Thoughts on UVR face protection - Xeroderma Pigment...

Xeroderma Pigmentosum UK

Thoughts on UVR face protection

Luna2010 profile image
Luna2010Administrator
2 Replies

Did anyone see BBC2 'inventing the impossible' Big Life Fix ? Id be interested to know your thoughts on what they invented to protect someones face from ultraviolet radiation.

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Luna2010 profile image
Luna2010
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James-XPD profile image
James-XPD

I think the idea of a second skin is something that may happen in the future. Technology needs to improve to make such a mask practical. Concerns regarding heat, protecting the mouth, and how easy this would be to remove when you went indoors to eat for example. People do stare at the visor but I'm pretty sure people would stare when you suddenly peel off your face.

What would you do with it when you have removed it. Not easy to carry a head in your bag. Talking appeared to be muffled and not sure how well you would hear. Hearing aid users would find their aids would whistle I would think.

The cost of this mask I would think would price it out of most people budget. Children would need a re mould to often as they grow.

Thinking of James I can't imagine his cassanova personality, hidden behind a mask that has no facial expression, and no ability for anyone to have meaningful eye contact.

Finally not sure I would have wanted a replica of him hanging on the banister.

Definitely something for the future.

Anneeoakly profile image
Anneeoakly

Hi Luna 2010 I don’t have condone when reading thought of the spray in bandaid skin-like product. I hope in the near future they will develop this kind of thing for you. Maybe if you spray it on (clear) and just wash off at night it could give improvement you deserve it

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