Hearing aids

[Mickyb123]

I have a Neuroma with associated hearing loss, I am on a watch and wait rather than any treatment at the moment at St George’s.

What are other folks thoughts on use of hearing aids with a neuroma, is it likely to make any difference?

[Kobegeorge]

HiI’m also on watch and wait coming up for third MRI in February.

I’m due to go for a hearing aid fitting next week

Ido t really know how I feel about it to be truthful

I have got quite a lot of hearing loss on the side where the AN is but will try anything to help this awful feeling I’m my ear which is that it needs to pop and blocked but don’t know if that’s just hearing loss

I always have pain in that ear and I’m starting to get tingling in my face again don’t know if it’s to do with the AN

Kim

Will let you know how I get on

[Kristyll in reply to Kobegeorge]

I don’t know or have not heard of any contradiction I know people on watch and wait who have hearing aid devices

[Margyr in reply to Kobegeorge]

My 3 mri coming up in April mine is small 3.5 by 4.6 80% of hearing gone in ear the noise is the worse abs stress makes it worse I have noticed

[flappers]

Hi Micky, I’m on watch and wait for a 17mm AN, and have screaming tinnitus and hearing loss in that one side only. I have an NHS hearing aid which has a tinnitus programme via Signia app and it does help a fair bit. It’s worth trying, for sure! I have also just started a lip reading course, which turns out to be quite a lot of fun! Good luck on your AN journey, I’d say give the hearing aid a try. Lin

[Happy-Singer]

Hi, I have just had gamma knife surgery for my AN almost 2 weeks ago. My dizziness symptoms have got worse my hearing used to feel like I was underwater and needed popping however now my hearing had virtually gone in the right ear although still have tinnitus and headaches. I am waiting to see how the treatment turns out, as this will take time to see if it has worked, possibility may come back to pre op hearing.

I might consider cochlea implant if possible. AN's can cause facial droop but mine appears to be OK at mo, however I do feel my eye droops a little. I can definitely notice it on fotos.

I am in the North East of England.

[Margyr in reply to Happy-Singer]

I hope you feelBetter soon it’s the worse thing

[SeveK]

Hi Micky,I’ve just had my first MRI today and am waiting on my initial diagnosis. I had profound hearing loss in my left ear which was quite sudden and am almost completely deaf. While I am waiting I wa referred to ENT at Cromer hospital and was fitted last week with Bi Cross hearing aids on the NHS. Basically the hearing aid on my left side acts as a Bluetooth microphone which is picked up and played in my right ear. Whilst I still cannot get the direction of the sound it does ensure that I am in effect hearing on my left side. The negative is that my right ear now has so much sound coming in that I can get overwhelmed, especially in social groups. Hope this helps.

[Mickyb123]

Thank you for the replies, I will persevere

[Margyr]

Hi I’ve had 3rd mri my AN is not after growing but 80%of hearing in left ear is gone it’s the pressure in ear drives me mad it’s like blowing up balloon and leaving it go

[Gardener21]

Hello, I had a hearing aid for about 6 months before I had an operation to debulk my neuroma. It helped slightly but not to the extent I thought. After the op I’m now totally deaf in my right ear, a consequence I knew, but hasn’t affected me too much as my hearing was very poor in that ear anyway..

[Margyr in reply to Gardener21]

Have you still noise in ear?