Good News : 1st time using the forum. Hello, I... - Tinnitus UK

Tinnitus UK

10,546 members5,392 posts

Good News

Bigears1 profile image
20 Replies

1st time using the forum.

Hello, I do hope everyone is well or as well as can be.

I've been studying my tinnitus condition for around 12/15 years. I encourage everyone to do the same. Most Tinnitus associated publications or organizations are merely window dressing and will only serve to keep you confused and on the medical merry go round, IMO of course. If you want any serious relief you really have to take responsibility and begin to take notice of your environment and investigate it properly. After all, we are all products of our environment and our environment has never been so polluted with Electrical and RF/Microwave smog from towers and Satellites as it is now. The last 25 years has seen an unprecedented increase in these types of technologies and a hole host of new health conditions have presented themselves on scales never seen before.

As a Mechanical Engineer and Precision Machinist of 30 years. I've always endeavored to take a methodical and systematic approach to try and understand not only myself but the environments I inhabit and how these environments effect me. You really have to pay attention and not try and "switch off" like some people might tell you! Its easy to ignore or dismiss things but once your paying attention and with a little education you'll learn to trust your observations without being too overwhelmed by your surroundings.

Now i know its not always possible for people to remove themselves from most day to day environments and what I'm about to tell you might seem impossible for many of you, but for some of you it shouldn't be too difficult and its 100% repeatable. Now there are serious conditions that must be followed if your to discover what's NOT causing your tinnitus. And when you know what isn't causing it, you can start to point the finger at what might be! The most important condition is to leave any electronics at home. The second is finding the right location.

I've been very fortunate to be able to visit some very secluded places in the far North West of Scotland (off the beaten track), away from all modern infrastructure. No phone signals, no people, no houses and with high mountains all around you and in close proximity.

As most of you know its at night when its quiet that tinnitus is at its loudest. I have on every occasion at very particular locations had 100% relief from Tinnitus. The first time 14 months ago i was utterly dumfounded that I'd stumbled upon a place where my tinnitus had completely disappeared, even if only for one night. For me not a day of relief has gone by so when your settling down for the night and its so incredibly quiet and you can hear your blood pumping, you known your on to something. I tried this 4 months later and i had the exact same results.

I intend to take someone with me next time who i trust so they can share in the experience.

So my final point is. Get away, explore, aboard maybe, find mountains which are accessible and try it for yourself. If you've planned your trip correctly then there's every chance you'll experience the same as I have. I'm absolutely sure of it.

These big technology company's think they have us all locked down but they haven't and when enough of us realize we've been played then we can start to effect change.

Bless you all & take care

David

Written by
Bigears1 profile image
Bigears1
To view profiles and participate in discussions please or .
Read more about...
20 Replies
MarionP profile image
MarionP

Hi there! Any chance you can make it longer than a day/night at some point? See if it's sustainable rather than just simply within a period of novelty?

Bigears1 profile image
Bigears1 in reply toMarionP

Hi,

I could certainly. Not sure what you mean by novelty though? I'm sure you can appreciate how relentless tinnitus is so one night of complete silence and a second night a few months later satisfied my understanding. But yes my next trip will be longer for sure. Finding locations like the one i mentioned, getting to it with enough provisions requires a lot of preparation. Especially in the winter months.

This is where the research should be, all these organizations are just pocketing the money for doing sod all. Its scandalous.

MarionP profile image
MarionP in reply toBigears1

Well, you said you went for a day, or was I wrong? A day isn't very long for your relief to be attributable to the environment when it could simply be the newness ("novelty" of only one day) of the environment, having been only one day. So next you try to see if it will be durable and persist longer than a day, perhaps longer and longer, that's when you might say it has to do with the environment, and not just the newness of it. See how long it lasts, and does the relief continue on or does it end at some point. Because the "novelty" of the new environment can be a confounding variable until you have eliminated it as a contributing factor... Right now you have an x and a y, two variables. Well, which one caused the relief, you can't say. You must solve for x or for y, assuming one contributes and one does not. After which it would be the environment itself that you might attribute the relief too. Alternatively, if it is the change and not the environment itself, then maybe what helps is taking little trips or changing up where you are for a bit and see if brief changes don't help. That's doing research when you are your own experimental group of one, or "n=1." You said you were an engineer, so think of it as an equation and you have to solve for one, the single, independent variable... Unless you're already firm that both the change and the location are contributing to the relief. Right?

And yes, chum, I have tinnitus. Have done for 30 years.

Bigears1 profile image
Bigears1 in reply toMarionP

I see your point, but I may not have explained mine. I've been to Scotland hiking and camping in the hills probably close to 100 times over the years. Fully aware of the tinnitus in all kinds of weird and wonderful place. So to find certain locations with certain characteristics where its completely gone and its repeatable. I'm sorry but that's significant in my book.

MarionP profile image
MarionP in reply toBigears1

Yes that's the idea, to test and then retest and then test longer. Well I'd love to join you but I am about 5,000 miles away so Scotland is out of the question. I've had my tinnitus for 30 plus years.

Bigears1 profile image
Bigears1 in reply toMarionP

I do know how to test my hypothesis lovely. I think there's no pleasing some people unfortunately. I think your kind of still missing the point though. Nevermind.

MarionP profile image
MarionP

Lovely? Obviously there are still some rustic wankers can't tell the boys from the girls. Present company excepted I'm sure.

EarHealth2024 profile image
EarHealth2024

Thank you for such an interesting post. I will try it out for myself. Any positive findings is great for all us T’s sufferers.

bubbagirl profile image
bubbagirl

I don't usually contribute but I do check in sometimes and saw your post and felt the need to comment in view of the ensuing replies. I have no idea if your theory and experience is a valid one but you are entitled to your views and theories so long as they are not harmful to others as much as anyone else. I hope you continue to benefit from whatever you personally believe gives you relief. We are all different, and yes I have tinnitus and we all make our own choices.

Happyrosie profile image
Happyrosie

currently I’m in a remote place in Africa (though yes I’ve got WiFi). Because I’m happy and fulfilled I just don’t notice the tinnitus - which I’ve had for sixty years or so - and it’s only because I’m reading this post that I’ve noticed it. Except when falling asleep, the local cuckoo or the owl keep me awake and then I hear the T.

bantams profile image
bantams

Hi, I understand what you are saying, but I find that when ever I go on holiday my T is always more subduded which I think it`s just my brain having differant things to focus on and when I return home my T goes back to it`s normal annoying level.

Notreve7766 profile image
Notreve7766

Very interesting post. Thanks for sharing your experience. Just hearing you describe the places you visit was relaxing to me and calmed my Tinnitus.

I have had Tinnitus for many years now and have been on a journey to reach the point where I do have relief from my Tinnitus 99% of the time in any situation.

This has been achieved by dialing down my anxiety and my Tinnitus, like so many others is calmer when I am calmer.

So reading your story this would suggest to me that your experience of being out n nature is so relaxing for you you that your Tinnitus moves completely out of focus.

This is amazing - well done :)

We are all so wonderfully different and there are so many ways for all of us to find ways to achieve this inner peace. Being out in nature is certainly one of mine.

This of course wont work for everyone and its unlikely that the same scenario will have the same effect on others as we are all so wonderfully different. But it does highlight the possibilities of how well we can live with Tinnitus and the importance of us all to continue searching for our own perfect spot on the map or, more broadly the things that relax us the most

So while I don't support a pilgrimage to this specific location as i don't believe its anything specific about that particular spot that's special i do support the notion that being out in fresh air, with no technology spot, stunning views will for many give them a positive experience with their Tinnitus.

Notreve7766 profile image
Notreve7766

Just reading through the responses and I must say Marion and Big Ears that we are not being kind to each other in some of the comments. As 2 people that share a common challenge i would expect you could have found some middle ground here. Appreciate with such an emotive subject that it can be easy to hit a nerve and its of course reasonable to be excited my the prospect of finding locations that can help calm Tinnitus and reasonable to be skeptical and wanting more relief. This conversation could have been had while still being kind to each other.

Sent with care and in the spirit of bringing us together

Great initial post BigEars thanks for sharing.

Fridayiscurryday profile image
Fridayiscurryday in reply toNotreve7766

I totally agree with the sentiments here. Anything that works even for just one person should be celebrated and shared. If there is any chance that it might work for one other person, for any reason at all, then it must be worth passing on.

Thanks to everyone for their contributions. It's great to know you're not alone.

I agree 100% that T is caused by transmissions especially mobile phones. For 36 years I worked in communication technology. The world's first texts were sent from Vodafone (Newbury in the UK silicone valley). I worked with these guys. In the 80's, much was in infancy, and Vodafone engineers told me the mobiles they're developing heat the cells in the brain next to the ear, via frequency heat. Think microwaves. Does anyone else feel pain during a mobile conversation, by their ear? The first generation of mobiles were worst. For us oldies who remember them! Thank you Bigears1 for sharing.

Thank you Bigears1 for sharing 💕. I truly like your thought pattern. Simply escaping to nature's world is always a good thing. I'll note and see if this makes a difference.

Ray200 profile image
Ray200

I do like 'medical merry go round'!

Once they have you in the bag, so to speak, that's it. You are their captive. For those of us blessed with an intellect, we can at least pretend we get the final say ourselves.

Bigears1 profile image
Bigears1

Thanks for the replies. Its a shame but not a surprise the truly patronizing and slightly dismissive comments tend to be from accounts with thousands of replies to there name. That should tell you something. Its not uncommon at all. All social media has the same characters that frequent forums. I don't need to explain why that is.

The fact remains that there are quiet areas, unfortunately though making them public would compromise them.

I encourage everyone to try and find them.

Take care, and God bless.

Notreve7766 profile image
Notreve7766

"We are all products of our environment and our environment has never been so polluted with Electrical and RF/Microwave smog from towers and Satellites as it is now. The last 25 years has seen an unprecedented increase in these types of technologies and a hole host of new health conditions have presented themselves on scales never seen before."

Is this true of Tinnitus? I remember reading about references to Tinnitus references as old as time. Long before technologies etc

I think we need to be careful when discussing these things your theory may mislead people which in turn may delay recovery. Your experience is great to read and proves to me that finding that relaxing thing that works for us can really help our Tinnitus reaction.

I am sure we have much to learn about the impacts of microwave background/mobile phones and the impact on our health but are you saying you believe Tinnitus is caused by the above?

Bigears1 profile image
Bigears1 in reply toNotreve7766

Hi,

The tinnitus effect for want of a better word can be caused by a number of things, yes. Anyone whos been to a club will know there ears can ring for days. Any loud sudden noises can cause a tinnitus effect as well. In my experience the effect does not persist and certainly not for years, a few days at most maybe, depending on the severity of the noise that is. These effects are all measurable. External source, internal effect, in the case of tinnitus and loud noises.

Its the same for radio frequencies, the difference being the external source is not always "noticeable" but the effects are and they are measurable.

There are persistent unwanted radio frequencies, which have been a around a lot longer than you might think, over a hundred years in fact. Radar is a good example which acts like a mechanical force resonating bone structures (Frey Effect) (Microwave Auditory Effect). This is why only you can hear it.

Its a linear measurement because its considered a constant mechanical force. These types of technologies, RF/Microwave/Pulsed/VLF/VHF/Ultrasound, which i can assure are not new by any stretch are well documented to cause tinnitus and other auditory/biological effects.

What's relatively new (60+ years) is the scale on which these frequencies/technologies have been adopted domestically and deployed world wide. Most people are either too distracted or even care in some cases to notice. This is for a number of reasons which we wont go into here now. Basically it comes down to ignorance, willful in many cases. IMO.

The only people who are misleading or at the very least doing a disservice to human kind are the ones NOT talking about RF technology and its relationship to the auditory effect not to mention the biological effects which is another very important topic of great concern.

Its a very serious situation we find ourselves in, which in my opinion is why we don't get to hear much about it on the main stream. We all have to take responsibility and find out for ourselves. Its much easier to blame the individual for having some arbitrary ailment which keeps people ignorant of all the facts.

Hence why we have the window dressing lobby purporting to help people, NGO's/So called charities/ industry funded studies, etc etc etc.

I know its a lot to take in if your genuinely new to this conversation but i cant stress enough how important it is....

Don't take my word for it. Go investigate it properly. Once you understand the basics of how easy it is to reproduce the tinnitus effect it will be much harder for these organizations to mislead you.

Again thanks for the interaction.

God bless

Not what you're looking for?

You may also like...

GOOD NEWS Hearing Aids helping my tinnitus

Hi everyone, I'm glad to report after 20+ years of suffering from tinnitus I am having relief from...

Tinnitus and Hyperacusis

Hi I posted on here recently about my increase in tinnitus. I also have Hyperacusis . Does...

Information processing

How do others find their condition(s) effect their ability to process information through...
daverussell profile image

Describe your Tinnitus Loudness levels

My tinnitus is very loud at night and daytime it gets louder in evenings to a quite distressing...
surviveT profile image

Potential Good News for BTA?

I've just come across a news article about Otonomy, a US biopharmaceutical company, that have...
Keoni profile image

Moderation team

See all
TinnitusUKInes profile image
TinnitusUKInesAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.