My story : I've had T since 2020 which I put it... - Tinnitus UK

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My story

Estonia1234 profile image
8 Replies

I've had T since 2020 which I put it down to a mental breakdown , I must confess the first year i had thoughts of ending it all as it was very bad and the more I got stressed the worst it got.

Until i got to grips with it , I took a very positive approach to it , i knew it was not going to kill me and thought what can i do about it . I will list the steps i took for help me deal with it.

1. Zopiclone (so i get a good nights sleep) I don't take these anymore

2. Sertraline ( to get rid of the stress aspect) I'm on 100mg a day

3. Hearing aids ( They were a game changer)

4. Audio ( Bird song which give different Pitch/ levels of noise)

My T is still the same but have managed to deal with it , I go to bed at the same time every night and I'm asleep within 10 minutes , i wake up to go to the toilet and fall back to sleep straight away. I put this down to training my brain when i should sleep .

The odd occasion that it aggravates me i take Panadol night that seems to dull the noise.

I'm able to sit in a quit room and ignore it , don't treat it as an enemy as it will in my opinion make things worse. I'm now able to deal with it and get on with my life, im 66 now and still work which is a great distraction. ,

All the above works for me and only posting this if it helps someone to improve there quality of life .

Kind Regards David

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Estonia1234 profile image
Estonia1234
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8 Replies
perlcoder profile image
perlcoder

Hello David,

I believe that personality of the sufferer is by far the most important factor in dealing with T. Of course the personality may be supported by various forms of therapy, but at bottom some people (you) eventually deal well with T, while others are less able to do so. The perceived loudness of the T has little to do with it. I don't say this to condemn anyone (I have never dealt well with mine), or even to praise anyone, because there is an element of luck in all our constitutions, but it is always heartening to hear of someone who has done well - just that simple fact is important, as much or more than it is to learn the details of the therapies / habits that helped them.

Happyrosie profile image
Happyrosie

thank you so much, Estonia, for posting this.

EarHealth2024 profile image
EarHealth2024

Thank you.

bantams profile image
bantams

Brilliant, well done. Your post will give everyone hope that it is possible to live a near normal life again after first suffering distress with T.

horsewhispere profile image
horsewhispere

Hi David,

It seems that you're doing all the right things for 'you'. There doesn't seem to be any right or wrong things regarding this incredibly annoying malady! Mine came from nowhere (the Pulsatile variety)....I was swallowing anything that I thought might help! The more I could hear my pulse the higher my heart rate was to the point that I've had several panic attacks. Propranalol came to the rescue..simply put, it blocks the adrenaline that is the culprit for the fight or flight mode. However, I can function fine and can't hear it unless there's complete quiet. Sometimes it's louder, sometimes there's a crackling sound then nothing! Then a couple of minutes later it starts again. At night I take Dosulepin which more or less knocks me out.

To be honest I've stopped thinking and worrying about what may have caused it...flu, microwaves, mobile phones and the like...what's the point? I live with it and have stopped fighting it and live my life as best I can. I'm geared up to the fact that it may well be with me for the rest of my life. It's thudding away as I type but quite frankly I couldn't care less. Oh! the left ear has started ringing now....it's like the Last Night of the Proms!! Good luck with it David...and don't let it get you down...run with it.

Cookie24 profile image
Cookie24

How do you train your brain it is time to sleep?

Estonia1234 profile image
Estonia1234 in reply toCookie24

Hi i did this when taking sleeping tablets , i went to bed at the same time every night , i weened myself off the sleeping tablets and continued going to bed at the same time. After a while my body/brain got used to this sleep pattern . I go to bed and within 10 minutes im asleep. I hope this helps

Supervision6 profile image
Supervision6

Thank you David for taking the thought and time to write your post.

Your recovery interventions run parallel with my own.

T came into my awareness during 2017 . The spiral downwards, very similar to yourself, has past by , a day at a time. I have reached 71 years old and started to have more contentment out of life .

Best wishes to fellow sufferers

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