Has anyone with Vasculitus experienced numbness of the head, tingling of the nose lips and tongue?

[rita-stosyth]

[magcor]

Yes.

I had these symptoms before my 2nd relapse 9 yrs ago.

I still get them from time to time, the last visit with the consultant ended up having an mri scan = no change noted.

Can I ask you why are you asking? and what does your consultant say about it.

Mine dosent seem to have any answers

[rita-stosyth in reply to magcor]

Hulo Magcor, I was diagnosed with Wegners 4 years ago, I was an inpatient when numbness in my head first started, I was told it would take a long time then it would go, unfortunately it has got worse and I get numbness and tingling in my nose lip and tongue. My consultant said it was'nt anything to do with Vascfulitus. I also have had an MRI Scan which showed up normal. I have been to physio on several occasions, am now awaiting to see an Orthopeadic Surgeon

[John_Mills Volunteer]

Hi Rita, are you asking this question because you have been diagnosed with vasculitis, if so, what type? Or is it a more general question about symptoms that you are experiencing and you wonder if they might be a symptom of vasculitis?

[LynnC]

Hi Rita, I too experience this tingling in nose,lips etc, also my feet and hands. The feeling in my nose lips etc I liken to the anaesthetic feeling after being at the dentist, perhaps this is how yours feels too. I was diagnosed with WG in June so things are still quite unsettled for me and I am not feeling too great yet, (although ANCA/ESR etc all seem to be improving). My Consultant mentioned that the tingling/numbness could be due to nerve damage and was referring me to neurology but she didn't seem too concerned about it. I am afraid, I think it is another one of those things that MAY get better or we just have to learn to put up with it! I have had 3 MRIs in last 5 months because symptoms not improving but nothing sinister showed up. If you get any other answers from your Health Care consultants I would be interested to hear them.

Good Luck

Lynn