Tinnitus and BPPV?

[Bee_2]

Hello again, I now have vertigo after bending, crouching and Gp gave me Brandt-Daroff exercises for bppv. Will also see her next week to do Epley maneuver. Has anyone here done these exercises? Any experience? Thank you 🙂

[Happyrosie]

the Brandt may just get you better without the Eply . But you may well need both.

I’ve had Eply three times. First one: Was very very nauseous for three days, then better for a year. Had another Eply where I was fine afterwards. For a couple of years. Had another one a couple of years later was sick in the surgery and it didn’t really work.

Since then I’ve been doing the Bran etc but ONLY the one where you sit down and move your head.

I’ve been more or less clear of BPPV for five years but am careful what I do if a turn my head. Cannot do lying down exercises like Pilates.

I wish you all the best .

The Eply is fine as long as you realise you must be with someone, cannot drive for a few days, and may feel ill. It does work!

[Bee_2 in reply to Happyrosie]

Hi Happyrosie, thank you for sharing.Ah wow I wasn't told Eply can affect you that level! I will need to drive to the appointment!I've started the Brandt, but only saw one exercise, I was only given the name to look it up. It's the turn head-lay down-repeat other side one. What are the other exercises? Thank you

[Happyrosie in reply to Bee_2]

The lay down turn over one made me vomit. Sorry!

I got mine from a website called Brain and Spine Foundation. Find them there.

Please please take someone with you for the Eply. I was fine for one of them and you may be fine too. I certainly,y hope so!

Please post back here!

[perlcoder in reply to Happyrosie]

Gosh Happyrosie, how horrid for you.

I will just add my own experience so that Bee_2 can hear of a different outcome. This is, however, from someone who probably didn't need Brandt / Eply procedure.

You and I are, as I recall, of a similar age. In 2017 I had some intermittent dizzy spells and my excellent GP tried various treatments, including, eventually (I think it was just to be exhaustive), the Brandt / Eply procedure. She did warn me of possible side effects. The whole experience had no effect on me at all. I was never dizzy or nauseous during exercises or Eply, and the dizzy spells I was having resolved naturally some time later.

Bee_2 obviously you should assume worst case and do as Happyrosie recommends, but maybe you can take a little comfort from my case.

[Bee_2 in reply to perlcoder]

Thanks so much for sharing you experience perlcoder. I'm 46, 8 months tinnitus, and vertigo started 2-3 months ago. Early days as only started the brandt yday but I actually enjoy doing them, seems I feel better afterwards.

[perlcoder]

You are welcome, and I am pleased to hear that the exercises are helping.

I am more than 20 years in to my T, and I recall that Happyrosie is almost a lifetime traveller on this path we did not choose. It is my observation that for almost every experience of T, every strategy, or the occasional device or medication that helped someone, there are counterexamples of people who had a bad or neutral experience. I have come to the conclusion that the personality of the sufferer is the most important factor - and (not that we could, in any case copy another person), those personalities, circumstances in life, themselves vary.

Hold tight, take the best from the experiences of others, and never let any bad experiences lead you to believe that yours will be identical. It is certain that they won't.

Best wishes.

[Austen17]

Hi, I've not had BPPV myself but my husband has. He's had 3 debilitating episodes when he had been completely laid low by the room spinning and vomiting with the involuntary eye movement which a specialist said was indicative of BPPV. Really awful to see.

The Brandt-Daroff have worked really well for him. Although first time the exercises always make him really sick, from the second time onwards it's been much easier and he's got better in about 3 days. The key seems to do them regularly. These days he's very careful to avoid sudden sideways head movements!

I have persistent pulsatile tinnitus, tinnitus and dizziness but am seeing as specialist physio who specialises in dizziness not associated with BPPV. It seems to be helping. Good luck!

[Bee_2 in reply to Austen17]

Hi Austen17, I'm glad you and husband seem to found help. This is really useful info, bit stuck with tinnitus as not much help here locally, but can mention spec. physio to Gp next time I see her. I'm not sure at all if I have this BPPV, I think it's more neck related. I had my constant tinnitus stop for one day when I had a stiff neck and came straight back the next day with the stiffness gone.

[AgedCrone]

Over many years I have found the Epley manoeuvre very helpful, but you MUST have it done by somebody recommended by your health professional.

You will find descriptions of it online …but never ever try to do it yourself unless your physio has given you written instructions .The head turning must be done in the right direction or it will make the problem you have much worse.

As Happyrosie says the first treatment is often very unpleasant…but it is well worth persevering……..I first had the Epley treatmen 20+ years ago & no longer need it, but if ever I did I would have it without hesitation l

[Bee_2 in reply to AgedCrone]

Hi and thank you. I've been doing the bppv exercise, just turn head-lay down-repeat other side. I have only looked up the Epley and thanks for the warning, Gp booked me for next week to do it, so will wait with that.

[AgedCrone in reply to Bee_2]

As your GP has booked your appointment it will be with a qualified professional….so I do hope you are somebody it will help.

But as mentioned the first treatment can have a terrible reaction…I had to get off my train home three times to be sick & vowed never again…but I did continue with the course of treatment & it really did the job for my vertigo.

[Bee_2 in reply to AgedCrone]

Yes it will be with the Gp. Glad to hear it helped you

[surreycccfan]

I got BPPV at the same time as my T and my ENT suggested the Brandt Darroff exercises, as long as I stuck to them and did regulary I found them helpful for my BPPV. This and Eply are proven evidence based treatments for BPPV