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Xeroderma Pigmentosum UK

Surviving Summer - Survival Guide?

Like all parents of XP children and XP patients the world over, our thoughts are starting to turn to the difficult (near impossible for hotter region XP friends), summer months.

So....I thought I might write a little blog about our sort of Surviving Summer Tips and thought it would be great if we all shared our top tips for this Survival Guide.

So we would love to hear your `go to` activities and ingenious tips to help keep your little ones safe, but still stimulated, content and happy over the summer. This might include indoor activities, home play ideas, keeping cool tips, after dark ideas – you name it, let us have it and we will compile and share to all.

And of course its the XP adults as well as our children that face difficulties over the summer, so we would love to hear from you too.

Please Comment, or email you ideas to support@teddingtontrust.com