Rare Disease Day Feb 2016

[Suzym2u]

There has certainly been a lot of activity on FB regarding Rare Disease Day today and on Twitter too, so thought I would share one or two things in the HU community

This is a very good simple video , ideal for sharing with family and friends to help them understand.

youtube.com/embed/qMaVLzWnS80

[5lupins]

Hi, Thankyou for posting the video. Never in the seven years of being ill with GCA have I seen it so clearly. Jen

[Foss]

Thanks so much for this. It's really clear to understand and very informative, I feel like sending it through to my GPs surgery.

Foss

[Justjudes3824]

Thank you for such a interesting and informative video

[AndrewT]

Dear Susan,

What wonderful graphics- if I didn't know 'what was wrong with me' before watching this- I would now! Thank you for sharing this.

How is John, and yourself? Well I hope. Please do give him my 'love', will you.

Thanks again.

Andrew