Thought I would just share this. Today we received a letter.....

[John_Mills]

.... from a lovely lady asking for a copy of the newsletter, she is 57 years old she was diagnosed with WG in 2009. She also said that her sister died in 2002 aged 38 yrs of WG, she was diagnosed in 1995. This lady had so many questions she wanted to ask.....Does anyone know of other people who have relatives who have Vasculitis?

[Meekle]

i always thought that WG was not heridatary or communicable or otherwise passed about, that we WG patients were just "lucky" to get it!!

[Hidden]

Statistically it is possible that this is a chance occourence. Dr Richard Watts at the AGM suggested a figure of just 0.5 x more likely in a generation (I think?). However, I do know there are other related vasculitis patients both here and in the US. The point here is that the disease is triggered due to a genetic propensity rather than hereditary condition.

[Dbis22]

I was diagnosed with WG in 1990. Maybe 20 years earlier my maternal aunt, we believe, died from some complication of WG but we are unable to determine exactly what. What we do know is that she had 'saddle nose'. Also, my mother's side of the family have a history of immune system related problems. My mother has Vitiligo as did her father. My mother also suffered from Thyroid disease.

[pwc51]

I have WG, diagnosed in July 2009. My mother had Giant Cell Arteritis - sadly she did not survive a heart bypass operation, most probably related to the high dose steriods she was on at the time.