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ABDA

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Otezla

I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A...

I have had Behcets disease my whole life but they couldn't figure it out until I...

PankieGirl

•1 month ago

1 Reply

Behçet's Disease and remission

Among the Behçet's patients, who show signs of major and minor disease, is there a long-term remission?

Among the Behçet's patients, who show signs of major and minor disease, is there...

Sunset

•2 years ago

3 Replies

Exhausted and done.

It's bad enough I can no longer drive and have to find transportation. But now I'm expected to find and pay for transportation to a big hospital. I have...

It's bad enough I can no longer drive and have to find transportation. But now I...

TurtleWings

•2 years ago

1 Reply

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FMF in child and colchicine

My 10 year old son has been diagnosed with FMF and prescribed with Colchicine for long term use. I am devastated and would like some help on others that have...

My 10 year old son has been diagnosed with FMF and prescribed with Colchicine fo...

Nurgulali

•2 years ago

5 Replies

Skin issues?

Has anyone had any skin issues? If so what are they like? I have cystic like acne and it has been going on for awhile. It first showed up in my armpits and...

Has anyone had any skin issues? If so what are they like? I have cystic like acn...

Cool_blue

•3 years ago

1 Reply

Colchicine with Pfizer shot to mitigate myocarditis risk.

Does anyone know if it’s ok to take colchicine before or after the Covid vaccine? Are there any contraindications? Thanks.

Does anyone know if it’s ok to take colchicine before or after the Covid vaccine...

Enasxristos

•3 years ago

3 Replies

Skin breakouts and hair loss

I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitriptyline, folic acid, leflunomide,keppra, and Infliximab (every 4 weeks, 900 mg). I...

I am 19 yrs. old and I have Behcet’s. I am taking dapsone, colchicine, amitripty...

Cool_blue

•3 years ago

2 Replies

How to get a drip of infliximab/remicade in US for foreigners?

Hello everyone, I'm new here. My name is Sara, I'm italian and I cure my bechet's disease with a 150ml infliximab/remicade drip once every 9 weeks. I'm now...

Hello everyone, I'm new here. My name is Sara, I'm italian and I cure my bechet'...

Sara20

•3 years ago

2 Replies

Tratamento para crohn

Boa noite. Fui diagnosticado com crohn, tenho na receita messlazina e predinisona. Ainda não tenho o messlazina pq é muito caro, o predinisona eu consegui...

Boa noite. Fui diagnosticado com crohn, tenho na receita messlazina e prediniso...

Wema7

•4 years ago

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Blood filled genital ulcers

Hi guys Lately my ulcers have cracked open and bled. Does anyone else have this problem? Usually my ulcers will be painful obviously but lately they’ve been...

Hi guys Lately my ulcers have cracked open and bled. Does anyone else have this ...

Niki318

•4 years ago

1 Reply

EAR/TMJ Pain

I ran out of Azathioprine on Friday 5/22/20. Saturday, I started to get nauseated and just didn't feel myself. On Sunday, my ears were ringing, my teeth hurt,...

I ran out of Azathioprine on Friday 5/22/20. Saturday, I started to get nauseate...

Rooki

•4 years ago

2 Replies

NOTHING was Helping My FLARES Until ;

I tried many medications. Currently on an IV remicade every 6 weeks! The ONLY thing that has helped my Inflammation, my body pain, my severe fatigue, reflux,...

I tried many medications. Currently on an IV remicade every 6 weeks! The ONLY th...

Ang4upmich

•4 years ago

1 Reply

Anti Inflammatory Diet

Anyone have an experience following the anti inflammatory protocol? After my last horrific flare up I've decided to try it on for three months and see how my...

Anyone have an experience following the anti inflammatory protocol? After my las...

MoniqueKahili

•4 years ago

2 Replies

Serious Behcets or something Else?

Who else gets monthly flares.? Mine last for 3 weeks changing places but always in elbows /arms and knees /legs . The pain burn 1/2 way down each leg. Its...

Who else gets monthly flares.? Mine last for 3 weeks changing places but always ...

Ang4upmich

•4 years ago

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Feeling Im losing Hope :(

So I've been sick for many years with inflammatory RA , Osteo, Behcet's, connective tissuue disease & others. It has gotten worse. These past 2 years are so...

So I've been sick for many years with inflammatory RA , Osteo, Behcet's, connec...

Ang4upmich

•4 years ago

2 Replies

Anyone else on IV Remicade?

Hi. Anyone else using IV Remicade for behcet's ??? If so, How is it working for U? I started it now month 3 and it has helped my flares, I wish it completely...

Hi. Anyone else using IV Remicade for behcet's ??? If so, How is it working for ...

Ang4upmich

•5 years ago

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Methotrexate side effect?

I'm having the most unbearable pain in my legs, not just in the joints. Heat compresses doing nothing to relieve it, painkillers neither. I think it is the...

I'm having the most unbearable pain in my legs, not just in the joints. Heat com...

Zuzu798

•5 years ago

4 Replies

New to thw ABDA community

Hi all. I'm new to this community but have been in the Behcets UK community for some time. I'm from Northern California and live in a rural area. There is...

Hi all. I'm new to this community but have been in the Behcets UK community for ...

Guna1003

•5 years ago

2 Replies

Wanting to Heal my body

To exercise leaves me in tremendous pain. A pain of every joint in my body hurting. This keeps me home. Somedays I can walk, others I cannot. So Ive taken...

To exercise leaves me in tremendous pain. A pain of every joint in my body hurti...

Ang4upmich

•5 years ago

1 Reply

HAPPY HOLIDAY'S

Be safe and Happy Holiday's to All, Avoid the food group's that bring up your flares, my personal irritants are Potato's, Walnut's and Preserved or Pickled...

Be safe and Happy Holiday's to All, Avoid the food group's that bring up your fl...

Zuzu798

•5 years ago

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Gratitude

During my first severe flare of anterior & posterior uveitis and gi ulcerative colitis I was I at the hospital of the University of Pennsylvania. Dr Hasan...

During my first severe flare of anterior & posterior uveitis and gi ulcerative c...

Expectthebest

•5 years ago

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Needing HelpI

I was put back in diapers by my doctor 3 years ago for bedwetting & now I am totally incontinent. I had a caregiver for about a year-but she is now retired....

I was put back in diapers by my doctor 3 years ago for bedwetting & now I am tot...

Diaperboy

•6 years ago

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Joint Pain

I woke this morning with the most unbearable pain in every joint I have. Feels like I have been to war. Suffering to type this even as all the joints in my...

I woke this morning with the most unbearable pain in every joint I have. Feels l...

Zuzu798

•6 years ago

3 Replies

Familial Mediterranean Fever (FMF)

Hi I've been taking Colchicine now since about 40 years ago. Today im feeling pain in my feet and hands. The orthopedic I saw today is kind of blaming it on...

Hi I've been taking Colchicine now since about 40 years ago. Today im feeling pa...

Alinek

•7 years ago

2 Replies

Introduction and free treatment offer

Hello, I am Dr. Ashraf Hanna, director of pain management at the Florida Spine Institute in Clearwater, Florida. I want to help treat your Behcet's disease. I...

Hello, I am Dr. Ashraf Hanna, director of pain management at the Florida Spine I...

Dr_Ashraf_Hanna

•7 years ago

2 Replies

Behcets and Tattoos

Hi, I was diagnosed years ago with behcets but have been very lucky since not to have too many flair ups. I really want to get a tattoo but am not sure if this...

Hi, I was diagnosed years ago with behcets but have been very lucky since not to...

emclem85

•8 years ago

2 Replies

Sorry it's long, but I need help!

So, I have a few questions. I've been sick since I can remember. It started with joint pain and swelling. When I was 12, I was diagnosed with epilepsy. Then...

So, I have a few questions. I've been sick since I can remember. It started with...

Anonymous13

•8 years ago

7 Replies

Joint injuries

Does anyone know if joint injuries occur easier in Behcets patients. My daughter seems to get pretty significant injuries to her joints ie;...

Does anyone know if joint injuries occur easier in Behcets patients. My daughter...

Channasmom

•8 years ago

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Gastroparesis and Behcets

Hi everyone. I have been having some trouble lately, first my blood work keeps showing up with low HGB, HCT and Iron Serum. Also have had positive occult...

Hi everyone. I have been having some trouble lately, first my blood work keeps ...

ABon2001

•8 years ago

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Cyclophosphamide & Behcets

Hi Everyone I have neuro-behcets and after trying many many other medications including steroids, Colchicine, Imuran, Methotrexate and Humira, I am about to...

Hi Everyone I have neuro-behcets and after trying many many other medications in...

Jamaicaemma

•8 years ago

4 Replies

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Posts - ABDA | HealthUnlocked

ABDA

Otezla

Behçet's Disease and remission

Exhausted and done.

FMF in child and colchicine

Skin issues?

Colchicine with Pfizer shot to mitigate myocarditis risk.

Skin breakouts and hair loss

How to get a drip of infliximab/remicade in US for foreigners?

Tratamento para crohn

Blood filled genital ulcers

EAR/TMJ Pain

NOTHING was Helping My FLARES Until ;

Anti Inflammatory Diet

Serious Behcets or something Else?

Feeling Im losing Hope :(

Anyone else on IV Remicade?

Methotrexate side effect?

New to thw ABDA community

Wanting to Heal my body

HAPPY HOLIDAY'S

Gratitude

Needing HelpI

Joint Pain

Familial Mediterranean Fever (FMF)

Introduction and free treatment offer

Behcets and Tattoos

Sorry it's long, but I need help!

Joint injuries

Gastroparesis and Behcets

Cyclophosphamide & Behcets

Search posts

Latest poll

How long ago were you diagnosed for Behcet's Disease?

Topics

Archive