an unpleasant experience, & sleep it off with no harm done.

I was taking a dose of whole-plant cannabis oil attempting to fight my PCa, & the directions were to go to sleep within an hour. One night I read for too long & it suddenly hit me that I didn't think I could walk to the bedroom (where my wife was already asleep) or to the adjoining bathroom. I managed to get to the bathroom by touching furniture, counters & walls along the way.

Then I got nauseous. My wife woke up & helped me get to the bed, with the ceiling fan on full-blast at my request. I stopped sweating & fell asleep. I told my OD story to a staff member at my MM dispensary & she said they'd all OD'd. She also told me that the antidote to THC is CBD. So if I'm trying to fight my PCa with cannabis, I much prefer a 5:1 CBD to THC ratio to a lower ratio.

Neal-Snyder profile image
Neal-Snyder in reply to Neal-Snyder

I remember now that I squeezed out more oil than I meant to that night.

in reply to Neal-Snyder

Easy to do...

Vinnyf profile image
Vinnyf

I've been using cbd oil about 60 mlg per day,I don't physically see a difference who knows,haven't tried syrup

Neal-Snyder profile image
Neal-Snyder in reply to Vinnyf

How do you measure it, Vinny?

Vinnyf profile image
Vinnyf in reply to Neal-Snyder

Spoke with pharacist at dispensery,she suggested what I should be taking

Neal-Snyder profile image
Neal-Snyder in reply to Vinnyf

Sorry, I meant what do you use to measure 60 mlg.

Also, is it totally CBD--no THC or other cannabinoids?

Vinnyf profile image
Vinnyf in reply to Neal-Snyder

I'm using cbd to cbd 10mg capsules

Vinnyf profile image
Vinnyf in reply to Vinnyf

In new York it's either a spray for under the tongue, e-cigarette or capsule. I'm taking capsules,don't feel a difference but dies help me with sleeping

I've been on Lupron seven years, and a not so legal CBD product. Also Zytiga and Xgeva. I have several mets, and haven't had any pain at all. I have other pains and aches, but the most important ones don't exist yet.

I hope you have a similar response.

Joe

Neal-Snyder profile image
Neal-Snyder

I'm familiar with oils, tinctures & sprays, but not syrup. Is that a different thing than oil?

I ve 3 times done 60 grams in 90 days of "Rick Simpson" type canaby Oil. Full blown; # 4 ,gleason#8 metastatic , non operable.Currently on small maintanace dose1/4 g per day."Rick" states only 1g. Per month is sufficient for maintanence.But I do more because it has many other benefits for those that have received treatment.Helps nausea from chemicals & appetite ,you might just laugh a little and at least for the moment forget about your ills.Im55. 2yrs ago started, and currently no visible signs.Done every thing else possible that I felt needed to do..happy if I can help with what I've experienced.cbd's are great calming ,pain relief,and we believe All form of marijuana are great for us..

GOLFER72 profile image
GOLFER72

Thank you I make Indiga brownies they give slight buzz but enables me to sleep like a bear in hibernation at night eat approx 1 sq inch before going to bed

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