European Organisation for Rare Diseases Survey - Vasculitis UK

Vasculitis UK

7,774 members6,749 posts

European Organisation for Rare Diseases Survey

Suzym2u profile image
Suzym2uModeratorVasculitis UK
4 Replies

Another survey from EURORDIS

This survey is about the drugs you take for your rare disease. John has completed it.

Follow this link to complete the survey.

surveymonkey.com/r/YVY9PX8

Written by
Suzym2u profile image
Suzym2u
Moderator
To view profiles and participate in discussions please or .
4 Replies
AndrewT profile image
AndrewT

I have 'done', this one-not too scary really.

Sima1952 profile image
Sima1952

This the second survey by Eurordis l've completed, but what makes me smile is the age groupings, do they think that those over 49yrs are to "feeble" to take part in the survey? :-)

AndrewT profile image
AndrewT in reply to Sima1952

Dear Sima1952,

I don't know 'Dearie'- maybe we are! I'll just get my Glasses, Walking Frame, Hearing Aids, 'Extra Large' Slippers, Personal Magnifying Glass, Raised Toilet Seat, Splash Guard, 'Super Bright' LED Light and 'Easy Grip' Pointer- and have a look, for you! Just a moment 'ducky'...........Oh yes I can see it now......Do we have to click 'other' here?.....Sorry me old eyes ain't what they used to be!

Having 'gone along' with the 'stereo-type', for comic effect, you do make a good point actually. Once over fifty we Do seem to be 'lumped together' somewhat-I wonder if all the 'under thirties' would re-act in the same way.

Let me extend that, a little, put children-over ten-in the same category a First Time buyers say? The under fives and the Newly Qualified Drivers? Toy cars and real cars-they are both new drivers, after all. Maybe too far?...Alright Teenagers and mums to be-could easily be the same thing!

Anyway I had better 'end' now, it's getting dark and I need to 'tuck up', by the fire-it IS still winter, you know!

Thanks for the 'laugh', hopefully I've returned it.

Best wishes AndrewT

Sima1952 profile image
Sima1952 in reply to AndrewT

You most certainly have Andrew; keep well.

Sally

You may also like...

Rare Autoimmune Rheumatic Diseases Patient Survey

The Rare Autoimmune Rheumatic Diseases Patient Survey This survey has been developed on behalf of...

Survey from Rare Barometer

diagnosis for your rare disease! This survey should take around 20 minutes to complete....

100,000 Genomes Project - Genetic Alliance UK (Rare Disease UK)

really grateful if you could spare 15-20 minutes of your time to complete it. If you have any...

Survey about fatigue in vasculitis patients

Dear fellow vascies, can I ask you to complete this very short survey? The aim of this project is...

Consultation Response for Rare Diseases (Vasculitis UK)

John has now sent off his 15 page Consultation Response for Rare Diseases ..... taken forever to...