Xeroderma Pigmentosum UK | HealthUnlocked

Xeroderma Pigmentosum UK

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XP VISOR WANTED TO PURCHASE URGENTLY

Hello , im looking to purchase an XP visor for my friends 11 year old and having...

What are the tests that confirms the disease XP?

Sorry if this is a basic question- I am new here

Hi people, Can someone suggest me a doctor in Manchester for XP?

Who can give online consultation?

Blue badge update

https://www.telegraph.co.uk/news/2019/08/29/parking-permits-extended-people-hidd...

XPC kid and school

My child will be joining the school next semester, through my search I have read...

About me

I am a university student diagnosed with Xeroderma Pigmentosum (XP).

xeroderma possibile cura

Buongiorno , ho letto di un esperimento per una possibile cura tramite farmaco p...

Things may be changing for the better for Blue badge applications.

https://www.gov.uk/government/publications/blue-badge-disabled-parking-scheme-el...

Thoughts on UVR face protection

Did anyone see BBC2 'inventing the impossible' Big Life Fix ? Id be interested t...
Administrator

can someone help know what is this ?

it's not painful but it make my eyes seem puffy and multi-colored purple yellow ...

XPD - neurological presentation

Hi all. I’m Emily my son Louis is 11 years old and has XPD, with neurological pr...

XP: Wrap around sunglasses

Hi I hope that this information is useful to others. I managed to find an excel...

Assil XPC

Hello , My daughter Assil 3 years old , has recently diagnosed with XPC . Rega...

XP and Disability Living Allowance

Hi We are a family in West Yorkshire. My son has XP. He is now 14. We used to re...

PIP appeals / Tribunal

Hi there im looking for some advise on PIP appeals, I was a pip claimant and was...

Safe Adapted Accommodation in Kent

Good News - We have secured another adapted site which will be ready for use wit...

Surviving Summer - Survival Guide?

Like all parents of XP children and XP patients the world over, our thoughts are...

Feedback from - UK Gentic Disorders Leadership Symposium

Some useful links following attending the UK Gentic Disorders Leadership Symposi...

Hat

After 23 years of making James a protective hat I made one following the video...

Lights

James went to ENT yesterday. The examination light was an above light and was v...

XP In London

Hey Is there any XP people in london? If so what do you particularly like do...

Xeroderma pigmentosum from tunisia

Hello, i'm manel from tunisia i have 1 sister and 1 brother with XP-C i'm also m...

XP Siblings - Reading Reference.

A friend send me this link to a book written for parents to help with issues aro...

Welcome to All

My name is Waqas and I have XP-C and im 25 years old!

Welcome to all!

Hi everyone, Welcome to the launch of the Xeroderma Pigmentosum (XP) community ...
Administrator

4 top ways to boost the visibility of your Xeroderma Pigmentosum posts

Hello everyone. I'm Hugo, Member Relations Manager at HealthUnlocked, here to sh...

Introduce yourself to the community

We’re excited about what you can go on to do for those children and their famili...
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About us

We are the only designated national service for xeroderma pigmentosum in the UK. We diagnose and treat adults ...

Read more about Xeroderma Pigmentosum UK
0207 188 6339