XPD - neurological presentation

[EmilyRobertshaw]

Hi all.

I’m Emily my son Louis is 11 years old and has XPD, with neurological problems including hearing loss, learning difficulties etc...

I’m really keen to speak or hear from anyone with a child/older with similar subtype including neurological defects and how your journey is presenting.

My email is [e-mail] if anyone would like to make contact of relevant.

Thank you it has been interesting reading these posts.

[Dalkeith40]

Im debbie i have XPF have u ever been to any camps or conferences I went to Xp conference in london It provided me with alot of information, i had the pleasure to meet others who had XP. Im 4l

[EmilyRobertshaw in reply to Dalkeith40]

Hi Debbie thanks for your reply. I went to camp years ago with Louis. The international event sounded really interesting I’ve been sent the links to the info from the days so will look forward to hearing more.

[Dalkeith40 in reply to EmilyRobertshaw]

There are stuff on you tube about conferernce take a look

[Moseadna]

Hi Emily! I sent you an email! My son also has XP-D.