Vasculitis and Marijuana Oil: Have any of you... - Vasculitis UK

Vasculitis UK

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Vasculitis and Marijuana Oil

jrbeutin profile image
10 Replies

Have any of you considered using marijuana oil to treat your vasculitis? My dad just started but he's unsure of dosing. He's only using 2 MG right now but would like to see if anyone has any suggestions. Thanks in advance! Be well!

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jrbeutin
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10 Replies
Mgtrob profile image
Mgtrob

I have done some research re the use of marijuana and most of it was positive however, I do not know how the body would react to it when you are on lots of various meds. There is a lady who posted on this site about her experiences of using it and they were positive. I put a f/b request to her as I wanted to discuss it but she never got back to me. I hope you have more success. Good Luck.

burnedsyn profile image
burnedsyn

Hello jrbeutin,

first of all sorry for my bad english I'm from Belgium and my only english teacher was internet and some techies books.

so that being said, my mother in law has the wegener syndrom and with this she got vasculitis and I'm in the begining of my search to help her with some oil. but i have some question maybe you can help me.

1) have you any idea about wich strain to choose to grow.

2) did your father eat the oil or vaporize it ?

3)did your father see some benefit to do this ? and if yes could you explain a little please.

4) if you do not grow your plant yourself could you lead me to a good already made oil ?

So i wish you the best for you and your family.

Thank you to take the time to read me.

Have a very nice futur :D

Tim

jrbeutin profile image
jrbeutin in reply toburnedsyn

Sorry Tim! I'm looking for the same info as you! Good luck to you! Be well!

Adnan17 profile image
Adnan17 in reply toburnedsyn

My father was diagnosed by wegener vaskulitis can someone tell me where can i buy the oil in my country there is no place to buy it im from bosnia and hercegovina

Jools52 profile image
Jools52

I started a thread about this a couple of months ago. I still trying to get my first batch as the source has so many that want it that he gives it out to his prior people fitst and I understand this.

The oil has to be high THC and not the low THC that is used for fits and the like. I have now read the personal testimony of many with stage 4 & terminal cancers to know this is no scam outfit and I can put you in touch, via Facebook, if you wish

The guy who makes it has a partner with severe crohn's and she is now off of prednisone and only now on a quarter of one tablet of azathioprine her last bloods showed no inflammatory markers and had her first solid food in 6 months

He has told me what to get in preparation for when I get some coconut oil to mix it with and 1ml syringes to use for taking it via the anus I will re read his instruction to me and get back to you

His suggestion was that I take it rectally at first then slowly build up so that I can take it orally as well as rectally I believe his starting instruction was 0.2 ml to start

The high THC obviously will make you feel high so it's important to build up slowly to avoid any unwanted side effects I smoked it up until 2003 but the super strong stuff made me vomit so I quit

Have you read up on Rick Simpson oil ?

Please do look me up on Facebook, if you use it and my name is Julian cat man Pirog on there I can introduce you to Neil and he is a great guy who had been to court because he helps people it's a crying shame that the laws of the land stop us from trying this both legally & in a supervised setting It is not cheap and I believe something like 40 a gram but a gram goes a long way I am itching to try it but when I was offered some I never had the money freely available

Good luck you can find much instruction on YouTube on how to take it but it HAS to be a decent strength THC content as I'm afraid the specially made low and non existent THC stuff will not help in out diseases

burnedsyn profile image
burnedsyn in reply toJools52

Hi jools52, happy to see you again :D you seems to in better than when we discuss prior. I'm very happy to hear that.

Yes I have read a lot also since our first talk and yes i came accross rick simpson oil recipe and method.

So a last question did you know if cbd is important as thc or not at all in this particular case.

if cbd is also important as thc is you can search for this type of strain :

Medical Mass

Royal Queen Seeds Medical Mass, hybrid between Royal Madre and Critical Mass, with 10% THC and 11% CBD.

or something like that/

See you soon

Tim

Jools52 profile image
Jools52 in reply toburnedsyn

Hi,

Sorry it's been so long but I had a good period and so made hay while the sun proverbial shone. I've had a bit of a setback recently which saw me habe two days of rigors and then coughing blood. I saw the rheumatology team who gave me a pulse of prednisolone and I am ok again, fingers crossed.

I made a mistake, I was doing well and should have left it at that but I seem to have an almost OCD element to me and I decided I wanted to detox my kidneys & so I added spirulina & chlorella. By the end of the 3rd day I had bloated out so badly that I thought I'd have to go to A&E but, thankfully, it subsided and I am ok

Right, onto your question. From the research I habe done and with the help of people who make the oil and who habe experience in the healing, you need a high THC content. There are obviously charlatans around who are trying to make a crappy product and then are spamming the decent people and it makes it difficult.

I don't know if you use Facebook but I've spoken to my friend and told him that he may have a friend request. Please message him and tell him Jools the cat man told you of him. His name is a Neil Deakin. He is a mime of great information and will be able to tell you so much more than I could by trying to remember what he has told me. His wife has Crohn's and now is pred free and only on a teeny amount of azathioprine with bloods showing normal with no inflammatory markers. The CBD will help you relax and sleep etc but it's the THC that our bodies are hard wired to grip onto where cancer and inflammation are concerned.

I had a chance to habe some but didn't have the readily available money and I refuse to draw out cash on a credit card, due to the astronomical charges.

I still very much plan to do this and have told both my GP and rheumatology team. They have not said anything to put me off. On another thing, I am also looking into HGH or human growth hormone. This is something the U.K. doesn't test nor treat for but the USA do and there is much evidence that by bringing the levels of this into a normal level ( they use the levels of someone mid 20's as a reference) that it does a great deal to aid healing and to actively avoid disease.

As you can tell, I am an experimenter and I take FULL responsibility for my own life, body and what I put into it. It's strange that none of our specialists ever even test for hormone levels. This is so bloody important and could make the difference between living a quality life or one dogged by problems and ones that could be avoided in the first place.

Anyway, sorry for going on but it would seem that the aim is for a 70% THC 30% CBD. I understand if you wish to remain anonymous and that's fine & I won't push it. My name is Julian Pirog. I was nicknamed the cat man because of boxing for my unit but now because I have 4 big Maine coon cats

Nice to hear from you and god bless you

Jools

Hi jrbeutin,

You don't say what type of Vasculitis your father has and what medication he is currently taking.

There are over 18 different variants of Vasculitis, many are potentially life threatening depending on what organs they affect. There is NO evidence to support cannabis as a treatment for Vasculitis and VUK doesn't endorse its use for that reason.

jrbeutin profile image
jrbeutin in reply to

Sorry. Vascular Vasculitis is his diagnosis, along with Lupus, diabetes and RA. He is currently taking Espriet, prednisone and Rotuxin. The last two are specifically for inflammation. His thoughts are that marijuana oil is very successful in treating inflammation issues so maybe it would help between treatments. He does the chemo Rotuxin, every 6 months. Living in the US we have the opportunity to purchase medical marijuana if you qualify, which he does. He is just struggling to find information on optimal dosing. Thank you in advance for any advice or help and best wishes on your own health issues.

jrbeutin profile image
jrbeutin

Sorry. Vascular Vasculitis is his diagnosis, along with Lupus, diabetes and RA. He is currently taking Espriet, prednisone and Rotuxin. The last two are specifically for inflammation. His thoughts are that marijuana oil is very successful in treating inflammation issues so maybe it would help between treatments. He does the chemo Rotuxin, every 6 months. Living in the US we have the opportunity to purchase medical marijuana if you qualify, which he does. He is just struggling to find information on optimal dosing. Thank you in advance for any advice or help and best wishes on your own health issues.

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