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Acoustic Neuroma Support

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First Post.

JimBeckenham profile image
12 Replies

This is my first post.Last year I had problems with my left ear,My GP referred me to Blackheath Hospital for a MRI scan.As a result of this I was told iI have an acoustic neuroma(16mm)This was December 2017.Tomorrow I attend Guys Hospital,ENT dept.I'm apprehensive, but it will be good to know what the plan is.

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JimBeckenham profile image
JimBeckenham
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12 Replies
Debra1963 profile image
Debra1963

Sorry to hear your news main thing is to stay calm. Once you have had your appointment you will have all the information you need to help you through the next steps. Good luck with the appointment - let us know how you get on.

JimBeckenham profile image
JimBeckenham in reply to Debra1963

Thanks for your support.

JimBeckenham profile image
JimBeckenham in reply to JimBeckenham

I went to Guys Hospital today to see Professor Dan Jiang,he said I would have an MRI scan in May,then again in May 2019.I feel now I can make some plans in my lifer good outcome.

bypass profile image
bypass

Hi Jim, the good news is that there is no need to panic. There are a range of treatments and indeed you may never need treatment. Take a look at this web-site for good patient centric information anworld.com/ If nothing else it will enable you to ask your consultant meaningful questions and give you a better chance of understanding the answers. Good luck, Chris

JimBeckenham profile image
JimBeckenham in reply to bypass

Thank you Chris.

JimBeckenham profile image
JimBeckenham in reply to bypass

Well Chris,you were right,I will have as MRI scan in May then again in May 2019.Professor Jiang was extremely helpful,I was able to obtain considerable information.

bypass profile image
bypass in reply to JimBeckenham

Excellent news for you then - He obviously sees no immediate need for action. Good luck to you Jim

JimBeckenham profile image
JimBeckenham in reply to bypass

Thank you.

esbjorn profile image
esbjorn

Hi Jim

I have also recently been diagnosed with AN.

I found BANA very, very helpful - see bana-uk.com. British Acoustic Neuroma Association is a charity set up here in the UK. Since I joined, I have spoken to several people at BANA, they have all been very supportive, informative and kind.

Take care, all best wishes

JimBeckenham profile image
JimBeckenham in reply to esbjorn

Thank you Esbjorn,I’ll look them up.

6625 profile image
6625

I underwent surgery to debulk my acoustic neuroma nearly 2 years agoi ound BANA helpful to i was really scared,hope you get sorted jim

JimBeckenham profile image
JimBeckenham in reply to 6625

Thanks.

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