Vitamin D and GPA

[ReidyWG]

Following a mail in blood sample my vitamin D level was reported as 53.2 nmol/L. (The normal range is 75-220 nmol/L.) and I've been sent supplements. My question is, has anyone else out the been asked to join the study and are there any contraindications?

Thanks in advance.

[philtw]

Hi I take both but D and calcium and I have GPA for 7 years and I have not been asked to join any study.

[zeddy54]

Hi. I've been told that a result of 50 is considered normal in UK (where I also live). However, I'm aware like you that all documented reports state the normal range to be 75 - 200. Think its because the NHS wants to save money in this cool and rain-ridden climate of ours, where the majority of people probably struggle to achieve a result of 50 due to lack of adequate sunshine.Good luck and best wishes

[ErnieP1960]

HiI’ve had GPA for about four years.

After about a year on prednisone I was sent for a precautionary bone density scan. The result was borderline and I was put on a vitamin D supplement at the 20000 dose for about a year. I now get them over the counter at the 800 - 1000 dose. I do this because being on mycophenolate I am very cautious about uv exposure.

I’ve never been asked to take part in any study. As far as I know the Vitamin D has not caused any problems.

[ludo]

Hi, I'm not on any trial but I was on Adcal D3 because I've been on prednisolone for 13years. I have GPA. It was stopped in February by the team I see for GPA. I was told my Vit D levels were ok so to stop it.At the time I didn't question it but I grew concerned so I asked them during a telephone consultation the reason behind stopping. The consultant I spoke to thought it was probably due to a recent diagnosis of Microvascular Angina.

I decided to ask my GP surgery for a Vit D blood test during an annual check up and my Vit D level was 28. I was told 30 was deficient.

My GP is getting in contact with my consultant to see if they are happy for him to prescribe a loading dose. So awaiting the outcome.

Anyone else told this?

[Brussels in reply to ludo]

Hi Ludo,

I have microvascular angina as well secondary to Vasculitis. For the past 3 years I have taken over the counter high dose Vit D as I tend to be deficient ( it’s very common in Behcets Syndrome which is the Vasculitis Variant I have ). I suspect it was the calcium they were concerned about not the Vit D.

[ludo in reply to Brussels]

Hi Brussels, I was thinking the same re calcium. I'm still waiting to hear back from my GP, I guess he's still waiting to hear back from my consultant and so it goes on 🙂.

Alls well that's all the matters in this current situation with Covid.

Merry Christmas and thanks for replying.

Ludo

[gooseflight]

I have GPA and am also on Adcal-D3, which includes vitamin D. (I'm also on alendronic acid but probably don't need to be as pred is now at 5mg. )

[Red-head44 in reply to gooseflight]

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