Interested in Trials

[clove1126]

I'm very interested in trials, but I honestly never hear back from anyone. What is the best way to go about signing up for a trial.

[Hidden]

The link below should help answer your questions and if not come back here and someone with more specific information might be able to assist. Have a great week.

ciscrp.org/

[lankisterguy]

Use this link

clinicaltrials.gov/ct2/sear...

and fill in all the information that applies to you and your disease/condition, specify the location(s) where you want to be treated and click the boxes for "recruiting" and Phase 2 & 3.

That will narrow down the clinical trials for you. Then look for the contact information for the coordinator at your preferred hospital or other medical facility.

Len

[Katiebairdie]

Hi. It seems we have to do some research for ourselves. I did this and then just kept on on mentioning the latest one to my Onc. It worked and today I start on a new drug.

K x

[hbodu1]

If you are in the US, you can contact iParticipate (i-participate.org) or call 860.556.3866. They will do a match for you and try to initiate contact for you.

[FMundo]

I've been in two clinical trials. You need to be very "proactive" in doing this. First determine your primary motivation. Do you want to do this for "science" (altruistic) reasons or because you want access to a drug or therapy that is otherwise out of reach. If the latter, you need to do your homework. Go to the government website (mentioned by previous Replier) and read about inclusion/exclusion factors and make sure you "qualify."* Do your homework by reading articles / papers about prior (Phase I) clinical trials for that particular drug or therapy. Note the names of researchers and institutions involved. Get a contact number. Ask your neurologist to "make a referral" to one of those people and get an appointment to meet with them. Meet with that particular physician (you should study first trial results and come armed with key questions). Tell them of your interest in participating in the Trial. They may or may not be involved in the new trial, but your demonstrated interest is very important. Remember that the "cost" for each person who participates in a trial can approach $100,000. People who "drop out" of a trial diminish the accuracy of the results. Your interest, knowledge and demonstration that you're willing to "go the extra mile" to be involved in a trial makes you a much better prospective candidate. Geography (the proximity of your residence to the place where the clinical examinations will occur is a major consideration and disqualifying factor (as it can effect the likelyhood you'll be able to stay with the program to completion). The key again here is, you have got to take a proactive approach to getting into a Clinical Trial.

[FMundo in reply to FMundo]

And another thing . . .

Clinical trials for drugs involve a significant investment in time (neurological exams, a personal questions about your mental state, bodily functions, EKG's, blood draws, a spinal tap or two or three (after all how do you sample how quickly/effectively a drug is getting to the brain ?), video taping of your mobility and tremors. Some involve brain surgery. And in the end, for a good "blinded" test, you may be given the placebo and were never receiving the trial drug when all is said and done.

Many might say that Clinical Trials are not for the faint of heart . . .

[clove1126 in reply to FMundo]

Well, I've been in two and I'm up for the challenge. 😉

[clove1126]

Thanks, everyone. I've been proactive for two years. Just not a lot of options for my conditions. Thanks for the input everyone! 😊

[hbodu1]

Please do reach out to us at I-Participate. We try to help you through the the sometimes confusing process and match you to a trial.