Lately I’ve been experiencing really bad RSL to the point I can miss 2-3 days of sleep. I live in Florida and the medical care outside of Tampa is horrid. There are so many drug addicted abusing the system coupled with the overwhelming amount of older folks that I think the doctors here are just exhausted and go with the status quo. The only thing they advised I do is take 800 milligrams of vitamin E. It’s not working!! Because of my kidney failure and dialysis I’m limited to some of what I can take and how much. However I recently tried a lidocaine back patch on my leg and BINGO I have success. I’ll ask the doctors tomorrow to make sure it’s safe to use.
Kidney disease and RSL: Lately I’ve been... - Vasculitis UK
I was on Haemodialysis, for four years, and any drugs that were required, Iron to name one, were simply 'added' whilst I dialysed. Can you not, just talk, to your Doctors/Consultants, about this possibility. As regards Vitamins, we were all Prescribed a Multi-Vitamin, specifically designed for Dialysis Patents. I can't unfortunately remember than name, of it, now. I am assuming that you HAVE got a Doctor, that you can 'Talk' to- I Do understand, just how, Pressurised these Doctors are but YOU are different- you have a genuine Medical Condition. I am sending you my Prayers Lilatillar3333, an 'odd' name that- well to an Englishman anyway.
Yes I am getting iron because I’m already in the make each dialysis treatment. I also have been taking vitamin E as directed by my nephrologist which I’m told takes a couple of weeks/months to start working. The only thing I found to help so far was the lidocaine patch. I got a number for a neurologist so I’m hoping to make an appointment as well
I am in the US; My diagnosis has never been clear as to vasculitis, but one thing that I have had my whole life is an extremely severe scoliosis of the thoracic and lumbar spine. The pain is a moving target. Lidocaine Patches are wonderful! My family doctor prescribes 5% patches in a box of 30 with refills. You can cut them to fit wherever you need them.
They do solve a lot of problems.
They are available over the counter at 4%. They are an answer to a lot of problems.
But it is terrible what is happening regarding pain medication in the US for people with serious pain issues. I am allergic to NSAIDS causing serious blistering as well as causing gasrtitis, serious enough to require 2 emergency room visits.
There has been enough push back by chronic pain patient and some doctors that the FDA is revisiting the issue with a patient group to attend a hearing in September. I am not optimistic that things will return to how they were in the past.
But on a positive note, lidocaine does help. Good luck.