Its so disappointing to read that health professionals are still saying things like "You will just have to cope with it!"
Its also too early for Audiology to conclude the cause of your Tinnitus. In all likelihood there wont be a specific cause of Tinnitus identified.
You have come to right place for support.
Tinnitus sounds are a natural part of us and everyone has heard them to some degree.
So when did you first hear Tinnitus? How do you experience it?
Please don't worry. It can often go away on its own and the most important thing at this stage is to try and calm your body's reaction to hearing Tinnitus for the first time.
The way it was explained to me was that our Nervous System (Fight or Flight mode) kicks in as it can hear a noise it perceives as danger. So we become anxious which in turn elevates our monitoring of this noise so it gets louder and you get stuck in a negative cycle.
So if for example you see a tiger, your fight and flight mode kicks in but as soon as that danger goes away your Automatic Nervous system response can calm. In the case of Tinnitus the perceived danger dosent go away.
So breaking this cycle is key.
I found the following helped... Hot showers, walks, exercise, maintaining good sleep, white noise in the background (not too loud so focus should be on sounds that get your attention rather than compete with the Tinnitus) Not spending on google.
what Notreve has said really does cover your position.!
It’s sad but very common for the medical profession to be dismissive of Tinnitus.
Other than this forum, a good place to read up about T is the website of Tinnitus UK, the charity. Just don’t believe any “cures” you may see advertised. There may be things that help, and indeed your T could go away all on its own
Welcome to the place where none of us wanted to be. But we're here and we are legion. Swapping ideas, helping each other, a pat on the shoulder, advice and sympathy and understanding each others frustrations and bewilderment at GPs, Consultants - who appear all too readily to push us away out of their headlights because they can't play Dr Kildare and by a stroke of our fevered brow, cure us.
That's it in a nutshell, I'm afraid. They know we have a condition that is not fatal. They know they can't cure it. Their ego's won't allow them to dwell on us as we don't reward them - we stay noisy, suffering, and nothing works. We feel abandoned, left out in the cold. Forgotten, side-lined and told to wait in a back corridor until the sun sets and everybody's gone home.
It's a bastard when the medicals tell us they can't do anything and tell us we'll get used to it - yeah, right, easy for them to say - they haven't got a Jumbo Jet revving it's engines in both ears, 24 hours a day, 365.
What we DO have is here. This place, tools, techniques, shared tips and tricks.
And, more important than anything else anyone will tell you is this; YOU ARE HAVING A SHARED EXPERIENCE.
YOU ARE NOT ALONE.
WE ARE WITH YOU AND WE KNOW WHAT YOU ARE GOING THROUGH.
And by the grace of our shared journey and experience, strengh and hope we will get through this. We are a collective, joned at the hip by our mutual suffering and by our sharing, and talking and being, we turn that suffering in to hope.
Definitely not alone. I have had for over 20 years. Just remember, do not fighr tinnitus with anxiety and stress. Yoy'll make it worse. Try to get on with life. Be dismissive of it. Life will be so much more bearable.
I looked it up on google and yes, some loud noises do make me anxious
I don’t like it when people talk loudly. One of my sons seems to almost shout. his uncle is the same. When they are in conversation, I remove my hearing aids.
Hello. We are on the same path. Just seen consultant privately . Still on the waiting list after 6 months with NHS and decided to go private.
Had virus in January that has affected my hearing. They did hearing test and nerves in ears are the problem. Have cracking in both ears and tinnitus on one side. I feel better I know what it is so can get on. Not much they can do consultant suggested the organisation to get further info so joined this site to see if there was any guidance.
I have had the rotten thing since 1993 due to a head injury. I was on antidepressants for a long time due to a slew of health problems but they did nothing for either the depression nor the tinnitus. For me the only thing that helps, especially at night is distraction. Easier during the day when I am busy but when I go to bed I often have to put on an 8 hour track I have of either mild ocean surf or a forest stream at very low volume, just enough to hear but not enough to be disturbing. You will have to go through trial and error to find what works best for you and I wish you the best of luck. I hope you are one of the lucky ones where it resolves away permanently.
I suddently started hearing noises about six weeks ago. I have been referred by my GP to ENT, but (in the nicest way) informed not to expect it to be too soon. So for now I am just waiting for my first appointment date and it does feel a bit open-ended. I have also been left without resolution or explanation for another medical problem so I can identify with the sense of abandonment.
At least the audiologist who did my hearing test was not quite so dismissive. He did explain what tinnitus is, answered my questions and also advised me to see my GP. My hearing is compromised but barely changed since my last test 6 years ago. It is disappointing to read of your experience.
The last week for me has been a lot quieter although the tinnitus is still there in the background sometimes. My tinnitus is at its worst when I am going to bed as it distracts me from getting to sleep. I have tried a Tinnitus app on my tablet and did find this helpful. It can play a number of soothing sounds or just white noise and distract from the Tinnitus noise. It helped in my case, but everyone is different. Remaining calm has also been an important factor I think. I expect that the NHS will eventually get around to sending me an appointment, but in the meantime, I guess we do have this forum, for which I am grateful.
Thanks for your reply sounds very similar to my experience.I think the key is to try and relax about it all . Difficult when you wonder what the cause is and when you will get an appointment.Good luck
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reactive tinnitus advice?
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New here, any good tips?
Hi new member here seeking advice.
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