Medical professionals disagree

[Lryan]

I am just wondering if anyone had ever had any issues with their GP.

When I saw the ent surgeon he told me the tumor was 2.4cm and he showed me on the MRI where it was, highlighting the tumor and how is pushing in the brain stem (still quite far from virtual structure). He told me I had two options, six weeks of radiation (likely have to have surgery anyway) or surgery. After a lot of research and conversation with the ent surgeon office, because radiation is not as effective in large tumors (I was in fact only 1mm away from not being eligible for radiation. I decided to go with the surgery.

My ent and neurosurgeon opted for a translabrynthine approach. They told me this approach meant they didn't have yo retract the brain.

Scariest time of my life. Thankfully my sister lives where I had my surgery. I live quite far from my specialist and I needed my husband to stay home with my two younger children... just in case.

About two weeks before I left for surgery. I had an appointment with my gp to get some prescriptions filled before I left and get a note for work. My gp told me that this is not a brain tumor and that is was no where near the brainstem and that they were only taking it out because I asked them to.

I of course immediately called my ent surgeons office and asked if this surgery needed to happen or if they were just doing it because I asked. She said no. It is a brain tumor. And mine needed to go.

I am just wondering if anyone has had there doctors disagree like this.

[Wayne4211]

I'd be looking for a new GP

[anan88]

I'd certainly change my GP and get one who's less arrogant, less irresponsible and more understanding of the real facts and their own ignorance. You'll be absolutely fine, but get away from this eejit!

[drdeanbellavia]

GP's are usually not the best source of anything except "what's going around the neighborhood that they can give you a drug for". An ENT specialist is probably the best source of factual information in the case of an AN.

I don't understand, it seems that your ENT does brain surgery, something a brain surgeon specialist does; so why is your ENT doing the surgery? Also, an ENT probably has a colleague that he/she prefers and refers to. With the use of the Gamma Knife these surgeons are getting less and less work; so be careful that you are not a "number" instead of a patient.

You need to see another brain surgeon who uses Gamma Knife to get the full picture. This ENT/Surgeon might not have your best interest in mind, you may need to look elsewhere.

Another thing about that "She said no. It is a brain tumor. And mine needed to go." Did you speak to the ENT or to his/her secretary/receptionist? Some practices are so disorganized that they allow the secretary/receptionist tell the patient what needs to be done "as usual"; this is the sign of a disorganized practice.

Bottom line, if the ENT is doing the brain surgery and is disorganizes then find a new ENT. Ask your GP or look up another ENT on line to get a better picture of your situation. Also find a Gamma knife surgeon/center and get their point of view of whether you can use it or not with your 1mm over the limit AN; measurements are not that accurate.

[Lryan in reply to drdeanbellavia]

First I saw a ent. He referred me to an ent surgeon. I also saw a neurosurgeon. They both agreed that surgery was the best option.

[Highwycombe]

What about jemma knife

[Highwycombe]

Your under the specialist your gp is talking rubbish