Question related to Recovery - Acoustic Neuroma ...

Acoustic Neuroma Support

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Question related to Recovery

Frooti profile image
9 Replies

Hi All,

I had Acoustic Neuroma of 3.4 cm big. I got operated last year in October. After the Operation everything is fine, it took time to recover. But, I am not completely recovered. My face and my smile isn't back. It's been more than a year and I am still hoping that it gets better. My physio said that it won't recover now, but I am still hoping for a miracle. Also my right eye doesn't generate tears and I can't move my right eyebrow. Can anyone suggest me of anything, I would be very grateful. Thank you 😊

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Frooti
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9 Replies
Wounded101 profile image
Wounded101

Hello Frooti, I was also in this same situation - I spoke to my doctor and referred me to a clinical psychologist where we discussed potential options. It took a couple of sessions and research which led me to decide in having a cross facial nerve grafting surgery.

Its still not perfect but it has helped and made some difference with the smile.

All the best.

Frooti profile image
Frooti in reply to Wounded101

Thank you for your suggestion, but I don't fancy another surgery. 😟

Kkk7 profile image
Kkk7 in reply to Wounded101

Hello

Mine AN size was 3.4 removed in 2015 still now I don't have tears in that eye always using eye drops still pain in ear & eye on n off

Kristyll profile image
Kristyll

You can have physio, nerve transplant or leave it longer as mine took just over two years. Good luck x

Jmerlin profile image
Jmerlin

Hi there. I also had no tears or taste in the affected side after surgery. I am now 5 years post op and have just started to cry a bit and taste some, so don’t give up hope on improving. It is a slow business. Have you taken a second physio opinion on your face? I would continue any relevant excersises if possible for you to give yourself the best chance long term. Good luck!

Frooti profile image
Frooti in reply to Jmerlin

Thank you 😊

I will continue my exercises.. and be positive.

keithzx12r profile image
keithzx12r

Sad to say my opinion for the removal of three man's was in 1987. It took almost a year before I could close my left eye. I still have facial palsy and no bearing that side plus other problems. I am sure surgery methods have improved now with less after effects and can only wish you well. Chin up!!

Jlcaligirl profile image
Jlcaligirl

Hello.. Happy to hear your operation went well. Hoping you will be in full recovery soon. My Question is seeing that you had a large tumor what were your symptoms

Frooti profile image
Frooti in reply to Jlcaligirl

Hi,

Thank you for your response. Before the operation I had no sensation on the affected side, I was losing my balance and my hearing was almost lost.

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