Anyone knows about Kinecteen?

[Ghazaleh]

I was recently diagnosed with ADHD at the age of 45, my doctor has prescribed Kinenteen for me (18mg). I am taking it since two weeks but I don’t feel much different, only less lethargic. Still get overwhelmed very easily by small things…

[Ampersand1]

Tell your doctor this. Sounds like too low a dose of the wrong medicine for you. It can be frustrating finding the right dose and medicine type when you're recently diagnosed, but you should write a message to your doctor via patient portal online so you're not just waiting in misery to get help at your next appointment which could still be weeks away.

[Ampersand1]

Also, I think I came across an article on a search the other day that essentially said this drug Kinecteen is the European version of what I've more commonly heard/read here called methylphinadate (or whatever spelling), but essentially it's one of the only ADHD drugs on the market which is not an -amphetamine drug. Sometimes, doctors have to prescribe this medicine if patients have any heart conditions or blood pressure risks, but definitely another element to discuss with an actual professional instead of me (not at all a healthcare expert, just a super curious person with ADHD who loves to learn these kinds of things). I think from studies I'd seen, there are significant empirical evidence to suggest that not all stimulant drugs are created equal, and that's probably why so many people are preferentially prescribed medicine like Ritalin, Vyvanse, Adderall, etc. over the methyl one.

[OldIndigoBlue in reply to Ampersand1]

Methylphenidates are stimulants, just a different class than amphetamines.... so I wonder if doctors are more inclined to prescribe this other class of stimulants? And I have a question - do you think folks with ADHD are very often extremely curious? I've always been so curious, and find myself going down a different rabbit hole to research something deeply really often in my life. I think being so curious has greatly enhanced my life in general. But maybe that's just the dopamine hit I get from learning something new? And by the way, it doesn't work as well as caffeine.... LOL!

[Ghazaleh in reply to OldIndigoBlue]

I have also been very curious about everything, I always do some reading about the new things that I come across with but never go deep

[OldIndigoBlue in reply to Ghazaleh]

I'm not sure I can say I go "deep" - something I read in "Still Distracted After All These Years" by Dr. Nadeau made me laugh - it was something about the people who research ADHD and have a dozen books on their nightstand, but they can't get through a whole book! I don't have a dozen YET, but it's getting close. And I have FORCED myself (with negative self-talk) to finish one already, and on my 2nd one that I'm determined to finish. It's not easy. I have an entire bookcase of books mostly with Post-it notes sticking out, or dog eared pages, or sometimes a "real" bookmark, but truthfully very few were actually finished. Since I'm financially not able to blow money on stuff like I've done in the past, I MAY get around to reading some of those unfinished books in my bookcase, but ------ I will have to start from the beginning because there's no way I'd remember what the book was about! LOL!

[Ampersand1 in reply to OldIndigoBlue]

Tbh, I think from the friends of mine who take other stimulants and there are horrible shortages of these medicines, particularly like Adderall XR and Ritalin (less commonly prescribed due to its shorter acting effect I think), doctors have been switching some clients to other drugs like Vyvanse or other amphetamine class stimulants. However, for those who are newly diagnosed and have no history yet of which drug works for them, the methylphenidate option makes a lot of sense to start with as a prescriber because your patient won't run into the issues early on with drug availability like so many are facing already. And if it works? Even better!!

I've seen a couple posts on this forum that are even saying something to the effect of "I started on methylphenidate and within 2 weeks, my dosage was upped to 36mg and that helped." While I still personally don't think anyone of us should just go off "what worked medicinally" for another person, I do see some patterns in what people are recently getting prescribed compared to a year ago on this same site. This sort of loosely matches the news I'm hearing of amphetamine shortages. I think it's more global than only a USA issue, but I don't know!

And as for the joys of super deep dive research, actually only when I pressed send on my second message above have I ever (in my entire life) had a flash of a thought which was "I wonder why I go down the rabbit hole so very often researching things to the maximum. I wonder if it's actually ADHD related? Nah... couldn't be that." End of thought. Now that I've seen this response, I'm laughing so much actually cause I'm like "yep, 150000% you're on to something, I bet it is a somewhat common ADHD trait." But for what's it's worth, I totally agree that my life is better because of it and I'm not about to change. Just nice to be aware of things that may be more neurodivergent than neurotypical within myself.

[Trying2Focus in reply to Ampersand1]

I think the H in ADHD also stands for hyperfocused. If something really interests me I will study it ad nauseam, if it doesn’t it’s really hard for me to absorb.

[OldIndigoBlue in reply to Trying2Focus]

Oh yes.... if it's boring, the book or whatever gets set aside and I never go back to it. But yeah, if I'm interested, it IS a hyper focus situation!!! Doesn't mean the interest will LAST a long time, tho....

[Trying2Focus in reply to OldIndigoBlue]

Right! The intense interest is temporary! 😂

[OldIndigoBlue in reply to Ampersand1]

This made me laugh!! "Nah, couldn't be that....."...... LOL!

[Hominid711]

So true, all of it. Immense curiosity followed by - snap! - total shutdown of interest once it reaches a certain "molecular" level.

I have an older sister - fittingly a botanist - who unfortunately only STARTS getting interested at that level so she has this tendency to take an hour to answer a simple yes/no question which makes me exasperated to the point all I want to do is scream. Instead I barely hold on to myself, in fear of conflict, of her ferocious defence and the whole thing needlessly becoming a slanging match over what we said or did to each other when we were 8 and 10. I have to say I admire her for not being resentful whereas I can smoulder for a good while.

[OldIndigoBlue in reply to Hominid711]

I am not making a statement here but I just watched a YouTube by Patrick Teahan, LICSW named "8 Types of Sibling Issues from Childhood Trauma".... I don't know if you or other folks here have CPTSD (Complex/Childhood PTSD), but he also discusses ADHD on his channel. This particular talk helped me identify and look at my relationship with my only sibling, but also gave me some insight into my 3 sons and their relationships with one another. My undiagnosed ADHD definitely caused some trauma in my sons, so I see a multi-generational effect. Couple that with CPTSD and well, it's an interesting ride.... I'm so glad my brother and I (both in our 70's now) have been able to salvage a friendship because it was often adversarial in earlier years. I also believe he is undiagnosed ADHD, just not the hyper type like me.

[Hominid711 in reply to OldIndigoBlue]

Thanks OldIndigoBlue, I will check it out.