My first Meeting of the Clinical Reference Group on Friday in London

[John_Mills]

Such a great opportunity to improve NHS care for people with Rare Diseases including Vasculitis.

The direct specialised commissioning function of NHS England is supported by a devolved clinical leadership model. Clinical Reference Groups (CRGs) covering all prescribed specialised services draw membership from each of the geographical areas covered by the 12 Senates. They are responsible for preparing national specialised service strategy and developing specialised service contract products such as specifications and policies.

Specialised services CRGs have been established to cover the full range of specialised services defined within NHS England’s mandate. The programmes of work for specialised services are structured around the CRGs as the primary source of clinical advice on the development and assurance of specialised services contract products (such as specifications and commissioning policies). The groups will be leaders in developing the products required for the effective commissioning of specialised services.

CRGs bring together clinicians, commissioners, and Public Health experts with the patients and carers who use the relevant services. Members are volunteers who have a particular interest, knowledge or experience of a specific area of specialised healthcare and wish to contribute to its development.

The 74 CRGs are clustered around the five national Programmes of Care (PoC), which bring together services in functional groupings.

[Suzym2u Moderator Vasculitis UK]

geneticalliance.org.uk/docs... this helps explain more about the above post

susan