Welcome to the launch of the Xeroderma Pigmentosum (XP) community page started by the UK National XP Service. Firstly, this community is for you and your families and friends to talk about XP. We are asked many times to what others with XP do in various situations. We believe you are the best people to respond to these questions. We hope you agree.
This community page is a way for you to network with other people affected with XP right across the world. As many of you know, some people with XP can feel very isolated due to the nature and management of the condition. Through this community we hope you will find global support and share experiences of how to cope with day to day living. The idea with this community is to have a non-judgemental platform where we learn from each other.
We will contact many of you to help us make this a success. Please share the link to this page with anyone affected by XP who would like to contribute.
To get the ball rolling, please tell others about your experience of Xeroderma Pigmentosum.
P.S. Do you like our logo for the community page?