Firstly, I didnt realize there was people that I could relate to and talk to as my mother came by this site and showed it to me and I think its fantastic.
In early 2010, I had a 2 month illness with symptoms such as, flu, chesty cough, headaches, pains in joints and muscles, sickness with very bad inflamation of the skin (a rash) all over my body. As I never had this before I didnt think anything of it and never got it looked into.
Then in early 2011 the same symptoms occured but this time it was far more worse. I'd never felt so much pain all over my body that after several blood tests I was reffered to the Hospital to get a diagnosis from a Hematologist, I was diagnosed with Vasculitis. I was ill for around 5 months in total and was never given any medicine to help with my illness as the Doctors said they were all unsure about the illness. I also had Neutrophenia and very low blood counts.
I felt very fatigued all the time, and I lost alot of sleep and some weight.
The only thing that got me through it was my support from my family and partner and I wanted to return to education to become a music teacher.
During this period, it was very stressfull and worrying as I couldnt work
and was worryed about my finances but this illness went and I managed to work for 3 months solid, 60 hours + a week just so that I could pay my dedts off and get ready for University.
I'd thought that was the end of it until Nov 2011 when I suffered with a chest infection, with severe flu symptons and sickness which lasted for about a month.
Which brings me to the present, again in Feb 2012 I have suffered another viral infection, sickness, fatigued, fever etc and has lasted so far 2 weeks. Blood tests reveal counts to be lower than normal but ok. I have been reffered to a Rheumatologist for a consultation for my pains in my joints, which I'm awaiting an appointment date.
Can anyone help me to understand what type of Vasculitis I have?
Are all of my other illnesses related to vasculitis?
Am I more prone to getting infections?
My medical history consists of:
2004: Epididymitis
2006: Back pain
2006: Epididymal cyst
2007: infectious diarrhoea
2008: Acute respiratory infections
2008: Infected sebaceous cyst
2009: Upper respiratory tract infection
2009: cystic acne
2009: cystic acne
2009: Upper respiratory tract infection
2009: Cervicalgia - pain in neck
2010: unknown rash
2010: Upper respiratory tract infection
2011: Upper respiratory tract infection
2011: Vasculitus
2011: Neutropenia
2011: Upper respiratory tract infection
2012: viral infection, small rash & fever
I'm aged 27 and have a strong outlook about this all but and the only thing that concerns me is if this is something now i'm going to have to deal with for the rest of my life? as I can't afford not to work and I'm missing valuable lectures and time at University, sometimes I can't work on my studying because of my illnesses.
I have read alot of other people's questions and I see alot of similar cases and symptons and its nice to know theres other poeple out there who understands what I'm going through.
I'm still unsure as to where I stand with Vasculitus. if anyone could give me advice that would be great.
Thanks for reading