LDN sounds too good to be true : Has anyone... - Vasculitis UK

Vasculitis UK

7,876 members6,908 posts

LDN sounds too good to be true

Cathywp profile image
4 Replies

Has anyone heard of LDN? Maybe it is just a scam from the internet but it sounds like a miracle cure for a bunch of autoimmune disorders plus cancer and autism

Written by
Cathywp profile image
Cathywp
To view profiles and participate in discussions please or .
4 Replies
PMRpro profile image
PMRpro

If it sounds too good to be true - it probably is!

Yes, I have heard of it and it is something that crops up on our forum (PMRGCAUK) a lot. I asked Dr Sarah Mackie about it as it is touted for PMR. She said they have looked into it - and find no evidence at all to suggest it is a magic answer to anything. Personally I have a knee jerk reaction to anything that claims to cure everything - and assume it probably doesn't do anything at all.

I suppose it is possibly worth trying - it is safe enough and used in opiate addiction - but whether it will DO anything is another question.

sciencebasedmedicine.org/lo...

jinasc profile image
jinasc

Developed by Stanford University

med.stanford.edu/pain/snapl...

Looks like a cure-all, now touted for Fibromylagia.

I am not saying it does not work, but it is licensed in the UK for MS only as far as I am aware and I don't know if it works or not.

judyann profile image
judyann

I have had two doctors want me to take it. My pharmacist swears by it. I’m going to try it.

Cathywp profile image
Cathywp in reply tojudyann

Well that sounds really interesting. Where can you get it? Do you need a prescription or is it an over the counter drug and if so what is the usual name of it?

I'm excited...thanks

Not what you're looking for?

You may also like...

GETTING BETTER ALL THE TIME! TOO GOOD TO BE TRUE? VACULITIS, PMR/GCA??

Hi to All, My diagnosis has never been entirely clear. Antibodies to PR3 at 1.6 in September, 2016;...

Try not to get too frightened!

Dear all, I'm UK-based. I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly,...
SkinHorse profile image

Need to be diagnosed

Hello! I have not yet been diagnosed but the doctor threw out that he thinks this could be the...
Merelanew profile image

Coping Strategies for Waiting to be Seen

Hi all, I was diagnosed with granulomatosis with polyangiitis (GPA) last month after 6 months of...

Symptoms seem to be increasing but change hourly , daily ,!

Hello , back to hospital next Monday for MRI and had to have bloods taken today due to increase of...
Motherof4 profile image

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.