I have been diagnosed with this tumour. It is a small one currently sized at 1.2cms. I was referred to my ENT at the local hospital, which is located in a small town. On being informed of my diagnosis I was told my treatment would be carried out within this hospital. I requested information about regional centers and radiotherapy treatments. I was told, if I opted for radiotherapy I would be treated else where, but any surgery would be carried out in the local hospital.
This information was given as I was showing concern of the experience of the local consultants, dealing with this condition. (One highly respected neuro consultant in the area, has shown an operation in which he performed. He, talked of taking out the whole of the tumour, and a statement that all patients suffered facial damage. Some of which improved in two years.) I was told the surgeon I was being referred too was very experienced, (I can't even find his name listed on the hospital website!) and that i shouldn't worry. Questions regarding how many patients with this condition he had treated were deflected. I was being told, I would not be able to be referred to a regional center for this condition.
Following this appointment, I went to speak to my gp. I was told, I had no choice in where I would be treated, that it was in the hands of the ENT department and I should speak to them. But was also warned not to alinenate them as this would be detrimental to me.
My question is, who do I go to in order to choose my treatment in a well established facility for this condition. Do I really have no choice once I have been seen by one hospital, regardless of their lack of specialist equipment?