Did You have a problem with rised Calcium i urine because of taking Pronisone

[tamidi]

My doughter have MPA.She is on Pronisone for 3 years.Now she is taking 5mg.

She has rised calcium in urine.

Any experiance?

[LouiseSpencer]

Good morning!

Please try here for some info

healthline.com/health/calci...

[LouiseSpencer]

5mg is a low dose to be causing these issues - however previous doses could have happened - you should discuss with the drs the reasons they think have caused it-

[tamidi in reply to LouiseSpencer]

It is becouse of corticost. Everybody on this site it was,or is still on it.I just ask if somebody had or have the same problem.I afraid becouse that can couse osteophorose

[PMRpro in reply to tamidi]

It could, yes, which is why your daughter should also be taking calcium and vit D supplements so that there is plenty of calcium available for the bones despite the steroid causing increased excretion of calcium. If taking those supplements isn't enough there are other medication to help the bones. If she hasn't already had one done, your daughter should ask for a dexascan which shows whether her bones are still OK so that the right medication can be chosen.

Although the increased excretion of calcium because of corticosteroids can lead to osteoporosis it doesn't always do so. I have been on them for nearly 6 years, for the first 4 years at doses above 10mg/day. I had dexascans done at the beginning and after about 4 years and there was no change in my bone density. I know a lot of other ladies who have been the same. It depends on the person and the only way to know is to have a dexascan - a proper one, not the ones that measure heel bone density. She should ask for one if she hasn't had one.

[tamidi in reply to PMRpro]

she will do dexascan next month.She is only 13 but she was on cortico.for years.In the begining on 60mg .

[PMRpro in reply to tamidi]

I really do understand your fears - my 14 year old granddaughter is on high dose steroids too for asthma. Go below about 20mg/day and the asthma comes back and she has already been in resus a few times - 5mg is just a dream!

I'm sure the doctors will keep a close eye on it all - I don't know at what age they start with what medication for osteoporosis but the dexascan is the first step and I'm sure she'll get them regularly. I know a young man of 18 who is on steroids for life and he is fine so far - they are very good about keeping an eye on their young patients. Just you remember she needs a dexascan every few years and make sure she takes all her meds and everything will work out fine. Make sure she eats well with lots of calcium containing foods and walks as much as she can - I'm guessing any heavier exercise may not be possible? That's what builds bone and if she can do plenty of bodyweight-bearing exercise that helps too - walking, jogging a bit if she can.

Try not to worry too much - as parents we'd do anything to save our children going through this sort of thing but there are some battles they have to work through themselves. Is there a young people's support group for whatever she has? Meeting other parents with the same problems does help a lot and you can exchange tips and experiences. Does she have a specialist nurse? Ask her.

Good luck for the future for you both.

[tamidi in reply to PMRpro]

Thank You for Your answer.

We are from Bosnia,and thing are different for us because we are alone here without any support.

But we are lucky to have very good dr.

Thank You.

[PMRpro in reply to tamidi]

Yes, I realised you weren't "native Brits". I am - although I don't live in the UK but in Italy so I also understand you having to struggle a bit with a different medical system. I'm glad you have a good doctor and if you have any questions do feel you can ask me if I can help and I will answer and explain if I can.

Do you mind me asking: what does your daughter have? It is difficult for teenage girls when they have to take medication - it makes them different from their friends and that just adds to what your daughter has to deal with. Have you been in the UK for very long?

[tamidi in reply to PMRpro]

My daughter have microscopic polyangiitis with panca and gbm pisitive.

I never been in England

[tamidi in reply to tamidi]

She is in god condition.She is playing tenis and she did not get in weight

[PMRpro in reply to tamidi]

You mean you are at home and under the Bosnian health care system? Your English is very good! But so far it sounds as if your doctors are good and doing very well. All the very best for the future to you all.

[tamidi in reply to PMRpro]

Yes I live in Bosnia but we are going in Belgrade in hospital.

I wish You very best and most of all be healthy.

[LouiseSpencer]

Not at such a small dose

[PMRpro in reply to LouiseSpencer]

Not entirely true unfortunately. It is less likely but still possible.

Research was published a couple of years ago that showed that even at 3mg there is still some increased turnover of bone which can result in lowered bone density. It is very small - but enough to lower bone density over a long period if the calcium intake isn't adequate. After all, you can develop osteoporosis even without being on pred if your calcium intake is low. Pred makes you excrete more calcium so if there isn't enough the same will happen.

[Chappell8]

Hi. I've read that when taking calcium and vitamin D3 supplements, we should also take Vitamin K2, and Magnesium. Calcium needs Vitamin K2 to help the calcium go into the bones. Without K2 the calcium may stay in the blood and not get to the bones. If you read up on Calcium, Vitamin K2 and nutrients for healthy bones, or check You Tube, it may help you to decide what may be helpful for your daughter.