I have saddle nose deformity and i'am now experiencing intermittent twitching under my right eye, since last week, not sure if its related to WG or just something else to deal with totally unconnected. I was diagnosed approx 13 years ago.
At present i'am not having any treatment, last Rutixmab was in May, Dr Jayne does not want me to have anymore as he is worried it will destroy my good antibodies. ( I have had many many infusions )
I also feel extreme fatigue at the moment but I do have chronic renal failure
( stage 4 ) caused by congenital abnormality and not WG.
Has anyone else experienced this please ?