I have had Tinnitus 15 years now, but briefly (for a few years after it started) I found that Prozac helped me to habituate massively reducing the T and the Hyperacusis, and then after 4 years or so its silver bullet like effect gradually wore off (and I had no idea then that pills did this!) there then followed many years of floundering about trying to find another pill or pills that could do the same thing so alas and as I sit here today typing this I think I have now exhausted all the pills that are out there!? And have retaken some too but to no good effect now sadly - well without going on any more combinations with using bloody antipsychotic pills too to augment an SSRI which can give you horrendous side effects and don’t do much else!
And, over the years what with additional surprise loud noises I’ve inadvertently exposed myself too “out there in the World” (like; bus air brakes, alarms, kids screaming, motorbikes etc) I think my Tin and the Hyperacusis has all worsened? Or, is it just the perception (???) anyway it’s making my life a bloody misery, and so I’m wondering if I’ll ever habituate ever again / get better?? And would I be able to do it without chemical pill interface???
Any useful advice would help. Note I believe I suffer with OCD too which could be hindering me as well (and which the SSRI’s I’ve taken many of over the years did help with). Plus I’ve tried ADHD pills too as do have a bit of that and as once read they can help T - but they’ve done nothing much either! And so as I said I think I’ve now exhausted all pills. Note I have also tried CBT, ACT, acupuncture, hypnotherapy, the mindfulness app, even attended tinnitus self help groups - even though I was the youngest there “by a country mile” and that achieved nothing (Infact I ended up educating them more and on how T comes about! lol! But nice people I suppose but was wasting my time and was all rather quite depressing), and I’ve also tried even prayer, …. and none of these “treatments” really “touches the sides”?! Which has led me to believe if these alternative “talking / relaxation” treatments are only useful if you have low level to medium grade tinnitus, and that if you have “intrusive / chronic tinnitus and Hyperacusis” like me - it doesn’t really help??
And, I wonder if anyone out there can also answer this;
How much of what contributes to having Tinnitus and Hyperacusis is contributed by the neurological / physiological condition itself? And how much is contributed by alleged anxiety and worry etc adding to it? Because my wife thinks that the latter plays the larger part? But I’ve read the opposite and that anxiety and worry only play a small part and it’s usually only in cases where they have light to medium tinnitus and are in shear panic where anxiety plays a bigger part?
My other concern is I also always remember seeing the very last small paragraph on “any” Tinnitus literature that you pick up - and it always says something like this; “there are however a small percentage of people where this condition can adversely affect their quality of life” etc, and I think … yep!! that must be me they’re talking about??
So anyway just wondered if anyone has any other ideas left out to try that I’ve not yet thought of, or is that it now?? Or perhaps you may have some positive comeback that you could supply to this “rant” for me thy might help?? Maybe you’ve experienced a similar journey? I’m 53 yrs old and had this since 38 yrs old, I wouldn’t mind so much if I was in my 70’s or 80’s and lived the best years already - but I should still have a lot of living left to do, and add to that I’ve two small boys who are 9 and 13 who need me? As I can’t do a lot with them either due to this.
I do also take magnesium and statins as have high genetic cholesterol, and have to rely on a sound generator app on my phone when it’s too quiet which offers a little relief but that’s all, and that’s it. I’m all out of ideas now. So getting slightly worried and scared as don’t know what the future holds? Can’t see any way out / ever getting better?? And don’t want to end up completely housebound where I can no longer leave the house as Tin and Hyperacusis that bad!!?? As have read about a few people on here who have spoke of this!!
God preserve us - why can’t an effective treatment / cure be found that tackles the true “cause” of this condition and not the “effects”?? Thanks for listening (if you’ve gotten this far) stay strong and TIA.
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