Complete loss of hearing in 2 days. - Acoustic Neuroma ...

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Complete loss of hearing in 2 days.

wwoodward49 profile image
12 Replies

I have been complaining of hearing blood whooshing in my right ear for some time now. My AN at the time of my last MRI in October of last year was 7mm. Over this past weekend I woke up in the night on Saturday and had lost most of the hearing in my right ear (the side of my AN), it seemed to come back on Sunday after I had been up for a few hours. On Sunday night I lost it again and so far I still have no hearing on my right side. My ENT has been on vacation but I am seeing him on Thursday at 1:00.

My question is: has anyone had sudden hearing loss with their AN? It seems as though it went way too fast considering the relatively small size of my tumor and I am really scared that there might be something else causing this.

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wwoodward49 profile image
wwoodward49
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12 Replies
Kristyll profile image
Kristyll

My AN was removed many years ago and last year I got a sudden hearin loss obviously in my other ear. However luckily it returned within a few days. I also have Tinnitus

wwoodward49 profile image
wwoodward49 in reply to Kristyll

Thanks Kristyll,

Glad to hear your's came back.

Kkk7 profile image
Kkk7 in reply to Kristyll

Hello

When your AN was removed mine was removed in 2015 September always scared if I loss heraing other side last mri done 2.5yr ago soon next MRI is due on n off pain on AN side also tingling tongue sometimes. Due you still do MRI regularly cold weather make it worst hoping for all good.

Delgirl1 profile image
Delgirl1 in reply to Kristyll

I have A.N deafness in my right ear and am also deaf in my left, which came on suddenly and has never returned. Cochlear implant not viable.Does any one live with total deafness. I am 83 this year.

whiteleye profile image
whiteleye

I had a sudden loss of hearing a few months ago. I had self-diagnosed myself with a plugged tube leading from the middle ear to the throat on the basis that I could not "pop" that ear. My primary physician agreed with my diagnosis. When I did not improve, I went to ENT who said I could not "pop" ear bc I could not hear at all on that side (auditory testing). MRI revealed a 10mm acoustic neuroma. The hearing loss was acute, not gradual.

wwoodward49 profile image
wwoodward49 in reply to whiteleye

Thanks for letting me know whiteleye.

drdeanbellavia profile image
drdeanbellavia

wwoodward49:

I reiterate what I posted for you the last time.

Your AN is still small and sounds like the initial stages of the usual AN symptoms, which will increase as your AN increases in size. One thing you need to be aware of is where the AN is located. If located OUTSIDE of the bony vestibule that the 8th cranial nerve and blood supply flows through to the inner ear it is not timely critical.

But, if the AN is located INSIDE that bony vestibule (sometimes called a vestibular schwannoma) you need to dealt with it immediately before it expands, cutting off the blood supply and innervation to the inner ear. I had similar symptoms to yours for about a year (especially after eating or wine or exercising) and then within a month I went from perfect hearing in my AM ear to almost none, with the usual onset of full blown AN symptoms.

I wish I was as lucky as you in finding out about an AN in its initial stages, but for me it was too late.

You need to find out where the AN is located, and fast.

Dean

wwoodward49 profile image
wwoodward49

Thank you Dean.

6625 profile image
6625

Hi my hearing deteriated before I was diagnosed with my AN..which was 28mm I had surgery to debulk it and was told I would lose hearing which I did it was hard at first but learning to live with it now 3 years on

Kristyll profile image
Kristyll

I had sudden hearing loss for eight days many years after my op, in my good ear. I blamed some type of tinnitus as when it returned Iwas fine

Minnow1 profile image
Minnow1

Hi i lost hearing gradualy but didnt notice it , had some tests when i did notice and was gradual.

Have had operation now after finding tumor 32mm but lost hearing and ballance nerve in same side. Have had other problems but loosing hearing in one side is tricky but you can learn to live with it ;)

Swooshing sound hasnt stopped for me and tinnitus keeps on getting on.

But no matter what , happy its gone and trying to get on with my life and still trying to get license back.

Gives me something to work towards :).

Head up and stay possitive :)

designer8 profile image
designer8

Hi there - I'm not sure if it's been mentioned in any of the other replies, but it might be a cochlear neuroma (intralabyrinthine schwannoma, which are even more rarer than an AN, which are already rare)). My hearing went overnight and the tinnitus started straight away too - January 2004. My first ENT didn't pick up that it was a CN, and thought it was an AN, but my new (and better) ENT looked for it straight away in the cochlear because I went deaf so quickly, and developed tinnitus straight away too. My neurosurgeon, whom I saw today re my upcoming surgery for removal, said there was no real difference in removing either an AN or CN, it's just some people with an AN opt to have a cochlear implant 'installed', while for those of us with a CN, it can't be done (and we have the glory of feeling so much more unique :/ ). Best of luck with yours! I can't wait to have it out!!!

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