New to forum advice please: Hello every body... - Tinnitus UK

Tinnitus UK

10,546 members5,392 posts

New to forum advice please

eric28 profile image
14 Replies

Hello every body,

I have suddenly developed Tinnitus.

Audiology don’t think it’s my hearing although I were aids.

They were quite dismissive about my tinnitus and said I just had to learn to cope with it.

I am presently waiting for appointments with Neurology, E.N.T. and the sleep clinic.

(I use a CPAP machine)

I am feeling quite depressed and angry with the NHS because of the long appointment times.

I havent got any apointement to date and feel like I've been abandoned

Any advice would be greatfully welcomed

Regards

Eric

Written by
eric28 profile image
eric28
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Notreve7766 profile image
Notreve7766

Its so disappointing to read that health professionals are still saying things like "You will just have to cope with it!"

Its also too early for Audiology to conclude the cause of your Tinnitus. In all likelihood there wont be a specific cause of Tinnitus identified.

You have come to right place for support.

Tinnitus sounds are a natural part of us and everyone has heard them to some degree.

So when did you first hear Tinnitus? How do you experience it?

Please don't worry. It can often go away on its own and the most important thing at this stage is to try and calm your body's reaction to hearing Tinnitus for the first time.

The way it was explained to me was that our Nervous System (Fight or Flight mode) kicks in as it can hear a noise it perceives as danger. So we become anxious which in turn elevates our monitoring of this noise so it gets louder and you get stuck in a negative cycle.

So if for example you see a tiger, your fight and flight mode kicks in but as soon as that danger goes away your Automatic Nervous system response can calm. In the case of Tinnitus the perceived danger dosent go away.

So breaking this cycle is key.

I found the following helped... Hot showers, walks, exercise, maintaining good sleep, white noise in the background (not too loud so focus should be on sounds that get your attention rather than compete with the Tinnitus) Not spending on google.

Hope this helps

eric28 profile image
eric28 in reply toNotreve7766

Hi Notreve7766

I think I knew the answers already,

Puting them into practice is the difficult thing to do though .

No more Mr Angry and posgitive thinking from now on ! 🙂

Thanks for your support

Happyrosie profile image
Happyrosie

what Notreve has said really does cover your position.!

It’s sad but very common for the medical profession to be dismissive of Tinnitus.

Other than this forum, a good place to read up about T is the website of Tinnitus UK, the charity. Just don’t believe any “cures” you may see advertised. There may be things that help, and indeed your T could go away all on its own

eric28 profile image
eric28 in reply toHappyrosie

Thanks Notreve7766,I'll try my best to break the cycle.

eric28 profile image
eric28 in reply toHappyrosie

Thanks HappyrosieI will try my best to think positively

Jimbob7 profile image
Jimbob7

Hi Eric,

Welcome to the place where none of us wanted to be. But we're here and we are legion. Swapping ideas, helping each other, a pat on the shoulder, advice and sympathy and understanding each others frustrations and bewilderment at GPs, Consultants - who appear all too readily to push us away out of their headlights because they can't play Dr Kildare and by a stroke of our fevered brow, cure us.

That's it in a nutshell, I'm afraid. They know we have a condition that is not fatal. They know they can't cure it. Their ego's won't allow them to dwell on us as we don't reward them - we stay noisy, suffering, and nothing works. We feel abandoned, left out in the cold. Forgotten, side-lined and told to wait in a back corridor until the sun sets and everybody's gone home.

It's a bastard when the medicals tell us they can't do anything and tell us we'll get used to it - yeah, right, easy for them to say - they haven't got a Jumbo Jet revving it's engines in both ears, 24 hours a day, 365.

What we DO have is here. This place, tools, techniques, shared tips and tricks.

And, more important than anything else anyone will tell you is this; YOU ARE HAVING A SHARED EXPERIENCE.

YOU ARE NOT ALONE.

WE ARE WITH YOU AND WE KNOW WHAT YOU ARE GOING THROUGH.

And by the grace of our shared journey and experience, strengh and hope we will get through this. We are a collective, joned at the hip by our mutual suffering and by our sharing, and talking and being, we turn that suffering in to hope.

And with hope, we carry on.

Jimbob X

eric28 profile image
eric28 in reply toJimbob7

Thanks Jimbob x

Spurdog1 profile image
Spurdog1

Definitely not alone. I have had for over 20 years. Just remember, do not fighr tinnitus with anxiety and stress. Yoy'll make it worse. Try to get on with life. Be dismissive of it. Life will be so much more bearable.

eric28 profile image
eric28 in reply toSpurdog1

Thanks Sourdog1

It helps so much to get posotive advice

Saorfhlaith22 profile image
Saorfhlaith22

Hi Eric do you have hyperacusis along with the tinnitus?

eric28 profile image
eric28 in reply toSaorfhlaith22

Thanks for your reply.

Not sure what hyperacusis is.

I looked it up on google and yes, some loud noises do make me anxious

I don’t like it when people talk loudly. One of my sons seems to almost shout. his uncle is the same. When they are in conversation, I remove my hearing aids.

It’s a subtle hint that never works ! 😊

ETHEL103 profile image
ETHEL103

My ent is 62 weeks with NHS.Ive chosen to go private,got appointment within a week.Not a good state of affairs but I can't wait that long.

Tlyna profile image
Tlyna

I have had the rotten thing since 1993 due to a head injury. I was on antidepressants for a long time due to a slew of health problems but they did nothing for either the depression nor the tinnitus. For me the only thing that helps, especially at night is distraction. Easier during the day when I am busy but when I go to bed I often have to put on an 8 hour track I have of either mild ocean surf or a forest stream at very low volume, just enough to hear but not enough to be disturbing. You will have to go through trial and error to find what works best for you and I wish you the best of luck. I hope you are one of the lucky ones where it resolves away permanently.

eric28 profile image
eric28

Thanks Tlyna ,

I listen to BBC radio at night "Melvyn Bragg"seems to do the trick!

I never get to the end of an episode of In Our Time.

🥱 😴 💤

Not what you're looking for?

You may also like...

New To Tinnitus - Advice & Tips please

I'm very new to T. My Tinnitus only recently started and is a hiss…. Sometimes louder than others....
Andy4713 profile image

Advice please

Had tinnitus for a year now. Was using a Cotton bud to gently clean my ears. The dog jumped up and...
Jubac profile image

New to tinnitus: any advice?

I'm on the start of a horrid journey, trying to work out how to live with tinnitus. It's the...
CHswim471 profile image

New to Tinnitus

Hi I have only had Tinnitus in one ear for about 2 months. It started when I started taking...

Help please

My husband woke up with tinnitus 18 months ago - seen the GP and waiting for ENT referral. He’s...
ClareP5 profile image

Moderation team

See all
TinnitusUKInes profile image
TinnitusUKInesAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.